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Shox
Just wondering how many FNDers have autistic kids , why I ask is I do and a few months ago he had to under go a whole lot of blood test well the test came back on Friday where they had found a rare genetic flaw in his DNA called SHOX - leri-Weill syndrome which is a neuro development Dissorder and I
Just wondering how many FNDers have autistic kids , why I ask is I do and a few months ago he had to under go a whole lot of blood test well the test came back on Friday where they had found a rare genetic flaw in his DNA called SHOX - leri-Weill syndrome which is a neuro development Dissorder and I
Ronwyn
in
Functional Neurological Disorder - FND Hope
7 years ago
Paying for having fun.
I sure enjoyed my time hunting the last couple of days with my son and nephews but of course it came with a cost. Today my fatigue has me kicked to the curb. In so darn tired and weak its an effort to make it to the bathroom. But if that's the cost of being normal so be it. God willing I will do it
I sure enjoyed my time hunting the last couple of days with my son and nephews but of course it came with a cost. Today my fatigue has me kicked to the curb. In so darn tired and weak its an effort to make it to the bathroom. But if that's the cost of being normal so be it. God willing I will do it
Doubled51
in
My MSAA Community
7 years ago
The end...
I feel like i cant do it anymore im so tired. I feel like im not good enough fore anything. when i was 14 i was diagnosed with epilepsy. I couldn't believe it. From ther my life changed the episode destroyed me. Im 19 now. Today i was in a small accident i didn't get hurt but now i feel like i cant
I feel like i cant do it anymore im so tired. I feel like im not good enough fore anything. when i was 14 i was diagnosed with epilepsy. I couldn't believe it. From ther my life changed the episode destroyed me. Im 19 now. Today i was in a small accident i didn't get hurt but now i feel like i cant
Sadgirl123
in
Mental Health Support
7 years ago
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Paying for private beta HCG blood test
Is it possible to pay on nhs to do beta hcg test? (We are self funded in nhs clinic) I dont think they will feel it is clinically necessary but I would like to know. I am 10dp2dt and the last three mornings I had positive hpt (with a darkening line) otd isnt until wednesday. (We did reciprocal ivf so
Is it possible to pay on nhs to do beta hcg test? (We are self funded in nhs clinic) I dont think they will feel it is clinically necessary but I would like to know. I am 10dp2dt and the last three mornings I had positive hpt (with a darkening line) otd isnt until wednesday. (We did reciprocal ivf so
Stary
in
Fertility Network UK
7 years ago
PSP and Apomorphine
My father's neurologist has prescribed apomorphine injections for "off-periods" when my father's immobility gets bad. He has recently been diagnosed with PSP. Does anyone with PSP have any experience of this drug that they would be willing to share? Its quite expensive so would be keen to know if it's
My father's neurologist has prescribed apomorphine injections for "off-periods" when my father's immobility gets bad. He has recently been diagnosed with PSP. Does anyone with PSP have any experience of this drug that they would be willing to share? Its quite expensive so would be keen to know if it's
PDDJED
in
PSP Association
7 years ago
Anybody else feel like a vampire sometimes?
It's 2:30 a.m. End of the work week. Why am I not sleeping?!. If I don't get in bed by 9:30 or 10 this huge sense of calm but alertness comes over me and I start plucking my eyebrows or actually trying on those clothes I mail ordered 3 6 or 9 months ago. My dog is giving me the evil eye. Go to sleep
It's 2:30 a.m. End of the work week. Why am I not sleeping?!. If I don't get in bed by 9:30 or 10 this huge sense of calm but alertness comes over me and I start plucking my eyebrows or actually trying on those clothes I mail ordered 3 6 or 9 months ago. My dog is giving me the evil eye. Go to sleep
SometimesCrazy
in
My MSAA Community
7 years ago
Looking for a doctor in UK, or Europe who treats Wisons Syndrome
Hi all I've been experimenting with all sorts of atrategies to get my energy back; just recently I have been getting my temperature up artificially, then I completely cut grains, and for the last week I gave been swimming daily despite the tiredness in the hope that my body would rebalance... Nothing
Hi all I've been experimenting with all sorts of atrategies to get my energy back; just recently I have been getting my temperature up artificially, then I completely cut grains, and for the last week I gave been swimming daily despite the tiredness in the hope that my body would rebalance... Nothing
RobinPaulWilliams
in
Thyroid UK
7 years ago
Cyclogest and Vitex?
Hi everyone. I'm hoping someone will be able to help me as Dr Google was useless, and Dr Specialist even worse! After 11 months of being seen by various fertility specialists and expecting no support from our last appointment before being referred for IVF, my dh and I decided I'd try vitex to help a
Hi everyone. I'm hoping someone will be able to help me as Dr Google was useless, and Dr Specialist even worse! After 11 months of being seen by various fertility specialists and expecting no support from our last appointment before being referred for IVF, my dh and I decided I'd try vitex to help a
Hidden
in
Fertility Network UK
7 years ago
the C word
I am a creationist, not an evolutionist. As creationist I believe that a Creator would put everything that the creation would need on this planet. The enemy loves to make you believe that a little is good more would be better. I had a long talk with Dr. Troutt and told him that I want to get back to
I am a creationist, not an evolutionist. As creationist I believe that a Creator would put everything that the creation would need on this planet. The enemy loves to make you believe that a little is good more would be better. I had a long talk with Dr. Troutt and told him that I want to get back to
Serenity_finaly-1
in
Cure Parkinson's
7 years ago
Olanzepine vs sulpiride
I have been taking olanzepine since June when I had PPP. Now been out of hospital for 4 months and doing ok. Main problem is the weight gain and muscle pain caused by olanzepine. I have asked my doctor if I can change to a different antipsychotic, she has given me choice of sulpiride, aripiprazole or
I have been taking olanzepine since June when I had PPP. Now been out of hospital for 4 months and doing ok. Main problem is the weight gain and muscle pain caused by olanzepine. I have asked my doctor if I can change to a different antipsychotic, she has given me choice of sulpiride, aripiprazole or
Annanooshka
in
Action on Postpartum Psychosis
7 years ago
CPAP & AF
Now this is odd one I know as I hit upon this quite accidentally. 9.30am the old thumps and bumps started and sure enough I was in AF - HR 100-130 ish, I can usually function until it goes over 150+ so I carried on. About 90 mins later it obviously wasn’t going away and I was getting breathless so
Now this is odd one I know as I hit upon this quite accidentally. 9.30am the old thumps and bumps started and sure enough I was in AF - HR 100-130 ish, I can usually function until it goes over 150+ so I carried on. About 90 mins later it obviously wasn’t going away and I was getting breathless so
CDreamer
in
AF Association
7 years ago
Rasagiline (Azilect) costing more in 2018
Just got a notice from Humana, my husband’s drug plan, that the generic rasagiline is moving to a higher pricing tier in 2018! Why would they do this? And does it seem to delay the progression of Parkinson’s like first hoped, or does it help much? He is considering dropping it. He was diagnosed two
Just got a notice from Humana, my husband’s drug plan, that the generic rasagiline is moving to a higher pricing tier in 2018! Why would they do this? And does it seem to delay the progression of Parkinson’s like first hoped, or does it help much? He is considering dropping it. He was diagnosed two
Mlitt0818
in
Cure Parkinson's
7 years ago
Nothing left my job is over
I am 65 next year. My life has been crap. Bullied at school for been fat. Marriage no good. Told I was no good mentally abused. My son left at 14 . Daughter special needs grandson I brought up epilepsy narcolepsy learning difficulties. He nearly died July on life support for 8 days. Now ok moved to
I am 65 next year. My life has been crap. Bullied at school for been fat. Marriage no good. Told I was no good mentally abused. My son left at 14 . Daughter special needs grandson I brought up epilepsy narcolepsy learning difficulties. He nearly died July on life support for 8 days. Now ok moved to
Hidden
in
Mental Health Support
7 years ago
RLS was a key topic at the World Sleep Society congress
The World Sleep Society exists to advance sleep health worldwide and it fulfils this by promoting and encouraging education, research and patient care throughout the world, acting as a bridge between different sleep societies and cultures, supporting and encouraging worldwide exchange of clinical information
The World Sleep Society exists to advance sleep health worldwide and it fulfils this by promoting and encouraging education, research and patient care throughout the world, acting as a bridge between different sleep societies and cultures, supporting and encouraging worldwide exchange of clinical information
Daragh
Restless Leg Syndrome
in
Restless Legs Syndrome
7 years ago
Afib 4 days after ablation
I had the Ablation for AF last Thursday and early Tuesday morning I was admitted to hospital with AF. Plus I had high cardiac enzymes. Turned out the enzymes were high because of the inflammation from ablation and the doctor said that breakthrough AF and PAC's were a common during the first three months
I had the Ablation for AF last Thursday and early Tuesday morning I was admitted to hospital with AF. Plus I had high cardiac enzymes. Turned out the enzymes were high because of the inflammation from ablation and the doctor said that breakthrough AF and PAC's were a common during the first three months
Dixiegurl
in
AF Association
7 years ago
Sinus Massage
Hi everyone Has anyone ever tried sinus massage for headaches/ migraine? I recently went to the doctor for headaches. He thought I might have blocked sinuses. He gave me paramax which works occasionally. I have since done sinus massages and nasal irrigation, which I have found helps a lot. Also drinking
Hi everyone Has anyone ever tried sinus massage for headaches/ migraine? I recently went to the doctor for headaches. He thought I might have blocked sinuses. He gave me paramax which works occasionally. I have since done sinus massages and nasal irrigation, which I have found helps a lot. Also drinking
Shaas
in
National Migraine Centre
7 years ago
Sleep aid
I tried Ashwagandha and 3 mg time release melatonin taking Ashwagandha 400 mg at 8 pm (I take Azilect 1 mg 8 am) and melatonin at 10 pm. Instead of sleeping through TV I felt social and talkative not a bit anxious and sleep was restful and restorative. But next day found that after taking 5 mg Isradapine
I tried Ashwagandha and 3 mg time release melatonin taking Ashwagandha 400 mg at 8 pm (I take Azilect 1 mg 8 am) and melatonin at 10 pm. Instead of sleeping through TV I felt social and talkative not a bit anxious and sleep was restful and restorative. But next day found that after taking 5 mg Isradapine
Ruffinglgo
in
Cure Parkinson's
7 years ago
CPAP 1 week in
Just wanted to say that I am very happy and so relieved to have this machine. I hadn't realised how I must have been panicking as I drifted into sleep. I am also thinking I have have had SA for years, way before PMR. My main reason for this update is to share this. Before the CPAP machine I could be
Just wanted to say that I am very happy and so relieved to have this machine. I hadn't realised how I must have been panicking as I drifted into sleep. I am also thinking I have have had SA for years, way before PMR. My main reason for this update is to share this. Before the CPAP machine I could be
IdasMum
in
PMRGCAuk
7 years ago
Methylene Blue for parkinsons
https://www.earthclinic.com/cures/parkinsons.html Has anyone tried tried this . I tried thi on Mom years ago - but that was still the initial stages of the disease and it kept things ok. Then she had other issues and we completely forgot about this . The only issue is i need to discontinue her anti-depressant
https://www.earthclinic.com/cures/parkinsons.html Has anyone tried tried this . I tried thi on Mom years ago - but that was still the initial stages of the disease and it kept things ok. Then she had other issues and we completely forgot about this . The only issue is i need to discontinue her anti-depressant
mymomhaspd
in
Cure Parkinson's
7 years ago
Miss you all, move MS and stopping
Hey to all my peeps, I now consider you family.My heart goes to all those facing issues,with prayer.I have found myself in chair stopped unpacking due to regular pain legs and doc appoints.I must say that this group has such uplift in adversity I don't think there is another.I am here thinking of you.Praying
Hey to all my peeps, I now consider you family.My heart goes to all those facing issues,with prayer.I have found myself in chair stopped unpacking due to regular pain legs and doc appoints.I must say that this group has such uplift in adversity I don't think there is another.I am here thinking of you.Praying
jackiesj
in
My MSAA Community
7 years ago
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