Has anyone else had....

[Cloe]

Hi all,

My sister has churg Strauss and on 4monthly infusions of rituximab.

who has just been diagnosed with bilateral enlarged ovarian veins or pelvic venous congestive? Apparently this is another rare condition.

Has anyone else experienced or had this?

Just like to put it out there to question if there is any possible links to Vasculitus.

Thanks

Chloe

[Suzym2u Moderator Vasculitis UK]

Where is your sister being seen Chloe? It us not something we have heard of before?

[Cloe in reply to Suzym2u]

Hi Susan,

She is under addenbrookes for her churg Strauss. I think it is a separate health condition, but just like to put it out there and see if anyone else has had it because of how various Vasculitus can be.

In leymans terms it varicose veins in the tube that takes urine from the kidneys to the bladder.

She's under her local hospital Basildon for this issue, but unfortunately it's yet another rare condition so no-one really knows about it.

Their vascular doctor is off sick so we're awaiting his return to find out what he suggests.

Thank you

Chloe