Experiences with

Sarcoidosis

My Dermatologist referred me to someone else whose field is Tattoo Sarcoidosis he prescribed 2 different creams & (very) thankfuly it cleared up. I have been told that with Sarcoidosis you cannot have 'fillers', ( I would be very interested if anyone has) nor or any tattooing (no chance !!!!)

The results showed I had Sarcoidosis and because the lung lesions were discovered first it was named Pulmonary Sarcoidosis. The PET Scan also showed I have a Meningioma in the right side of my brain.

I was misdiagnosed as having Bipolar 1 (please accept I have peer reviewed research-based proof) and found studies that confirmed this medical condition is often confused/conflated with the oyschiatric disorders of Bipolar 1, hypomania, etc Does anyone have citations of research studies, peer reviewed

Hi I have Lupus and a few other auto diseases , just a quick question is Sarcoidosis any relation and do any of you have it , 💕

I have been on Amgevita to settle my Uveitis but it is not working now so I am going to start Inflaximab infusion instead . Has anyone else had success with this biological to settle their Iritis.

She was diagnosed with sarcoidosis. However after becoming very unwell last month and a extended stay in hospital she has tested positive for something called Whipple's disease. Sarcoidosis seems very unlikely now.

Hello, two questions for you. One, has anyone has a retinal macroaneurysm? I was very recently diagnosed during a routine examination and wondered if it was common among PMR patients? I have had uveitis in the past. Two, I have tapered from 40 mg to 1 mg over the past 5 years for PMR. I am wondering

I’m on levothyroxine and also on bp pills. Rampril and amlodipine I sometimes get very loud hiccups can that be related to my pills?

My husband had his transplant in 2017. He has been ill for some time and had a PET scan 10 days ago. He has been diagnosed with Lymphoproliferative disorder. Does anyone know anything about this?

Just wondering if anyone has Pulmonary Hypertension caused by sarcoidosis of the lungs? I was diagnosed with sarcoid around 15 years ago, when it was found by accident on a chest xray [scarring very obvious - does the scarring mean fibrosis?].

Seems like it might be Sarcoidosis, as I also have very dry irritated eyes. I see my Hematologist again in about a week. I am so hoping that this will pass, as others have said that side effects from Peg decrease over time. Just don't know if I can keep taking it if this gets any worse.

Hi there, I haven't posted for a while as I successfully came off the prednisolone in January this year (well, I thought successfully).Since then (on March 26th 2024) I had a cardiac catheter ablation for paroxysmal AF, so far so good although recovery has been a bit of a bumpy ride. I am experiencing

hi I have had rheumatoid arthritis for five years and scleritis for 1.5 years. I recently started imraldi(bio similar to humira), in feb 2024, after building antibodies to cimzia. since then I have noted small improvements in my joints but my eyes continue to be in a constant flare. Any suggestions

I saw a different Rheumatologist in the clinic recently. He appeared satisfied that I was on long term 5.5 Prednisolone (I had previously run into trouble at 5mg) but his follow up letter indicated a plan to offer me Mycophenolate Mofetil as a DMARD to get me off steroids. Has anyone had experience of

Seeking advice on Vitamin B6 in B Complexes. Background: Diagnosed hypothyroid since the late 1990's; switched to T3 liothyronine only since about 2014 because levothyroxine didn't help me . Diagnosed with Parkinson's (finally!) in early 2023. Currently under the care of a movement disorders specialist

I had Sarcoidosis in between. Busy busy body meh I'm 56 years old and now I'm stuck lol Help !!!!!!!??????🤗

I don't actually have COPD [although I am yet to go through a myriad of tests, so it might be likely], as I have scarring on my lungs because of sarcoidosis. I was just wondering if anyone on this forum also has Pulmonary Hypertension?

Just to update. Received blood result and all within rang with the exception of Lymphocyte count which 3.1 only slightly over range. CPR 4 g/L, ESR 2. Which rules out PMR flare. So onwards and upwards, definitely downwards with Pred.-so pleased. I am now wondering whether the muscle paralysis I had

I also have a potentially deadly condition called Sarcoidosis. Sarcoidosis is an autoimmune related disease that leads to inflammation, usually in the lungs, skin, or lymph nodes. Stress just makes it worse and can trigger a flare-up. I feel devastated that my Life Coach has dumped me.

I have my PMSA PET scan results but my follow-up is not until next week: Can I get your impression first (FYI, previouisly diagnosed with nodular sarcoidosis for lung nodules that are benign:) IS THIS THE GOOD NEWS I THINK IT IS?