Whipple's disease?: Hi, I was diagnosed... - Crohn's and Colit...

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Whipple's disease?

UmaDaisy profile image
3 Replies

Hi, I was diagnosed with Crohn's 2 years ago now and have been on biological medicine since then. Although it has helped I'm still suffering from digestive and joint pain.

My wife also became unwell around same time. She was diagnosed with sarcoidosis. However after becoming very unwell last month and a extended stay in hospital she has tested positive for something called Whipple's disease. Sarcoidosis seems very unlikely now.

We had never heard of it and our 2 local hospitals have never seen a case it's that rare!

Her consultant has advised considering my condition that I also get tested. I have read there has been a couple of cases of Crohn's being mistaken for Whipple's as they present many of the same symptoms.

I know it's a long shot but has anyone else had or got Whipple's?

Thanks.

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UmaDaisy
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edwangy profile image
edwangy

Check it out on google

SuzyQ67 profile image
SuzyQ67

Whipple disease is caused by a certain bacteria found in dirt & is treated with antibiotics. Please note it can come back. I don't know where you live, I urge you to go online & look up The Cleveland Clinic & read about this. I would take this information to your wife's drs ASAP.

UmaDaisy profile image
UmaDaisy in reply toSuzyQ67

Thanks Suzy. Have met with my gastro consultant today and he will be doing a endoscopy and biopsy next week to test.

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