Search
Search
About
Log in
Join
Experiences with
Rituximab
Posts
Communities
2,586 public posts
Filter results
Aciclovir
Hi all During my FCR treatment I've had itching in my scalp, neck, back and chest. It did subside a lot over the last few weeks but now this week it's come back with a vengeance! I had a new prescription last Tuesday for Aciclovir and it wasn't until today I noticed I had 200mgs instead of the usual
Hi all During my FCR treatment I've had itching in my scalp, neck, back and chest. It did subside a lot over the last few weeks but now this week it's come back with a vengeance! I had a new prescription last Tuesday for Aciclovir and it wasn't until today I noticed I had 200mgs instead of the usual
sallyplest
in
CLL Support
7 years ago
UPDATE ON: Help! 31yr old newly diagnosed CLL.
UPDATE: hi everyone.... Just wanted to post an update on my brother and say thank you to everyone for all the info.... Really helped us have intelligent and productive conversations with our new doctor at Yale today. We saw the new doc. He was amazing. We spent 2+hrs explaining everything anyone ever
UPDATE: hi everyone.... Just wanted to post an update on my brother and say thank you to everyone for all the info.... Really helped us have intelligent and productive conversations with our new doctor at Yale today. We saw the new doc. He was amazing. We spent 2+hrs explaining everything anyone ever
Jade263
in
CLL Support
7 years ago
Starting Rituximab in the morning
Tomorrow I commence with
rituximab
. I have written a blog but don't know if I am allowed to post it - if it's not permitted, please can admin delete the url.
Tomorrow I commence with
rituximab
. I have written a blog but don't know if I am allowed to post it - if it's not permitted, please can admin delete the url.
Dragonfly4
in
LUPUS UK
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Insomnia
Not sure if it is
Rituximab
or something else.
Not sure if it is
Rituximab
or something else.
KayEP
in
NRAS
7 years ago
Rituximab side effects
Hi all, I have been on
rituximab
nearly a year and it has given me my life back to some extent, but since I have started it I have had rosacea on my face, scalp, back and part of my legs.
Hi all, I have been on
rituximab
nearly a year and it has given me my life back to some extent, but since I have started it I have had rosacea on my face, scalp, back and part of my legs.
Sunny99
in
NRAS
7 years ago
FCR 18 months later
I finished up 4 rounds of FCR in March of 2015. I realize it is not always suggested for unmutated patients, but I had it anyway. I am Zap 70, trisomy 12, CD 38 positive. Except for infection issues, for which I receive IVIG, I am doing great. I am wondering if anyone else who is unmutated received
I finished up 4 rounds of FCR in March of 2015. I realize it is not always suggested for unmutated patients, but I had it anyway. I am Zap 70, trisomy 12, CD 38 positive. Except for infection issues, for which I receive IVIG, I am doing great. I am wondering if anyone else who is unmutated received
beanlake14
in
CLL Support
7 years ago
FCR DIET?
I'm at end of first week/4th cycle. Don't eat meat but do eat dairy (butter/cheese). Hearing on here about FCR diet. What is that please? Get well everybody!
I'm at end of first week/4th cycle. Don't eat meat but do eat dairy (butter/cheese). Hearing on here about FCR diet. What is that please? Get well everybody!
bendintheroad1
in
CLL Support
7 years ago
In the arms of an angel
Three days ago my beloved father passed away peacefully in his sleep. He is now in a better place, resting, free of pain. I want to thank all of you for your precious help, especially Chis and Neil, and wish all the best with your treatments. Here is the CLL journey of my father: October 2015- Dx with
Three days ago my beloved father passed away peacefully in his sleep. He is now in a better place, resting, free of pain. I want to thank all of you for your precious help, especially Chis and Neil, and wish all the best with your treatments. Here is the CLL journey of my father: October 2015- Dx with
NickiePaG
in
CLL Support
7 years ago
What next
OH has now had 4 cycles of FCR, and last blood test show almost complete (but not quite total) success. Haematologist is now saying stop, as treatment is more toxic than residual problem. Question - any ideas how long a remission is likely to last? Also how long before he is going to be firing on
OH has now had 4 cycles of FCR, and last blood test show almost complete (but not quite total) success. Haematologist is now saying stop, as treatment is more toxic than residual problem. Question - any ideas how long a remission is likely to last? Also how long before he is going to be firing on
Hidden
in
CLL Support
7 years ago
FlAIR trial screening advised for me follow up to previous posts.
Hi everyone after several consultations with my centre of care and a second opinion I am going for FLAIR screening permitting. Treatment needed now was difficult for me to accept as I have no symptoms and feel great. My genetic tests so far are good 17p non deleted still waiting for IgVH.So first line
Hi everyone after several consultations with my centre of care and a second opinion I am going for FLAIR screening permitting. Treatment needed now was difficult for me to accept as I have no symptoms and feel great. My genetic tests so far are good 17p non deleted still waiting for IgVH.So first line
annmcgowan
in
CLL Support
7 years ago
UPDATE-Just finished a 5 week round of Chemo
I went thru a 5 week round of
rituximab
. Doctors weren't sure if it was going to work because my levels started where never stable. My count is at 199 right now. This is considered "normal" but between the lupus and anxiety im sure its dropping as we speak.
I went thru a 5 week round of
rituximab
. Doctors weren't sure if it was going to work because my levels started where never stable. My count is at 199 right now. This is considered "normal" but between the lupus and anxiety im sure its dropping as we speak.
JBUGGIE210
in
ITP Support Association
7 years ago
Starting FCR for CLL
Has anyone done an FCR treatment and if so how were the side effects? Any warnings about FCR that should steer away from going through with treatment?
Has anyone done an FCR treatment and if so how were the side effects? Any warnings about FCR that should steer away from going through with treatment?
Fbarcia
in
CLL Support
7 years ago
CLL with p53,17 deletion
Hello, my husband has CLL with a p53 and 17 deletion. He has a failed FCR. Our Doctor has ordered Ibrutinib for him to begin 2 tabs daily this week. Does insurance and Medicare recognize this as chemo? Is it covered? If you've taken Ibrutinib, we would appreciate hearing from you. Sincerely, farrpottery
Hello, my husband has CLL with a p53 and 17 deletion. He has a failed FCR. Our Doctor has ordered Ibrutinib for him to begin 2 tabs daily this week. Does insurance and Medicare recognize this as chemo? Is it covered? If you've taken Ibrutinib, we would appreciate hearing from you. Sincerely, farrpottery
Farrpottery
in
CLL Support
7 years ago
Rituximab
Hi Has anyone had full dose
rituximab
for their itp. (I have had the itp dose with no success so consultant wants to give full dose) if anyone has had full dose
rituximab
how did they get on and was there any side effects and did it work
Hi Has anyone had full dose
rituximab
for their itp. (I have had the itp dose with no success so consultant wants to give full dose) if anyone has had full dose
rituximab
how did they get on and was there any side effects and did it work
Kazpig1
in
ITP Support Association
7 years ago
rheumatoid arthritis
I have had
rituximab
infusions for a number of years and all worked very well. the last 2 infusions have not worked at all.
I have had
rituximab
infusions for a number of years and all worked very well. the last 2 infusions have not worked at all.
willi-ams
in
NRAS
7 years ago
Latest update....
Wow where do I start, so much seems to have happened in the last couple of weeks. Whilst hubby was having transfusions his HB markers were climbing....100 two weeks ago....went back for blood tests on Wednesday.....HB dropped to 96 (no transfusion for 2 weeks) and Platelets have climbed from 76 to 276
Wow where do I start, so much seems to have happened in the last couple of weeks. Whilst hubby was having transfusions his HB markers were climbing....100 two weeks ago....went back for blood tests on Wednesday.....HB dropped to 96 (no transfusion for 2 weeks) and Platelets have climbed from 76 to 276
Susiecarer
in
CLL Support
7 years ago
Rituximab - feed back please
Hi there My rheumy is thinking about me trying
rituximab
. Have any of you been on this and how did you get on. Any side effects? Did you feel it helped? Did it reduce fatigue and pain? Currently on steroids but would love to be off these. Any feedback would be very helpful.
Hi there My rheumy is thinking about me trying
rituximab
. Have any of you been on this and how did you get on. Any side effects? Did you feel it helped? Did it reduce fatigue and pain? Currently on steroids but would love to be off these. Any feedback would be very helpful.
hildebeast
in
LUPUS UK
7 years ago
Extreme fatigue
I went for a blood test yesterday, am waiting results I'm on leflunomide and
rituximab
infusions ( due next month ) Anybody else had this ? I also think I have plantar fasciitis...another thing to add to the list grrrrrr Any advice pls ?
I went for a blood test yesterday, am waiting results I'm on leflunomide and
rituximab
infusions ( due next month ) Anybody else had this ? I also think I have plantar fasciitis...another thing to add to the list grrrrrr Any advice pls ?
Fifi2
in
NRAS
7 years ago
Life or death... Or IVIG.
Thanks to you lovely people and great support group advice, I have my first IVIG INFUSION in two days in Portland, Oregon. I had FCR six years ago.... Cll/SLL Stage 4, Rai II. My FCR was stopped by the 5th month because I was so very toxic. Very aggressive FCR and I just never recovered. Always had
Thanks to you lovely people and great support group advice, I have my first IVIG INFUSION in two days in Portland, Oregon. I had FCR six years ago.... Cll/SLL Stage 4, Rai II. My FCR was stopped by the 5th month because I was so very toxic. Very aggressive FCR and I just never recovered. Always had
Kimsome
in
CLL Support
7 years ago
Just putting a tentative toe in the on line world!
Although I am new to the on line community I was diagnosed as having CLL a bit over nine years ago now, was treated was chlorambucil and then with FCR the following year. I guess I was lucky in that I only needed three courses rather than the usual six for my white cell count to come right down. And
Although I am new to the on line community I was diagnosed as having CLL a bit over nine years ago now, was treated was chlorambucil and then with FCR the following year. I guess I was lucky in that I only needed three courses rather than the usual six for my white cell count to come right down. And
Patientgill
in
CLL Support
7 years ago
1
...
75
76
77
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1043 results
NRAS
580 results
Vasculitis UK
336 results
View top 10 communities
Sort by
Most Relevant
Newest