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Experiences with
Skin or nail infections
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143 public communities
MY SKIN
8,499 members
Welcome to the MY SKIN Community, a peer support community for those experiencing issues with their skin. Join us to share your story and experiences, ask questions, and support others. Connect with others like you today and get real opinions from others who have experienced similar conditions. Anyone needing help or support from a patient organisation can choose from the list of resources in the pinned post in the right hand column on the posts/home page.
BASHH
21,261 members
The British Association for Sexual Health and HIV or BASHH for short is the UK's leading organisation dealing with all aspects of sexual health including Contraception, sexual infections and HIV. At present there is no one to actively monitor or moderate posts here. We advise that if you seek specific healthcare advice regarding sexual health you go to our website www.bashh.org Here you will find a wealth of information for the public - particularly patient information leaflets on a range of sexual infections: www.bashh.org/pils Other good sources of information include for both sexual infections and contraception include: www.sexwise.org.uk and www.nhs.uk
Aspergillosis and Rare Fungal Infection Support
3,857 members
Serious fungal infections are very rare but also very under-diagnosed and that has several consequences. 1) There are many more cases than we currently know about 2) People who are diagnosed can be very isolated and benefit from community support This community is intended to address these issues by informing and educating people in the UK about serious fungal infections, what to look out for, how to get diagnosed and where the expert help is in the UK. We also feel that informing patients is a great way to support their medical teams. The National Aspergillosis Centre (www.nationalaspergillosiscentre.org.uk), currently based in Manchester is the main UK centre for the serious fungal infections caused by Aspergillus (see aspergillosis.org) and is where admin of this community is based, so we have all we need t to advise you on aspergillosis - maybe even get you a referral to this centre if warranted. This is also the site of the Mycology Reference Centre in Manchester (http://mrcm.org.uk/) which is a big skill base for the identification of all pathogenic fungi, consequently, we can support the diagnosis and treatment of other rare fungal diseases like cryptococcal meningitis, Candida bloodstream infection, Pneumocystis pneumonia and more. Note that we only support people who can use the UK NHS and only for questions and conversation about serious rare fungal infections and NOT the very common infections that you should be consulting your GP or pharmacist about - we cannot replace your relationship with your medical team but we may be able to help them help you. Any entries that seem to us to be better dealt with by your medical team first will be deleted. Any non-UK questions will also be deleted - sorry, but we are funded by the UK taxpayer and they have to come first!
Skin Cancer UK
444 members
WE ARE SKCIN.· The UK’s national melanoma and skin cancer charity dedicated to raising awareness through education to promote the prevention and early detection of skin cancer, to improve prognosis and save lives. With 86% of all skin cancers preventable and early diagnosis vital, education is key to combating the soaring rates of skin cancer in the UK. We focus on pioneering, proactive intervention on a national scale with targeted, bespoke, educational accreditation programmes that are accessible, impactful and measurable. Our work supports the call from public health as to who is most effective to help improve the nation’s health, addresses concerns raised in the Government’s 2020 Skin Cancer Vision and helps combat the huge financial burden that is estimated, by 2020, to cost the NHS over £180 million annually. Together, we can make a difference and save lives.
Melanoma Wellness Canada
87 members
Melanoma Wellness Canada is a group created and maintained by the Canadian melanoma patient group Save Your Skin Foundation. It exists as a place for patients and caregivers touched by melanoma skin cancer to connect and share resources. We strive to support overall wellness for melanoma. Wellness is about more than just the absence of physical illness. Working towards wellness encourages us to work towards complete health. We believe that emotional wellness fosters physical wellness and physical wellness increases our emotional wellness. Team members of Save Your Skin Foundation will facilitate the page, but this is your space; please feel free to share, as long as it is relevant to the group and respectful. This may include your experience with melanoma, or any other articles or resources you feel the rest of the group could benefit from.
Hidradenitis Suppurativa Support
661 members
The Hidradenitis Suppurativa Trust is a UK Registered Charity dedicated to the raising of awareness, understanding and support for the chronic, debilitating skin disorder Hidradenitis Suppurativa (HS). Hidradenitis Suppurativa is estimated to affect only 1% of the UK population, however these figures could in effect be higher due to mis-diagnosis, and those who suffer alone in silence, as the disease dominates the most intimate areas of the sufferer, thus leaving some people too ashamed or embarrassed to go to their doctor. Our aim is to increase public knowledge and educate the medical profession on the symptoms, treatments and severities of Hidradenitis Suppurativa, and to provide vital funds for the purpose of research into causes, prevention and treatment.
Changing Faces
3,133 members
This community is for the 1.3 million people in the UK with a visible difference, from a mark, scar or condition that makes them look different. We provide advice, support and psycho-social services to children, young people and adults. We challenge discrimination and we campaign for Face Equality: a world that truly values and respects people who look different We want a future where everyone with a visible difference on their face or body has the confidence, support and opportunity to lead the lives they want. If you would like to talk to someone, Changing Faces offers the Support and Information Line in the UK, for people affected by any visible difference caused by a mark, scar or condition, whether on the face or body, and families and friends. To get in touch with us, please follow this link: https://www.changingfaces.org.uk/services-support/support-information-line/
My OCD Community
9,030 members
Welcome to My OCD Community! We’re glad you’ve chosen to join us! My OCD Community is a safe, supportive, informative, and friendly community for all people affected by OCD. It also supports all people affected by OCD related disorders such as Hoarding Disorder (HD), Body Dysmorphic Disorder (BDD) and the BFRB’s (body-focused repetitive behaviors, such as skin picking and hair pulling). The group is moderated by the International OCD Foundation (IOCDF) and HealthUnlocked (HU). The members of this group are vulnerable in sharing their triumphs and struggles and receive immense support from one another. In that same spirit, we welcome you to share your story and encourage others. Lastly, we urge you to get familiar with our Community Guidelines: https://healthunlocked.com/my-ocd/posts/138741516/community-guidelines. Once again, a huge welcome to your OCD Community :)
Living Well with HIV
1,009 members
This community is for people affected by HIV/ AIDS. If you or someone you know is positive, this is a safe peer support community is for you.
HIV Partners
2,318 members
Forum Link has joined forces with the HealthUnlocked team to create this HIV positive online community. We want to make it easier for HIV positive people to find a range of information and support we all need, particularly when we have just been diagnosed with HIV. We do this by highlighting resources from selected other community sites and encouraging members of this community to post messages online. Whether you are newly diagnosed or have been living with HIV for some time we hope you will find this online community of other people living with HIV useful. For more details see the Forum Link web site at http://www.forum-link.org
Group B Strep Support
746 members
This is a community dedicated to helping those affected by group B Strep (GBS). GBS is a common bacterium that lives in 20-30% of adults, usually with no symptoms or side-effects. Most commonly found in the intestines, it can also live in the vagina of adult women. It is a ‘commensal’ – an organism that lives on another without causing harm. GBS can cause infection, most often in newborn babies. It more rarely causes infection in adults (typically women during pregnancy or after birth, the elderly and those with serious underlying medical conditions causing impaired immune system). Although relatively uncommon, GBS is the most common cause of infection in newborn babies and of meningitis in babies under age 3 months. On average in the UK, one baby a day develops GBS infection - one baby a week dies and one survivor a fortnight has long-term disability.
More To Life
1,300 members
THIS IS FOR THOSE WHO ARE CHILDLESS BY CIRCUMSTANCE. TO PROTECT OUR MEMBERS AND KEEP THIS A SAFE SPACE PLEASE DO NOT JOIN THIS COMMUNITY IF YOU ARE ACTIVELY TRYING TO CONCEIVE OR USING ALTERNATIVE FAMILY BUILDING OPTIONS. If you are no longer actively pursuing fertility treatment or alternative family building options our More To Life community set up by Fertility Network UK. The More To Life community is for those who are childless by circumstance, not by choice. You may have tried fertility treatment with no success, or considered other family building options but decided that wasn’t right for you, you may have a partner who doesn’t want to have children, or perhaps you just didn’t find the right person to have a baby with. Whatever your circumstance if you are no longer actively pursuing treatment or alternative family building options our More To Life community is a place where you can receive peer to peer support to find a way to appreciate and enjoy your life without children.
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