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Disability Allowance - Any Advice Please
I can live normally, I need a bit of help from my wife when I am feeling crappy because of
Rituximab
but to be honest I don’t know where to start regarding the process. I am the sort of bloke that will only claim what’s right and if I am not entitled to anything then so be it, that’s cool.
I can live normally, I need a bit of help from my wife when I am feeling crappy because of
Rituximab
but to be honest I don’t know where to start regarding the process. I am the sort of bloke that will only claim what’s right and if I am not entitled to anything then so be it, that’s cool.
Investigator1
in
Vasculitis UK
6 months ago
4 weeks of Rituximab
I just finished 4 weeks of
Rituximab
750ml once a week. Diagnosed cll 2019 at 42 developed Pure red cell aplasia at the start of this year. Only side affects from
Rituximab
was fatigue day off infusion in the afternoon, I also take 150mg of Cyclosporine and 75mg prednisone daily.
I just finished 4 weeks of
Rituximab
750ml once a week. Diagnosed cll 2019 at 42 developed Pure red cell aplasia at the start of this year. Only side affects from
Rituximab
was fatigue day off infusion in the afternoon, I also take 150mg of Cyclosporine and 75mg prednisone daily.
Jimmy_9
in
CLL Support
10 months ago
Update.
The letter I received states that my haematologist cannot say whether or when the
Rituximab
I received will kick in. I am due to see him at the end of this month for a further consultation. Love and strength to all.
The letter I received states that my haematologist cannot say whether or when the
Rituximab
I received will kick in. I am due to see him at the end of this month for a further consultation. Love and strength to all.
Jacksc06
in
CLL Support
9 months ago
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Avacopan (Tavneos®) is accepted for use within NHSScotland.
Full details posted here: https://www.scottishmedicines.org.uk/media/7938/avacopan-tavneos-final-oct-2023-for-website.pdf Indication under review: In combination with a
rituximab
or cyclophosphamide regimen, for the treatment of adult patients with severe, active granulomatosis with polyangiitis (GPA
Full details posted here: https://www.scottishmedicines.org.uk/media/7938/avacopan-tavneos-final-oct-2023-for-website.pdf Indication under review: In combination with a
rituximab
or cyclophosphamide regimen, for the treatment of adult patients with severe, active granulomatosis with polyangiitis (GPA
JaneLE
Administrator
in
Vasculitis UK
8 months ago
Nasal flu vaccine transmission
I'm on
rituximab
and prednisolone atm (though will come off pred soon).
I'm on
rituximab
and prednisolone atm (though will come off pred soon).
Grizzly-bear
in
Vasculitis UK
9 months ago
Rituximab adverse reaction to pre-meds
Hi I have Vasculitis GPA I have my fourth dose of
rituximab
coming up in a few weeks. I seem to have a reaction to the pre-meds they give prior to the
rituximab
infusion. One of the pre-med drugs I believe to be a steroid of some description. The history so far...
Hi I have Vasculitis GPA I have my fourth dose of
rituximab
coming up in a few weeks. I seem to have a reaction to the pre-meds they give prior to the
rituximab
infusion. One of the pre-med drugs I believe to be a steroid of some description. The history so far...
Gurberly
in
Vasculitis UK
9 months ago
Rituximab treatment
Has anyone done
Rituximab
treatment in Canada? If so how many treatments did you do… and how did it go? What hospital did you do it in, and what doctor did the order.
Has anyone done
Rituximab
treatment in Canada? If so how many treatments did you do… and how did it go? What hospital did you do it in, and what doctor did the order.
Skyllark
in
Hughes Syndrome APS Forum
11 months ago
Second Rituximab infusion.
Had my 2nd infusion today. Initial blood test showed low Haemoglobin. It took three attempts to insert the cannula so a bit sore. Antihistamine and steroids made me a little drowsy but infusion went smoothly with no dramas. The suite was full and looking around I felt fortunate seeing how poorly a
Had my 2nd infusion today. Initial blood test showed low Haemoglobin. It took three attempts to insert the cannula so a bit sore. Antihistamine and steroids made me a little drowsy but infusion went smoothly with no dramas. The suite was full and looking around I felt fortunate seeing how poorly a
Jacksc06
in
CLL Support
10 months ago
Covid vaccination brand
I used to be treated with
rituximab
but that affected my memory. My concern is the Pfizer Covid vaccination because it gives me a leg rash - Livedo reticularis, which worsens each time and never goes away it is not itchy but results in a very dry skin.
I used to be treated with
rituximab
but that affected my memory. My concern is the Pfizer Covid vaccination because it gives me a leg rash - Livedo reticularis, which worsens each time and never goes away it is not itchy but results in a very dry skin.
Rosie7may
in
Vasculitis UK
9 months ago
Protect-V trial
I have vasculitis GPA and have regular infusions of
rituximab
which is an immunosuppressant. On a recent trip to Addenbrookes (Cambridge Hospital) to see my consultant they signed me up to take part in the Protect-V clinical trial. An anti covid vaccine.
I have vasculitis GPA and have regular infusions of
rituximab
which is an immunosuppressant. On a recent trip to Addenbrookes (Cambridge Hospital) to see my consultant they signed me up to take part in the Protect-V clinical trial. An anti covid vaccine.
Gurberly
in
Vasculitis UK
10 months ago
Life After Rituximab - Is that it?
So that time has come when I am having my last
Rituximab
infusion on the 22nd November, it’s been 3 years on the treatment and my Consultant has told me that’s the max. My ANCA marker is low but what happens next?
So that time has come when I am having my last
Rituximab
infusion on the 22nd November, it’s been 3 years on the treatment and my Consultant has told me that’s the max. My ANCA marker is low but what happens next?
Investigator1
in
Vasculitis UK
9 months ago
Leukemia-associated macrophages, their role in the CLL Tumor Micro-environment and how they affect progression and therapy response
[/i] Combined figures 2 and 3 from the paper, showing the interaction of ibrutinib, venetoclax with macrophages and
rituximab
and obinutuzumab with CLL cells respectively, are shown in the attached image.
[/i] Combined figures 2 and 3 from the paper, showing the interaction of ibrutinib, venetoclax with macrophages and
rituximab
and obinutuzumab with CLL cells respectively, are shown in the attached image.
AussieNeil
Partner
in
CLL Support
17 days ago
Abatacept and coming off prednisolone
Hello lovely helpful people I started Abatacept injections a month ago following a flare and stopping
rituximab
that didn’t really work. I was given a months worth of prednisolone which I have now stopped a few days ago, starting on 10mg and then 5mg.
Hello lovely helpful people I started Abatacept injections a month ago following a flare and stopping
rituximab
that didn’t really work. I was given a months worth of prednisolone which I have now stopped a few days ago, starting on 10mg and then 5mg.
debjw
in
NRAS
9 months ago
Oh how I wish I was signposted to this site 18 months ago
I have regular infusions of
rituximab
for my vasculitis which is now well in remission. That said I am nervous about coming off
rituximab
as it is possible if not probable that the vasculitis caused my brain haemorrhage.
I have regular infusions of
rituximab
for my vasculitis which is now well in remission. That said I am nervous about coming off
rituximab
as it is possible if not probable that the vasculitis caused my brain haemorrhage.
Gurberly
in
ICUsteps
8 months ago
Shingrix vaccine - fitting it around rituximab infusions
I am under 60 and assuming I can persuade my GP of my eligibility, when should the vaccines be best scheduled around my 6 monthly
rituximab
infusions? Should the first one be 3-4 weeks or so before an infusion, the second in a further 6 months i.e. before the next infusion?
I am under 60 and assuming I can persuade my GP of my eligibility, when should the vaccines be best scheduled around my 6 monthly
rituximab
infusions? Should the first one be 3-4 weeks or so before an infusion, the second in a further 6 months i.e. before the next infusion?
Gurberly
in
Vasculitis UK
9 months ago
baricitinib over 65
I was given the option to half the dose to 2mg or come off it and change to embrel or
rituximab
that are not JAK inhibitors. I have had both of these before one didn’t work at all and with embrel I had lots of infections and ended up will a pleural effusion being drained from my chest.
I was given the option to half the dose to 2mg or come off it and change to embrel or
rituximab
that are not JAK inhibitors. I have had both of these before one didn’t work at all and with embrel I had lots of infections and ended up will a pleural effusion being drained from my chest.
Darwin
in
NRAS
8 months ago
Home again.
Got home at around 20:30 after first cycle of
Rituximab
. Had a poor night's sleep on the ward as usual, so hoping to sleep well tonight. No major dramas during the infusion. Bit of a headache and feel like I'm on fire but generally OK. Next cycle is Tuesday next week so one down three to go.
Got home at around 20:30 after first cycle of
Rituximab
. Had a poor night's sleep on the ward as usual, so hoping to sleep well tonight. No major dramas during the infusion. Bit of a headache and feel like I'm on fire but generally OK. Next cycle is Tuesday next week so one down three to go.
Jacksc06
in
CLL Support
10 months ago
Lupus rash/spots spread to scalp.
I am on 6 monthly
Rituximab
Infusions, Mepacrine, Dermovate Cream, and maintenance Steroids 5 mg per day. Enjoy your Bank Holiday. X
I am on 6 monthly
Rituximab
Infusions, Mepacrine, Dermovate Cream, and maintenance Steroids 5 mg per day. Enjoy your Bank Holiday. X
Haired
in
LUPUS UK
10 months ago
Rituximab
Morning all, I had my 1st dose of
rituximab
& 9 days later I am in full flare mode. In fact I haven’t fleck this bad since I was diagnosed 15 years ago 🙄 My original concern was swollen feet but this is something else.
Morning all, I had my 1st dose of
rituximab
& 9 days later I am in full flare mode. In fact I haven’t fleck this bad since I was diagnosed 15 years ago 🙄 My original concern was swollen feet but this is something else.
Ouch41
in
NRAS
1 year ago
Update.
Had my last infusion of
Rituximab
today. A doctor came to speak with me, apparently my cll is not responding to the infusions. They are hoping that this last dose will trigger a reaction but she is doubtful.
Had my last infusion of
Rituximab
today. A doctor came to speak with me, apparently my cll is not responding to the infusions. They are hoping that this last dose will trigger a reaction but she is doubtful.
Jacksc06
in
CLL Support
10 months ago
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