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Flu vaccine
Hello friends, I finished 6 rounds of FCR in March. I was so disappointed to discover last month that my white cell count and neuts were lower than when I was going through chemo. Had bloods checked last week and still the same. I've just returned to work at a school but am nervous now I've heard all
Hello friends, I finished 6 rounds of FCR in March. I was so disappointed to discover last month that my white cell count and neuts were lower than when I was going through chemo. Had bloods checked last week and still the same. I've just returned to work at a school but am nervous now I've heard all
Kenn123
in
CLL Support
7 years ago
nausea returned 4 months post FCR
Hi everyone. I am new to this community and so glad to be able to connect with you all. I had 4 series of FCR treatment and am 4 months out since the last one. After each series (3 days each) I experienced about 3-4 days of nausea. After that my only symptom was fatigue. Surprisingly, about 3 weeks
Hi everyone. I am new to this community and so glad to be able to connect with you all. I had 4 series of FCR treatment and am 4 months out since the last one. After each series (3 days each) I experienced about 3-4 days of nausea. After that my only symptom was fatigue. Surprisingly, about 3 weeks
Hidden
in
CLL Support
7 years ago
New MS biomarker
Serum NfL levels were higher for patients starting natalizumab and
rituximab
compared with those starting interferon, glatiramer acetate, and fingolimod. The levels decreased over time with all of these treatments.
Serum NfL levels were higher for patients starting natalizumab and
rituximab
compared with those starting interferon, glatiramer acetate, and fingolimod. The levels decreased over time with all of these treatments.
erash
in
My MSAA Community
7 years ago
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I've lost my voice!
Despite now being in remission (patient at Addenbrookes) and coming up soon for my first maintenance dose of
Rituximab
, I have lost my voice. Apparently it could be Aphasia (I read it on the internet so it must be true!). Has anyone else had this?
Despite now being in remission (patient at Addenbrookes) and coming up soon for my first maintenance dose of
Rituximab
, I have lost my voice. Apparently it could be Aphasia (I read it on the internet so it must be true!). Has anyone else had this?
Wrigglymonkey
in
Vasculitis UK
7 years ago
Rituximab
Has anyone had an allergic reaction to
Rituximab
5 weeks after infusion
Has anyone had an allergic reaction to
Rituximab
5 weeks after infusion
Hidden
in
Vasculitis UK
7 years ago
Neutropenia problems - Non-Hodgkins Lymphoma
She had chemotherapy using
rituximab
viusimilar and bendamusten drugs, after 3 weeks her leucocytes count is 200, the highest she ever had was 600 a couple of days ago, she was told the normal count is between 4000 and 10 000.
She had chemotherapy using
rituximab
viusimilar and bendamusten drugs, after 3 weeks her leucocytes count is 200, the highest she ever had was 600 a couple of days ago, she was told the normal count is between 4000 and 10 000.
gaby1953
in
CLL Support
7 years ago
Hydroxychloroquine Reaction possibly??☹️
I am due 3rd
rituximab
infusion the end of july so are the increased symptoms because im on the run down to that ??
I am due 3rd
rituximab
infusion the end of july so are the increased symptoms because im on the run down to that ??
weathervane
in
LUPUS UK
7 years ago
Hydroxychloroquine Reaction possibly??😲
I am due 3rd
rituximab
infusion the end of july so are the increased symptoms because im on the run down to that ??
I am due 3rd
rituximab
infusion the end of july so are the increased symptoms because im on the run down to that ??
weathervane
in
The Australian Sjögren's Syndrome Association
7 years ago
Neutrophils staying low
My OH has just completed a 4th cycle of FCR - however each cycle has been reduced from the previous one, initially due to low platelet figures, now it's low neutrophils. Full set of blood tests today, so waiting to hear what happens next. Only symptom is fatigue, but this is debilitating and depressing
My OH has just completed a 4th cycle of FCR - however each cycle has been reduced from the previous one, initially due to low platelet figures, now it's low neutrophils. Full set of blood tests today, so waiting to hear what happens next. Only symptom is fatigue, but this is debilitating and depressing
Hidden
in
CLL Support
7 years ago
Rituximab and ibd
Hi I have had RA for 17 years and mostly controlled with drugs, has anybody had any problems after
rituximab
with bowel problems?? I have had 4 rounds of the drug but now developed inflammatory bowel disease and wondered if there could be a link??? Thanks 😊😊
Hi I have had RA for 17 years and mostly controlled with drugs, has anybody had any problems after
rituximab
with bowel problems?? I have had 4 rounds of the drug but now developed inflammatory bowel disease and wondered if there could be a link??? Thanks 😊😊
debsy29
in
NRAS
7 years ago
Rituximab and low neutrophil count
Hi, has anyone on here had
rituximab
treatment and had a very low neutrophil count. My sister has CCS and have just been researching and there seems to be a link of patients developing neutropenia, I just wanted to see if anyone else has experienced this or has any advice.
Hi, has anyone on here had
rituximab
treatment and had a very low neutrophil count. My sister has CCS and have just been researching and there seems to be a link of patients developing neutropenia, I just wanted to see if anyone else has experienced this or has any advice.
Cloe
in
Vasculitis UK
7 years ago
Reassessment of Anti-CD20 Therapy in Lymphoid Malignancies: Impact, Limitations, and New Directions (Rituximab, Ofatumumab and Obinutuzumab)
Reagan and Friedberg present a comprehensive review of the current indications, dosing strategies, and toxicities of
rituximab
, ofatumumab, and obinutuzumab in B-cell non-Hodgkin lymphomas and chronic lymphocytic leukemia (CLL)'[/i] http://www.cancernetwork.com/oncology-journal/uncertainties-
rituximab
-and-related-therapies
Reagan and Friedberg present a comprehensive review of the current indications, dosing strategies, and toxicities of
rituximab
, ofatumumab, and obinutuzumab in B-cell non-Hodgkin lymphomas and chronic lymphocytic leukemia (CLL)'[/i] http://www.cancernetwork.com/oncology-journal/uncertainties-
rituximab
-and-related-therapies
AussieNeil
Partner
in
CLL Support
7 years ago
Hi all UK vasculitis sufferers/ Rituximab
If you are on
Rituximab
could you tell me how many doses/infusions you have and at what intervals, please? I had two doses/infusions spaced a fortnight apart last year, but am now on 1 infusion every 6 months and they are calling it 'maintenance' RTX therapy.
If you are on
Rituximab
could you tell me how many doses/infusions you have and at what intervals, please? I had two doses/infusions spaced a fortnight apart last year, but am now on 1 infusion every 6 months and they are calling it 'maintenance' RTX therapy.
2534
in
Vasculitis UK
7 years ago
Ibrutinib as frontline??
Hello everyone! Does anyone know why Ibrutinib is only available to CLL patients whose previous treatments have been unsuccessful? It was first made routinely available to leukaemia patients through the NHS in 2016, apparently after years of campaigning by Bloodwise, the cancer research charity. I've
Hello everyone! Does anyone know why Ibrutinib is only available to CLL patients whose previous treatments have been unsuccessful? It was first made routinely available to leukaemia patients through the NHS in 2016, apparently after years of campaigning by Bloodwise, the cancer research charity. I've
bendintheroad1
in
CLL Support
7 years ago
Bendamustine-Rituximab - When do cytopenias disappear? During treatment? Post-treatment?
Has anyone here done BR (Bendamustine-
Rituximab
) and actually felt great/normal afterwards? I.e., gotten their life back as a result of this treatment?
Has anyone here done BR (Bendamustine-
Rituximab
) and actually felt great/normal afterwards? I.e., gotten their life back as a result of this treatment?
PlanetaryKim
in
CLL Support
7 years ago
FCR after four years
When I was taken to the hospital with HB of 5.4 and Leukos 20.0 and lots of wrong b Cells, this was 9/2013, I had only little hope to recover again, as I was tested unmutated, CD 38 neg and ZAP 70 of 50% and Trisomie 12. I received 13 packs of Erytrocyt/Concentrate and 6 rounds of FCR. Only minor sideeffects
When I was taken to the hospital with HB of 5.4 and Leukos 20.0 and lots of wrong b Cells, this was 9/2013, I had only little hope to recover again, as I was tested unmutated, CD 38 neg and ZAP 70 of 50% and Trisomie 12. I received 13 packs of Erytrocyt/Concentrate and 6 rounds of FCR. Only minor sideeffects
seoul
in
CLL Support
7 years ago
To have or not to have....
Hi all I've got my appointment this morning to see if I need my 5th FCR. I must admit to feeling nervous and anxious because why shouldn't I have my 5th and 6th sessions, it's what I signed up for on the trial, it might make the difference between a long and a short remission! Then I tell myself to
Hi all I've got my appointment this morning to see if I need my 5th FCR. I must admit to feeling nervous and anxious because why shouldn't I have my 5th and 6th sessions, it's what I signed up for on the trial, it might make the difference between a long and a short remission! Then I tell myself to
sallyplest
in
CLL Support
7 years ago
9 month check up post FCR and it seems it was worth the ride!
I don't know about you all, but as I head towards an appointment with the hospital, I become quite nervous and anxious. So last week I was manic in my lead up to my 9 monthly check up.. my house was tidy as I was up at 6 every morning unable to sleep... The day of the appointment arrived and 11.50
I don't know about you all, but as I head towards an appointment with the hospital, I become quite nervous and anxious. So last week I was manic in my lead up to my 9 monthly check up.. my house was tidy as I was up at 6 every morning unable to sleep... The day of the appointment arrived and 11.50
Bethan49
in
CLL Support
7 years ago
3rd cycle FCR done
Hi all! Had a very first and second cycles but just ended first week of third cycle FCR. The hospital part where I got the infusion of Rituxab went fine on Monday, but have been feeling much more tired and weak this time during this first week. Also nausea, but no sickness. Haven't had that previously
Hi all! Had a very first and second cycles but just ended first week of third cycle FCR. The hospital part where I got the infusion of Rituxab went fine on Monday, but have been feeling much more tired and weak this time during this first week. Also nausea, but no sickness. Haven't had that previously
bendintheroad1
in
CLL Support
7 years ago
M A I Infection
They say is a very unusual infection but because my system so suppressed from methotrexate and
rituximab
infusion before xmas may have suppressed my system too much therefore led to infection. Worried if my system can fight this. Thanks xx
They say is a very unusual infection but because my system so suppressed from methotrexate and
rituximab
infusion before xmas may have suppressed my system too much therefore led to infection. Worried if my system can fight this. Thanks xx
Carbar
in
LUPUS UK
7 years ago
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