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Experiences with
Severe acute respiratory syndrome (SARS)
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Discoid lupus help please!
Hello, I've posted before whilst waiting for dermatology appointment this June for suspected discoid lupus. My initial "thing" was a small scaley patch on my eyebrow, which isn't typical looking of discoid lupus and only came up following biopsy. Well now I have a rather bigger "thing" come up on my
Hello, I've posted before whilst waiting for dermatology appointment this June for suspected discoid lupus. My initial "thing" was a small scaley patch on my eyebrow, which isn't typical looking of discoid lupus and only came up following biopsy. Well now I have a rather bigger "thing" come up on my
Nome11
in
LUPUS UK
3 months ago
Endo pregnancy c section or vaginal birth ?
hi ladies any one with severe endo and adenymosis? Wondering if you went for a vaginal birth or c section . Iv had 2 major surgery one keyhole and the other laparotomy so my abdominal area is full of scaring and also had a bowel resection . I dreading birth naturally as I have lots of medical trauma
hi ladies any one with severe endo and adenymosis? Wondering if you went for a vaginal birth or c section . Iv had 2 major surgery one keyhole and the other laparotomy so my abdominal area is full of scaring and also had a bowel resection . I dreading birth naturally as I have lots of medical trauma
Jade2006
in
Pregnancy and Parenting Support
3 months ago
Hemosiderin staining?
Hi, Has anyone else experienced this? I’ve woken up today with rust like staining, mainly on my left hand with a little on my right. No logical cause from anything I’ve touched. Googling seems to suggest it is hemosiderin staining, though they are mainly US sites. This could make sense as I still
Hi, Has anyone else experienced this? I’ve woken up today with rust like staining, mainly on my left hand with a little on my right. No logical cause from anything I’ve touched. Googling seems to suggest it is hemosiderin staining, though they are mainly US sites. This could make sense as I still
Allotmental
in
Vasculitis UK
4 months ago
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can pleural effusion alone come back?
when I was first diagnosed with HGS OC in December 2021, it had spread till the lungs. There were 2 small nodules in the lungs along with pleural effusion in the right lung, which was also tested to be malignant. Have been NED since first line ended in June 22, and been on olaparib since. Day before
when I was first diagnosed with HGS OC in December 2021, it had spread till the lungs. There were 2 small nodules in the lungs along with pleural effusion in the right lung, which was also tested to be malignant. Have been NED since first line ended in June 22, and been on olaparib since. Day before
Goodgirl98
in
My Ovacome
4 months ago
Littlejoy
I had pelvic prolapse, cystocele and rectocele. Had pelvic prolapse repair 1 year ago, they took out uterus and tightened vagina to hold bladder & bowel. When I came too after op, they said I had a cyst one my left ovary so would need another op yo remove this. I have been in pain since op, it depends
I had pelvic prolapse, cystocele and rectocele. Had pelvic prolapse repair 1 year ago, they took out uterus and tightened vagina to hold bladder & bowel. When I came too after op, they said I had a cyst one my left ovary so would need another op yo remove this. I have been in pain since op, it depends
Operation
in
Pelvic Pain Support Network
4 months ago
Just a touch away: CT-optimal touch perception and its influence on pain and itch
Psychologist Larissa Meijer has discovered that gentle caresses from a partner can provide relief from chronic pain. This treatment has no side effects and can be done at home. It should normally be free too 🙂 Meijer has demonstrated the effect of light stroking on pain and itchiness in Parkinson's
Psychologist Larissa Meijer has discovered that gentle caresses from a partner can provide relief from chronic pain. This treatment has no side effects and can be done at home. It should normally be free too 🙂 Meijer has demonstrated the effect of light stroking on pain and itchiness in Parkinson's
Esperanto
in
Cure Parkinson's
4 months ago
Breastfeeding, skin on skin and contractions (c-section)
Hey everyone, I gave birth about 10 days ago (emergency c section at 29+3 due to HELLP/Pre eclampsia/slowinf fetus heart) and I now have 2 kids in NICU. They encourage us to do skin on skin and after I started doing that, I have been having severe contractions even when I am very far from them; i am
Hey everyone, I gave birth about 10 days ago (emergency c section at 29+3 due to HELLP/Pre eclampsia/slowinf fetus heart) and I now have 2 kids in NICU. They encourage us to do skin on skin and after I started doing that, I have been having severe contractions even when I am very far from them; i am
Tryinglate
in
Pregnancy and Parenting Support
4 months ago
Tofacitinib
Hi, I’ve posted on here a few times about large areas of calcinosis ( I have diffuse systemic sclerosis) but as it’s a rare side of dSSc I have had very little response regarding others having this . My consultant did say mine (large deposits ) was very bad and hadn’t seen it as bad before which is
Hi, I’ve posted on here a few times about large areas of calcinosis ( I have diffuse systemic sclerosis) but as it’s a rare side of dSSc I have had very little response regarding others having this . My consultant did say mine (large deposits ) was very bad and hadn’t seen it as bad before which is
Eden1234
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
Salivary gland swelling.
Hi, I didn't really know where to post this problem but as I have UAT I thought I might get some help from you lovely lot here.Five weeks ago I had a felt poorly with a virus for a few days but soon realised I had a large swelling under my left ear. Went to the doc who said it was parotitis, inflammation
Hi, I didn't really know where to post this problem but as I have UAT I thought I might get some help from you lovely lot here.Five weeks ago I had a felt poorly with a virus for a few days but soon realised I had a large swelling under my left ear. Went to the doc who said it was parotitis, inflammation
lizzie1
in
Thyroid UK
4 months ago
Another cause of declining bone health
Have just come across this article: https://link.springer.com/article/10.1007/s11914-023-00843-1 which links
SARS
-CoV-2 infection to increased osteoclast activity and consequently increased risk of osteoporosis.
Have just come across this article: https://link.springer.com/article/10.1007/s11914-023-00843-1 which links
SARS
-CoV-2 infection to increased osteoclast activity and consequently increased risk of osteoporosis.
HeronNS
in
Bone Health and Osteoporosis UK
7 months ago
Question about “other arrhythmia”.
my Kardia is giving all sorts of new readings since my flair up, ectopy, wide qrs, pvc, pac basically everything BUT NOT SO MUCH AF. do you have other arrhythmia? if so how does it affect you? for me it’s just as uncomfortable as the regular af
my Kardia is giving all sorts of new readings since my flair up, ectopy, wide qrs, pvc, pac basically everything BUT NOT SO MUCH AF. do you have other arrhythmia? if so how does it affect you? for me it’s just as uncomfortable as the regular af
Japaholic
in
Atrial Fibrillation Support
5 months ago
Prescription drug induced Fibrosis
Hi. Wondering if anyone on here has had the above diagnosis. The drug involved was Nitrofuratan. The Consultant has told me the scarring will not heal.
Hi. Wondering if anyone on here has had the above diagnosis. The drug involved was Nitrofuratan. The Consultant has told me the scarring will not heal.
Suekee2
in
British Liver Trust
5 months ago
Conundrum Gastrin
Hi everyone, does anyone have advice when trying to increase weight when diagnosed with Intestinal Metaplasia and Hyperplasia. I have been doing some research regarding the damage that Gastrin can do when it doesn't switch off (NET's tumours) because of low stomach acid and as the Gastrin is activated
Hi everyone, does anyone have advice when trying to increase weight when diagnosed with Intestinal Metaplasia and Hyperplasia. I have been doing some research regarding the damage that Gastrin can do when it doesn't switch off (NET's tumours) because of low stomach acid and as the Gastrin is activated
Helliborous
in
Pernicious Anaemia Society
5 months ago
post-op incisions
Hi everyone, I had surgery (ovarian cystectomy & excision of endometriosis) on 18/02/24 One of my wounds seems to be open. I feel ‘fobbed off’ by doctors who state it will close on its own. Did anyone else’s incisions look like this? Did they heal okay? Also, my belly button scab has now fallen
Hi everyone, I had surgery (ovarian cystectomy & excision of endometriosis) on 18/02/24 One of my wounds seems to be open. I feel ‘fobbed off’ by doctors who state it will close on its own. Did anyone else’s incisions look like this? Did they heal okay? Also, my belly button scab has now fallen
sxnam
in
Endometriosis UK
5 months ago
A trial examining the effects of pausing BTKis to coincide with SARS-CoV-2 vaccination and its impact on immune responses in CLL patients
The primary outcome is anti-spike-receptor binding domain (RBD) antibody level at 3 weeks post-
SARS
-CoV-2 booster vaccination.
The primary outcome is anti-spike-receptor binding domain (RBD) antibody level at 3 weeks post-
SARS
-CoV-2 booster vaccination.
gardening-girl
in
CLL Support
11 months ago
Bowel preparation before surgery
Hi everyone! 💛 Just been on pre op assessment and nurse said I don’t need to do bowel preparation at home. I will have hysterectomy with bowel resection and Endo excision. Has anyone had bowel preparation at hospital just before the operation? I am quite concerned what is going on 🤷♀️
Hi everyone! 💛 Just been on pre op assessment and nurse said I don’t need to do bowel preparation at home. I will have hysterectomy with bowel resection and Endo excision. Has anyone had bowel preparation at hospital just before the operation? I am quite concerned what is going on 🤷♀️
Endolemon
in
Endometriosis UK
6 months ago
Has the Pulsed Field Ablation technique increased success rate?
Although Flecainide 50mg bid has kept AF episodes to a much lower frequency, 6 in ‘23, I’d like to hear from a few more of you who have undergone this new procedure. What are the results; is the blanking period shorter; anyone had it done at Royal Bournemouth Hospital? I hear reports that it’s much
Although Flecainide 50mg bid has kept AF episodes to a much lower frequency, 6 in ‘23, I’d like to hear from a few more of you who have undergone this new procedure. What are the results; is the blanking period shorter; anyone had it done at Royal Bournemouth Hospital? I hear reports that it’s much
Racquet
in
Atrial Fibrillation Support
6 months ago
Hepatic Peliosis (What is it?)
RE: Hepatic Peliosis (What is it?) Hi all, I have been diagnosed with Hepatic Peliosis of the liver. What is it? and is there any treatments please? Does anyone else have Hepatic Peliosis ? How are your dealing with this etc? Any information would be helpful. Thank you. Regards, Kevin Walker
RE: Hepatic Peliosis (What is it?) Hi all, I have been diagnosed with Hepatic Peliosis of the liver. What is it? and is there any treatments please? Does anyone else have Hepatic Peliosis ? How are your dealing with this etc? Any information would be helpful. Thank you. Regards, Kevin Walker
kevpwalker
in
British Liver Trust
6 months ago
L Glutamine
Hi everyone, could anyone advice me on L Glutamine, I have Intestinal Metaplasia and I don't know if I should take it. I have read it supports the stomach lining but I am concerned that this would only help a 'normal stomach' and I may do more harm than good. Thanks
Hi everyone, could anyone advice me on L Glutamine, I have Intestinal Metaplasia and I don't know if I should take it. I have read it supports the stomach lining but I am concerned that this would only help a 'normal stomach' and I may do more harm than good. Thanks
Helliborous
in
Pernicious Anaemia Society
6 months ago
Emergency use authorization of a new pre-exposure prophylaxis (PrEP) for COVID-19, PEMGARDA™ (VYD222)
It’s a one-hour infusion and lasts 3 months and based on titers should be effective against the present VOC of
SARS
-CoV2. And it was studied in the immunocompromised! It does have a 0.6% risk of anaphylaxis so discuss with your healthcare team but this is great news overall for CLL patients.
It’s a one-hour infusion and lasts 3 months and based on titers should be effective against the present VOC of
SARS
-CoV2. And it was studied in the immunocompromised! It does have a 0.6% risk of anaphylaxis so discuss with your healthcare team but this is great news overall for CLL patients.
bkoffman
CLL CURE Hero
in
CLL Support
5 months ago
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