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Rituximab
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Ibrutinib stopped working, what’s next
Morning all,a quick recap on journey so far, FCR treatment which kept things at bay for 14 months, then onto Ibrutinib for 6 years approximately, currently lymph nodes at 5cm , next treatment starts in January
Rituximab
and Ventoclax for 2 years, just wondering if there are any alternatives?
Morning all,a quick recap on journey so far, FCR treatment which kept things at bay for 14 months, then onto Ibrutinib for 6 years approximately, currently lymph nodes at 5cm , next treatment starts in January
Rituximab
and Ventoclax for 2 years, just wondering if there are any alternatives?
Stacky66
in
CLL Support
6 months ago
Pneumonia Vaccine - Who Can Have it?
Hypothetical for me because just had
Rituximab
, anybody any clues? Nick.
Hypothetical for me because just had
Rituximab
, anybody any clues? Nick.
Investigator1
in
Vasculitis UK
7 months ago
Rituximab failure ?
Hi Folks, my consultant confirmed yesterday that
Rituximab
has done very little for me, CRP has come down a bit to 38 from over 100 but every day I still struggle to get about. Starting to get properly depressed about it all to be honest. What can they do next ?
Hi Folks, my consultant confirmed yesterday that
Rituximab
has done very little for me, CRP has come down a bit to 38 from over 100 but every day I still struggle to get about. Starting to get properly depressed about it all to be honest. What can they do next ?
RootsToots
in
NRAS
9 months ago
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Foot Fusion on Biologics
Has any one had foot surgery ( taviculalar fusion ) and on the biological
Rituximab
? How did it go please? How was the healing did anyone have problems? As having surgery and on
Rituximab
. Many thanks I would love to hear .
Has any one had foot surgery ( taviculalar fusion ) and on the biological
Rituximab
? How did it go please? How was the healing did anyone have problems? As having surgery and on
Rituximab
. Many thanks I would love to hear .
-Mii
in
NRAS
10 months ago
well another drug fail.
Rituximab
after 3 months is a failure. I have been so much worse the last 6 weeks unable to walk or use my hands peripheral neuropathy off the scale . Managed to see another rheumatologist at the clinic . 3 infections and bed bound these last 6 weeks.
Rituximab
after 3 months is a failure. I have been so much worse the last 6 weeks unable to walk or use my hands peripheral neuropathy off the scale . Managed to see another rheumatologist at the clinic . 3 infections and bed bound these last 6 weeks.
J1707-
in
NRAS
7 months ago
More evidence for vaccination
Among the small subgroup of patients using
rituximab
, we could not confirm a similar direction or magnitude of effect (1·37; 0·32–5·86). [/i] [i]ref: November 15, 2023 https://doi.org/10.1016/S2665-9913(23)00272-2[/i] There is fatigue amongst us all - too many injections!
Among the small subgroup of patients using
rituximab
, we could not confirm a similar direction or magnitude of effect (1·37; 0·32–5·86). [/i] [i]ref: November 15, 2023 https://doi.org/10.1016/S2665-9913(23)00272-2[/i] There is fatigue amongst us all - too many injections!
oldtimer2
in
NRAS
5 months ago
Rituximab- my experience.
I had
Rituximab
+ dexamethasone+cyclophosphamide after that for 12 cycles over 10 months. (I had bad nausea with the cyclophosphamide for up to a week after each infusion). Remission again only lasted around 3 months.
I had
Rituximab
+ dexamethasone+cyclophosphamide after that for 12 cycles over 10 months. (I had bad nausea with the cyclophosphamide for up to a week after each infusion). Remission again only lasted around 3 months.
Hidden
in
CLL Support
9 months ago
Lupus & Sjogrens with Rituximab Infusions
Good Morning, I have been on
Rituximab
Infusions since Jan 2021 ( 6 monthly)just had double Infusion 2 weeks apart. Also on 5mg maint steroids and Mepacrine also Helliocare photosensitivity tablets, blood pressure tablets, folic acid calcichew, Asprin.
Good Morning, I have been on
Rituximab
Infusions since Jan 2021 ( 6 monthly)just had double Infusion 2 weeks apart. Also on 5mg maint steroids and Mepacrine also Helliocare photosensitivity tablets, blood pressure tablets, folic acid calcichew, Asprin.
Haired
in
LUPUS UK
8 months ago
CLL survival times ARE improving, thanks to BTK and BCL-2 inhibitors
Those older chemoimmunotherapy treatments, typically Bendamustine +
Rituximab
(BR) or Fludarabine + Cyclophosphamide +
Rituximab
(FCR), selected for tougher to treat sub-clones, which they cause through inducing DNA damage that will hopefully trigger apoptosis [u]if[/u] the TP53 gene isn't mutated or
Those older chemoimmunotherapy treatments, typically Bendamustine +
Rituximab
(BR) or Fludarabine + Cyclophosphamide +
Rituximab
(FCR), selected for tougher to treat sub-clones, which they cause through inducing DNA damage that will hopefully trigger apoptosis [u]if[/u] the TP53 gene isn't mutated or
AussieNeil
Partner
in
CLL Support
3 months ago
Update
In the meantime I also had lymphoma and received four R-CHOP chemo cycles, two cycles of CNS prophylaxis and two additional cycles of monoclonal antibodies
Rituximab
only. Pet/CT shows complete remission. So this is something to celebrate and fills my tanks of hope for the future.
In the meantime I also had lymphoma and received four R-CHOP chemo cycles, two cycles of CNS prophylaxis and two additional cycles of monoclonal antibodies
Rituximab
only. Pet/CT shows complete remission. So this is something to celebrate and fills my tanks of hope for the future.
Nusch
in
Advanced Prostate Cancer
8 months ago
sore scalp after Rituximab
have just had second
Rituximab
infusion and have got horrible horrible painful sores at bottom of scalp - any recommendations for a shampoo/cream that could help please ?
have just had second
Rituximab
infusion and have got horrible horrible painful sores at bottom of scalp - any recommendations for a shampoo/cream that could help please ?
beachbabe
in
NRAS
10 months ago
Rituximab and Chest Infections
Not long after my first 2
Rituximab
infusions I was diagnosed with a chest infection and given antibiotics. The GP booked me in for a chest X-ray and 3 or 4 weeks later that showed lingering infection so I had another week if antibiotics.
Not long after my first 2
Rituximab
infusions I was diagnosed with a chest infection and given antibiotics. The GP booked me in for a chest X-ray and 3 or 4 weeks later that showed lingering infection so I had another week if antibiotics.
Grumpyoldmare
in
NRAS
9 months ago
Similarities/difference with Waldenstroms? ?
Rituximab
alone. Effective. Neuropathy much improved, but relapse after relatively short period (3 months). Now newly started on
Rituximab
+ Ibrutinib. I 'm not feeling any response yet with the neuropathy but my monoclonal spike is going down! 👍
Rituximab
alone. Effective. Neuropathy much improved, but relapse after relatively short period (3 months). Now newly started on
Rituximab
+ Ibrutinib. I 'm not feeling any response yet with the neuropathy but my monoclonal spike is going down! 👍
Hidden
in
CLL Support
10 months ago
Hi everyone
Had 3
Rituximab
infusions. Has damaged my Lungs and Kidneys. Waiting to find out the extent of damage. On Co-Trimoxacole 3 x a week.
Had 3
Rituximab
infusions. Has damaged my Lungs and Kidneys. Waiting to find out the extent of damage. On Co-Trimoxacole 3 x a week.
Reggie999
in
Vasculitis UK
8 months ago
4 weeks of Rituximab
I just finished 4 weeks of
Rituximab
750ml once a week. Diagnosed cll 2019 at 42 developed Pure red cell aplasia at the start of this year. Only side affects from
Rituximab
was fatigue day off infusion in the afternoon, I also take 150mg of Cyclosporine and 75mg prednisone daily.
I just finished 4 weeks of
Rituximab
750ml once a week. Diagnosed cll 2019 at 42 developed Pure red cell aplasia at the start of this year. Only side affects from
Rituximab
was fatigue day off infusion in the afternoon, I also take 150mg of Cyclosporine and 75mg prednisone daily.
Jimmy_9
in
CLL Support
10 months ago
Update.
The letter I received states that my haematologist cannot say whether or when the
Rituximab
I received will kick in. I am due to see him at the end of this month for a further consultation. Love and strength to all.
The letter I received states that my haematologist cannot say whether or when the
Rituximab
I received will kick in. I am due to see him at the end of this month for a further consultation. Love and strength to all.
Jacksc06
in
CLL Support
8 months ago
Rituximab treatment
Has anyone done
Rituximab
treatment in Canada? If so how many treatments did you do… and how did it go? What hospital did you do it in, and what doctor did the order.
Has anyone done
Rituximab
treatment in Canada? If so how many treatments did you do… and how did it go? What hospital did you do it in, and what doctor did the order.
Skyllark
in
Hughes Syndrome APS Forum
10 months ago
Avacopan (Tavneos®) is accepted for use within NHSScotland.
Full details posted here: https://www.scottishmedicines.org.uk/media/7938/avacopan-tavneos-final-oct-2023-for-website.pdf Indication under review: In combination with a
rituximab
or cyclophosphamide regimen, for the treatment of adult patients with severe, active granulomatosis with polyangiitis (GPA
Full details posted here: https://www.scottishmedicines.org.uk/media/7938/avacopan-tavneos-final-oct-2023-for-website.pdf Indication under review: In combination with a
rituximab
or cyclophosphamide regimen, for the treatment of adult patients with severe, active granulomatosis with polyangiitis (GPA
JaneLE
Administrator
in
Vasculitis UK
7 months ago
Disability Allowance - Any Advice Please
I can live normally, I need a bit of help from my wife when I am feeling crappy because of
Rituximab
but to be honest I don’t know where to start regarding the process. I am the sort of bloke that will only claim what’s right and if I am not entitled to anything then so be it, that’s cool.
I can live normally, I need a bit of help from my wife when I am feeling crappy because of
Rituximab
but to be honest I don’t know where to start regarding the process. I am the sort of bloke that will only claim what’s right and if I am not entitled to anything then so be it, that’s cool.
Investigator1
in
Vasculitis UK
6 months ago
Rituximab adverse reaction to pre-meds
Hi I have Vasculitis GPA I have my fourth dose of
rituximab
coming up in a few weeks. I seem to have a reaction to the pre-meds they give prior to the
rituximab
infusion. One of the pre-med drugs I believe to be a steroid of some description. The history so far...
Hi I have Vasculitis GPA I have my fourth dose of
rituximab
coming up in a few weeks. I seem to have a reaction to the pre-meds they give prior to the
rituximab
infusion. One of the pre-med drugs I believe to be a steroid of some description. The history so far...
Gurberly
in
Vasculitis UK
9 months ago
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