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BCG - intravesical immunotherapy - Update.
Got a letter this morning giving me dates for this treatment. 7th December - 14th December and 21st December. While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter. For the first time since my diagnosis, i do not know the findings of
Got a letter this morning giving me dates for this treatment. 7th December - 14th December and 21st December. While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter. For the first time since my diagnosis, i do not know the findings of
Ern007
in
Lung Conditions Community Forum
10 months ago
Shingles vaccination
Have any of you under 70 year olds in the UK managed to get a shingles vaccination. Two people I know have suffered shingles in the eye, head, face recently. Very unpleasant and painful several weeks later.
Have any of you under 70 year olds in the UK managed to get a shingles vaccination. Two people I know have suffered shingles in the eye, head, face recently. Very unpleasant and painful several weeks later.
Bluey-1
in
PMRGCAuk
1 year ago
pneumococcal vaccine offered
Hello Trying to make an informed decision on having the offered vaccination ...I have hypo Thyroidism Osteo arthritis and psoriatic arthritis so Im assuming that is why I am being offered , as I am not over 65 years (63 ) Any pros and cons please ? Thank you
Hello Trying to make an informed decision on having the offered vaccination ...I have hypo Thyroidism Osteo arthritis and psoriatic arthritis so Im assuming that is why I am being offered , as I am not over 65 years (63 ) Any pros and cons please ? Thank you
Middleagedandtired
in
Arthritis Action
1 year ago
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Bladder Cancer Update,
A most will know. Besides my COPD and heart problems I have Bladder Cancer which is Hight Grade, Six weeks ago I had a Rigid cystoscopy to see how my last ditch treatment on BCG would go and told, would be the last time I could have that. I had heard nothing and was 6 weeks ago Sunday. I phoned
A most will know. Besides my COPD and heart problems I have Bladder Cancer which is Hight Grade, Six weeks ago I had a Rigid cystoscopy to see how my last ditch treatment on BCG would go and told, would be the last time I could have that. I had heard nothing and was 6 weeks ago Sunday. I phoned
Ern007
in
Lung Conditions Community Forum
11 months ago
Important info relating to Free School Flu Vaccine Programme for children and young people
The government has released a bulletin offering secondary school pupils a free flu vaccine at school from 1st September. Please note the following: All children and young people with JIA are encouraged to have the flu vaccine. The standard vaccine is a nasal spray which contains a live vaccine
The government has released a bulletin offering secondary school pupils a free flu vaccine at school from 1st September. Please note the following: All children and young people with JIA are encouraged to have the flu vaccine. The standard vaccine is a nasal spray which contains a live vaccine
Nicola-NRAS
Partner
in
JIA-at-NRAS
1 year ago
shingrix - Ay caramba! Anyone else with major sore arm afterwards?
hello friends Well after being hospitalized with
shingles
in August I was determined to get the
vaccine
. Went this morning and my goodness my arm is so sore as well as tingles in little finger! I am used to basically nothing happening with flu and Covid jabs and sort of assumed the same here.
hello friends Well after being hospitalized with
shingles
in August I was determined to get the
vaccine
. Went this morning and my goodness my arm is so sore as well as tingles in little finger! I am used to basically nothing happening with flu and Covid jabs and sort of assumed the same here.
Bon1
in
NRAS
10 months ago
Shingles vaccine
I know this has been discussed several times and is covered in FAQs so I apologise for raising it again. Last year I was told by my GP practice not to have the shnigels vaccine because it was live and I was considered immunosuppressed being on 5mg of pred. This year they say it's safe for me to have
I know this has been discussed several times and is covered in FAQs so I apologise for raising it again. Last year I was told by my GP practice not to have the shnigels vaccine because it was live and I was considered immunosuppressed being on 5mg of pred. This year they say it's safe for me to have
scats
in
PMRGCAuk
2 years ago
Yearly flu jab
Presume people who are on immunosuppressants have taken the yearly flu jab and it has been largely uneventful?
Presume people who are on immunosuppressants have taken the yearly flu jab and it has been largely uneventful?
Udupik
in
Vasculitis UK
1 year ago
B12 self injection
So we ordered some panpharma b12 injections which arrived yesterday. My partner has a b12 level of 123 with neurological symtoms and gp refuses to treat. I just got my results from my b12 test result last week a level of 202 which gp said was normal. Maybe this was abit stupid but as I have symptoms
So we ordered some panpharma b12 injections which arrived yesterday. My partner has a b12 level of 123 with neurological symtoms and gp refuses to treat. I just got my results from my b12 test result last week a level of 202 which gp said was normal. Maybe this was abit stupid but as I have symptoms
Nic878
in
Pernicious Anaemia Society
1 year ago
😵💫Crazy COVID story 😷🤧
Next year I'll turn 50 and the
shingles
2 jab
vaccine
is recommended for everyone at that age. I'll be in line 💉 for that one too. Viruses are charlatans, shape shifters and opportunistic buggers. I can't wait for the new booster to become available.
Next year I'll turn 50 and the
shingles
2 jab
vaccine
is recommended for everyone at that age. I'll be in line 💉 for that one too. Viruses are charlatans, shape shifters and opportunistic buggers. I can't wait for the new booster to become available.
LifeIsThePitts
in
Anxiety and Depression Support
1 year ago
Shingles vaccine
Oh my l had my 2nd vaccine yesterday and l have had a horrible night, shivering, headache, aches and pains and peeing every half hour,the lst one was bad but the 2nd horrendous side effects 😢 bed day today 😢
Oh my l had my 2nd vaccine yesterday and l have had a horrible night, shivering, headache, aches and pains and peeing every half hour,the lst one was bad but the 2nd horrendous side effects 😢 bed day today 😢
sun_flower
in
CLL Support
2 years ago
another cover booster
Hi i am a bit worried about having my 5th booster for covid on 22nd /6/23 because my consultant said something happened last November to make my c.k.d. worse . the only thing that changed was my cover and flu jab. He said he couldn't for sure say it wasn't the cover booster that caused it but he feels
Hi i am a bit worried about having my 5th booster for covid on 22nd /6/23 because my consultant said something happened last November to make my c.k.d. worse . the only thing that changed was my cover and flu jab. He said he couldn't for sure say it wasn't the cover booster that caused it but he feels
eyeBRing
in
dRTA (distal Renal Tubular Acidosis)
1 year ago
Sanofi vaccine and shark liver oil
I don’t think this has been posted before but the fact Sanofi is for over 75s makes sense if the shark oil is an immune booster and apparently is also given in the flu vaccine for the over 75s. I wonder if those with fish allergies/vegans were aware, but thinking people have probably had it and been
I don’t think this has been posted before but the fact Sanofi is for over 75s makes sense if the shark oil is an immune booster and apparently is also given in the flu vaccine for the over 75s. I wonder if those with fish allergies/vegans were aware, but thinking people have probably had it and been
Neonkittie17
in
NRAS
1 year ago
My Condition and OP - Update.
Hello all. Was having a lie-in this morning - The phone rang and it was the urology waiting list people. I was informed my op to see if the BCG treatment had worked or not, is scheduled for the 8th of October. I doubt very much the BCG will have worked - I think my urology/oncology nurse thinks
Hello all. Was having a lie-in this morning - The phone rang and it was the urology waiting list people. I was informed my op to see if the BCG treatment had worked or not, is scheduled for the 8th of October. I doubt very much the BCG will have worked - I think my urology/oncology nurse thinks
Ern007
in
Lung Conditions Community Forum
1 year ago
Who gets Shingles.
I am assuming that anyone who has not had chicken pox should get the
shingles
vaccine
with its painful side effects. I read in several places on google : What causes shingles? Shingles is caused when the chickenpox virus is reactivated.
I am assuming that anyone who has not had chicken pox should get the
shingles
vaccine
with its painful side effects. I read in several places on google : What causes shingles? Shingles is caused when the chickenpox virus is reactivated.
onu1tadi2
in
CLL Support
2 years ago
Update on Nuclear Scan and where I am at now.
First: thank you all for the kind support I have received since - Much appreciated. To the Nuclear Scan ordered by my GP for suspect spread from bladder cancer to the bones. I got a call from my GP surgery today telling me Dr wanted to let me know, NO bone cancer found. Thant's one worry gone.
First: thank you all for the kind support I have received since - Much appreciated. To the Nuclear Scan ordered by my GP for suspect spread from bladder cancer to the bones. I got a call from my GP surgery today telling me Dr wanted to let me know, NO bone cancer found. Thant's one worry gone.
Ern007
in
Lung Conditions Community Forum
1 year ago
Shingles vaccine to have or not to have
My rheumie has recommended that I have the shingles jab. and informed the vaccination centre. A lady from there phoned me regarding this and I said I would prefer the non-live vaccine as opposed to the live one. She said that I could not choose as the nurse would decide after seeing me. I was diagnosed
My rheumie has recommended that I have the shingles jab. and informed the vaccination centre. A lady from there phoned me regarding this and I said I would prefer the non-live vaccine as opposed to the live one. She said that I could not choose as the nurse would decide after seeing me. I was diagnosed
PatB1948
in
PMRGCAuk
2 years ago
Have a good Laugh
Spoke to my pharmacists today,asked about
Shingles
vaccine
, she didn't know at 70 we got a
shingles
vaccine
, was saying I needed the Shingrix and it may have to order it,was like speaking to a 4year old BLANK , She said it was a school day every day,she obviously doesn't TV either. Lol
Spoke to my pharmacists today,asked about
Shingles
vaccine
, she didn't know at 70 we got a
shingles
vaccine
, was saying I needed the Shingrix and it may have to order it,was like speaking to a 4year old BLANK , She said it was a school day every day,she obviously doesn't TV either. Lol
Harrywogan
in
PMRGCAuk
2 years ago
A Kinda Update.
As things stand I have finished my BCG treatment which it seems has failed. I visited my GP and she asked how I was - gave me a script for to wet my mouth and some Folic Acid. I mentioned so pain I have in ribs - not very bad but there,. She prodded my ribs and yes there was some (not bad pain).
As things stand I have finished my BCG treatment which it seems has failed. I visited my GP and she asked how I was - gave me a script for to wet my mouth and some Folic Acid. I mentioned so pain I have in ribs - not very bad but there,. She prodded my ribs and yes there was some (not bad pain).
Ern007
in
Lung Conditions Community Forum
1 year ago
Flu season here!
Hello folks, I'm interested to know if long term ME sufferers end up with a totally weird immunity. I'm in my early 70's, developed ME following viral pneumonia in my 30's, then over a decade later discovered I also had Hashimoto's thyroiditis (am on thyroxine).I've managed to dodge Covid even though
Hello folks, I'm interested to know if long term ME sufferers end up with a totally weird immunity. I'm in my early 70's, developed ME following viral pneumonia in my 30's, then over a decade later discovered I also had Hashimoto's thyroiditis (am on thyroxine).I've managed to dodge Covid even though
Kimmie4
in
Myalgic Encephalomyelitis Community
1 year ago
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