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Rheumatoid Vasculitis
He is currently on prednisolone, sulfasalazine, gabapentin, hydroxychloroquine and
rituximab
infusions (quarterly). He was on methotrexate but it did not agree with him. He is constantly tired, has headaches, tummy and joint aches.
He is currently on prednisolone, sulfasalazine, gabapentin, hydroxychloroquine and
rituximab
infusions (quarterly). He was on methotrexate but it did not agree with him. He is constantly tired, has headaches, tummy and joint aches.
PhoebeO
in
Vasculitis UK
8 years ago
Low phosphate levels
just completed round 1 of FCR ,and so far so good!! The only worry is low phosphate levels? Anyone else had this and any problems associated with this , as far as I understand it could be kidney related?
just completed round 1 of FCR ,and so far so good!! The only worry is low phosphate levels? Anyone else had this and any problems associated with this , as far as I understand it could be kidney related?
Megellen
in
CLL Support
8 years ago
Carry on CLLERS go dating...With Bethan and Nic!
Hi everyone! This site has been an amazing resource for us this year; a place of expert information; a comforting hug when worried ; an agony aunt off load page as well as a chance to meet new friends! @Bellabee and I have had a little sisterhood on line relationship going on where we have kept
Hi everyone! This site has been an amazing resource for us this year; a place of expert information; a comforting hug when worried ; an agony aunt off load page as well as a chance to meet new friends! @Bellabee and I have had a little sisterhood on line relationship going on where we have kept
Bethan49
in
CLL Support
8 years ago
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I rang that bell loud and clear ... Then breathed. FCR over!
A week ago today I dressed up in my lovely blue dress and new polka dress shoes and went for my final day trip to the Phoenix Unit Sunderland for a bit of Fcr. The chair was comfortable and the nurse warm and reassuring...I was on an unatural high! Very excitable ! I told everyone it was my last
A week ago today I dressed up in my lovely blue dress and new polka dress shoes and went for my final day trip to the Phoenix Unit Sunderland for a bit of Fcr. The chair was comfortable and the nurse warm and reassuring...I was on an unatural high! Very excitable ! I told everyone it was my last
Bethan49
in
CLL Support
8 years ago
Painful scalp during chemo
I have now had 4 cycles of FCR and although my hair is thinning a lot (fortunately I had very thick hair to start with) , I haven't actually lost it. However, I have very painful patches on my scalp & wondered if anyone has any remedies for this.
I have now had 4 cycles of FCR and although my hair is thinning a lot (fortunately I had very thick hair to start with) , I haven't actually lost it. However, I have very painful patches on my scalp & wondered if anyone has any remedies for this.
Grannajan
in
CLL Support
8 years ago
"Reasonable" time off work
Hi guys its been a while since i popped in so i thought i would just say hi to everyone & because its now December - Merry Christmas! I had FCR a while back and other than normal fatigue i have a pretty healthy life and good remission. I work full time and my job is quite demanding as im in management
Hi guys its been a while since i popped in so i thought i would just say hi to everyone & because its now December - Merry Christmas! I had FCR a while back and other than normal fatigue i have a pretty healthy life and good remission. I work full time and my job is quite demanding as im in management
grizzlebear
in
CLL Support
8 years ago
2 mths ago told I had stage 4CLL from Canada
Then start in nov immunotherapy
rituximab
intravenous. Dr is great and he is giving low doses and slowly introducing all treatments as we do not want kidney issues and all those other issues from so many of those darn leukemia cells dying etc.
Then start in nov immunotherapy
rituximab
intravenous. Dr is great and he is giving low doses and slowly introducing all treatments as we do not want kidney issues and all those other issues from so many of those darn leukemia cells dying etc.
234me
in
CLL Support
8 years ago
Has anyone else had....
Hi all, My sister has churg Strauss and on 4monthly infusions of
rituximab
. who has just been diagnosed with bilateral enlarged ovarian veins or pelvic venous congestive? Apparently this is another rare condition. Has anyone else experienced or had this?
Hi all, My sister has churg Strauss and on 4monthly infusions of
rituximab
. who has just been diagnosed with bilateral enlarged ovarian veins or pelvic venous congestive? Apparently this is another rare condition. Has anyone else experienced or had this?
Cloe
in
Vasculitis UK
8 years ago
Disappointing day...
As you may know, my husband went through 6 treatments FCR ending December 2015 after 4 1/2 years W&W. Came through it like a champ, had BMB late August this year. Got the news that the results couldn't look better from his CLL specialist and then about 6 weeks ago felt a lump in his neck again after
As you may know, my husband went through 6 treatments FCR ending December 2015 after 4 1/2 years W&W. Came through it like a champ, had BMB late August this year. Got the news that the results couldn't look better from his CLL specialist and then about 6 weeks ago felt a lump in his neck again after
jules_c
in
CLL Support
8 years ago
Can rituximab stop working?
Has anyone experienced the
rituximab
becoming less effective over time? Thank you
Has anyone experienced the
rituximab
becoming less effective over time? Thank you
joannebond360
in
LUPUS UK
8 years ago
As if Wegener's wasn't enough
Sept 16th. 2nd infusion
Rituximab
. 4th cycle. As usual followed by cough... antibiotics... cough cleared. Oct 9th. Cough again... one huge cough pulled/tore muscle in back. Pain went off the register but short lived. Pain only happens when I cough.
Sept 16th. 2nd infusion
Rituximab
. 4th cycle. As usual followed by cough... antibiotics... cough cleared. Oct 9th. Cough again... one huge cough pulled/tore muscle in back. Pain went off the register but short lived. Pain only happens when I cough.
lfu2
in
Vasculitis UK
8 years ago
Off Ibrutinib for nearly 4 months and still OK
(After 6 months of
Rituximab
and 8 months on Ib which was stopped due to painful side effects) My last check up about 3 weeks ago; my blood results remained normal. Doctors very pleased. Me too.
(After 6 months of
Rituximab
and 8 months on Ib which was stopped due to painful side effects) My last check up about 3 weeks ago; my blood results remained normal. Doctors very pleased. Me too.
romarin
in
CLL Support
8 years ago
Rituximab
Tomorrow is my 4th infusion or
rituximab
,when would I expect to come of pred. I am 75yrs old and in Paisley the medical people don't seem to like old codgers to be on pred. too long.Still the best site for information for pmr. problems. Thank you, John.
Tomorrow is my 4th infusion or
rituximab
,when would I expect to come of pred. I am 75yrs old and in Paisley the medical people don't seem to like old codgers to be on pred. too long.Still the best site for information for pmr. problems. Thank you, John.
paisleyman74
in
PMRGCAuk
8 years ago
Methylprednislone with rituximab infusion
My nephrology consultant says
rituximab
can be given without steroids, anyone had it without steroids?? Thanks xxx #psychosis #
rituximab
My nephrology consultant says
rituximab
can be given without steroids, anyone had it without steroids?? Thanks xxx #psychosis #
rituximab
Rach459
in
LUPUS UK
8 years ago
Just had staging scan after cycle 3 of FCR
I was a little disappointed to be told yesterday, following a staging scan, that I would benefit from having the planned 6 FCR cycles event though my enlarged lymph nodes are more than 60% gone after 3 cycles. However, I do understand that this will hopefully put me into a longer remission. My husband
I was a little disappointed to be told yesterday, following a staging scan, that I would benefit from having the planned 6 FCR cycles event though my enlarged lymph nodes are more than 60% gone after 3 cycles. However, I do understand that this will hopefully put me into a longer remission. My husband
Grannajan
in
CLL Support
8 years ago
Follicular Lymphoma Patient Survey
Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: Obinituzumab in combination with chemotherapy, followed by obinutuzumab maintenance, for the treatment of patients with follicular lymphoma who relapsed after, or are refractory to, a
rituximab
containing
Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: Obinituzumab in combination with chemotherapy, followed by obinutuzumab maintenance, for the treatment of patients with follicular lymphoma who relapsed after, or are refractory to, a
rituximab
containing
LCAdmin
in
Non Hodgkin's Lymphoma Friends
8 years ago
Follicular Lymphoma Patient Survey
Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: Obinituzumab in combination with chemotherapy, followed by obinutuzumab maintenance, for the treatment of patients with follicular lymphoma who relapsed after, or are refractory to, a
rituximab
containing
Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: Obinituzumab in combination with chemotherapy, followed by obinutuzumab maintenance, for the treatment of patients with follicular lymphoma who relapsed after, or are refractory to, a
rituximab
containing
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
8 years ago
The end is in sight but I'm a blubbering wreck!
Hi guys! I am now a week away from round 6 FCR. It's been a journey and I have a great sense of wanting to be home now and in my own life again. However I keep breaking down and crying for no reason ... I think it's the relief that it's nearly done... That I've done it.. I've weathered the storm .
Hi guys! I am now a week away from round 6 FCR. It's been a journey and I have a great sense of wanting to be home now and in my own life again. However I keep breaking down and crying for no reason ... I think it's the relief that it's nearly done... That I've done it.. I've weathered the storm .
Bethan49
in
CLL Support
8 years ago
FCR and nausea
Hello fellow CLLERS, I have just finished round 2 of FCR. First round I had horrendous nausea so bad I couldn't sleep for days. This round they gave me Emend but the unfortunate side effect was severe constipation. I ended up extremely distressed and having to have two enemas and I was still nauseous
Hello fellow CLLERS, I have just finished round 2 of FCR. First round I had horrendous nausea so bad I couldn't sleep for days. This round they gave me Emend but the unfortunate side effect was severe constipation. I ended up extremely distressed and having to have two enemas and I was still nauseous
Kenn123
in
CLL Support
8 years ago
Hi everyone I'm new here I need your help
had never been in hospital or ill before this happened January 2014 I was back in hospital (3 weeks this time) with Profound Leukopenia caused by the Cyclophosphamide then started on Azathioprine and Prednisone which controlled the Wegners May 2016 I had a relapse, I was treated with 2 doses of
Rituximab
had never been in hospital or ill before this happened January 2014 I was back in hospital (3 weeks this time) with Profound Leukopenia caused by the Cyclophosphamide then started on Azathioprine and Prednisone which controlled the Wegners May 2016 I had a relapse, I was treated with 2 doses of
Rituximab
102637
in
Vasculitis UK
8 years ago
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