BCG - intravesical immunotherapy - Update.

[Ern007]

Got a letter this morning giving me dates for this treatment.

7th December - 14th December and 21st December.

While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter.

For the first time since my diagnosis, i do not know the findings of a biopsy.

The good new is if I am allowed BCG treatment it would suggest, even though my BC is high grade, this time it has been held - This on the face of it, good news.

Rattling in the back of my mind is they said the last BCG treatment would be the last - So why a change oh heart. They are confusing.

I will know I think of my first visit.

If I am now on a BCG Maintenance schedule - That is good news.

[sassy59]

It’s all a bit unsettling though isn’t it Ern? I’m keeping everything crossed for you and hoping for good news……good luck to you.

Hugs….Carole xxx🤗🤗🤗🤗

[Ern007 in reply to sassy59]

Thank you Carole for you kind reply. Normally I am optimistic. but they really have been inconsistent - at least I have a date now, and she said she would tell me then my results. Seems . xxx

[sassy59 in reply to Ern007]

👍🤗😘🤞🏼🤞🏼🤞🏼

[Alberta56]

I hope this means good news. Not surprising you're confused. I wish the medics could explain themselves clearly. xxx

[Ern007 in reply to Alberta56]

Thank you - On the face of it seems good, but remembering, I will wait and see. xx

[Alberta56 in reply to Ern007]

🤞🤞🤞🤞xxx

[Ern007 in reply to Alberta56]

xx

[SharonMcKnight]

After joining for a 3rd time, I can see your posts. Good luck, dear! Maybe a Christmas present in disguise!

[Ern007 in reply to SharonMcKnight]

Hi Sharon - Maybe but I won't, hold my breath.

[Hidden]

I hope this means good news too. All the best.

[Ern007 in reply to Hidden]

Thank you, I live in hope.

[jackdup]

I hope and pray the news will be good or positive but at least not negative.

[Ern007 in reply to jackdup]

Thank you, I will follow up

[HungryHufflepuff]

that is odd, but I hope it goes well for you.

[Ern007 in reply to HungryHufflepuff]

Thank you,It never has seemed to be straight forward and that has been the problems,

[Numptybrain]

you know what medics can be like saying one thing then doing another but like most people are saying let’s hope this is all good news for you, I’m crossing fingers and toes.

Good luck

Wendy x

[Izb1]

Sending you lots of positive vibes Ern and hope all goes well x

[Ern007 in reply to Izb1]

Thank you again for your suppor.t x

[sunshineday]

Hope all goes well Ern and that it's all good news. Keeping everything 🤞 and sending hugs and prayers xx Joy

[Ern007 in reply to sunshineday]

Thank you for you caring post. Joy x

[Nula2]

What a worry! If they'd just explained it clearly to you in the same letter as your dates you'd at least know where you stand! We are all sending positive thoughts for the best case scenario.🤞 Take care Ern ❤️xxx

[Ern007 in reply to Nula2]

Thank you Nula2

[Threecats]

I’m glad you’ve got some dates at least, Ern but can quite understand your concerns in the circumstances. I hope you get some answers when you go for your first treatment. Wishing you the best of luck with it xx

[Ern007 in reply to Threecats]

Since I was diagnosed it's been weird - I had a flexy cystoscopy and I could see a tumour on screen - Then I hade a TURBT a rigid cystoscopy and they removed the tumour - and was told the good new is. you have none muscle invasive bladder cancer. All was fine.

A further cystoscopy and biopsies showed none muscle invasive cancer again, but in situ.

In situ sounds good, but it's not that great CIS is aggressive. I was to be given another 6 weeks BCG - MDT changed that and offered a bladder/Lymph node removal - Eventually one more course of BCG was given/

I have had cancellations and given BCG again then took away.

That is why I am concerned, Threecats, xx Anyway hope to know where I am on the 7th,

[Threecats in reply to Ern007]

Goodness me Ern, having read your history with this I can see why you’re concerned! It all seems very confusing and contradictory, doesn’t it. I do hope they’ll be able to explain what’s going on at your appointment next week and are able to set your mind at rest. I’ll be thinking of you xx

[Ern007 in reply to Threecats]

I am hoping I get to know the full SP on Thursday the 7th. Everything is contradictive as you say - I got a letter of apology over delays, that Threecats was pure comedy had it not been serious.. I was shocked over BCG, I was told cI could not have that again. Thank you Threecats, xx

[Patk1]

I'm glad u have dates Ern. The goalposts move in medicine,all the time.Sometimes a consultant or MDT or evidence based research shows promising results etc,so they run with it.x

[Ern007 in reply to Patk1]

Thank you, my problem was the MDT.

[watergazer]

All the best for a good outcome x

[Ern007 in reply to watergazer]

Thank you - I am hoping watergazer x

[Donald_1931]

Hope things go well for you Ern. 👍

[Ern007 in reply to Donald_1931]

Thank you Donald.