PF and Xenjalz

[Minsha]

Hello and happy Xmas/holidays all!

Following 10 years of Sarcoidosis, I have now also been diagnosed with pulmonary fibrosis.

I was having infliximab infusions but for some reason this has exacerbated my condition and doctors have now decided to try me in Xeljanz.

does anyone have any experience of this?

[Alberta56]

Sorry I can't help with your query; can only wish you well. The European Lung Foundation have started to do more research into PF, so it might be worth looking at their site. Hopefully it will be easier for everyone to find out more about PF in the future. best wishes for the holidays.

[Minsha in reply to Alberta56]

thank you Alberta56 for replying ! I got excited to get a reply.

I came on here 8 years ago when I first got diagnosed and then selfishly left whilst I was getting on with my life … feel I need to apologise in a big way to everyone!

Thanks for the info and hope you have and great xmas. Hope that this season is kind to everyone !

[Alberta56 in reply to Minsha]

No need to apologise. Good that you had a life to get on with. Have a good Christmas.xxx

[Dottie11]

Sorry I have no experience of this. Wishing you a good Christmas. x