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Ibrutinib
My husband’s side effects are worse late afternoon early evening. I stay awake until I am sure he is more settled. He has horrible chills. He’s beginning to have head aches as well. He had headaches with FCR. Any advice on how to best comfort him or make life easier during Ibrutinib?
My husband’s side effects are worse late afternoon early evening. I stay awake until I am sure he is more settled. He has horrible chills. He’s beginning to have head aches as well. He had headaches with FCR. Any advice on how to best comfort him or make life easier during Ibrutinib?
Zappymom12
in
CLL Support
6 years ago
Newbie
Howdy. Pretty cool site with a lot of info, suggestions. I’m 63, finished FCR in November 2015, just started ibrutinib week ago last Saturday. Lot of side effects, mostly achy joints, bones, general weakness and not much appetite. The later is helping me with my weight—lol Anyway. Hope symptoms
Howdy. Pretty cool site with a lot of info, suggestions. I’m 63, finished FCR in November 2015, just started ibrutinib week ago last Saturday. Lot of side effects, mostly achy joints, bones, general weakness and not much appetite. The later is helping me with my weight—lol Anyway. Hope symptoms
gesch83ag
in
CLL Support
6 years ago
Post 4 cycles FCR side effects
FCR vasculitis & fungal pneumonia after 4 cycle
FCR vasculitis & fungal pneumonia after 4 cycle
Mathild
in
CLL Support
6 years ago
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Ibrutinib vs FCR: does order of therapy matter?
Or is it better to use ibrutinib first then move either to FCR or perhaps Venetoclax plus
rituximab
? As my CLL specialists told me, the data is clearer for low and high risk patients but perhaps less clear for intermediate risk.
Or is it better to use ibrutinib first then move either to FCR or perhaps Venetoclax plus
rituximab
? As my CLL specialists told me, the data is clearer for low and high risk patients but perhaps less clear for intermediate risk.
AdrianUK
in
CLL Support
6 years ago
4 weeks in
so. 4 weeks in After
Rituximab
infusion. Still so so stiff and sore in the mornings. Am on another ‘rescue course’ of steroids to last another 4 weeks as the nurse has said they allow upto 12 weeks for it to start working. Anyone else had experience of how long it takes to start working ..?
so. 4 weeks in After
Rituximab
infusion. Still so so stiff and sore in the mornings. Am on another ‘rescue course’ of steroids to last another 4 weeks as the nurse has said they allow upto 12 weeks for it to start working. Anyone else had experience of how long it takes to start working ..?
Tessthomy
in
NRAS
6 years ago
Fcr update
It’s now two weeks since my first session of chemo. On day four I felt exhausted and really nauseous so slept on and off most of the day,day five I managed to pass out and fall down the stairs and ended up in hospital as I banged my head, was allowed out the following day after a night on a drip . Since
It’s now two weeks since my first session of chemo. On day four I felt exhausted and really nauseous so slept on and off most of the day,day five I managed to pass out and fall down the stairs and ended up in hospital as I banged my head, was allowed out the following day after a night on a drip . Since
dandelup
in
CLL Support
6 years ago
Cheap Ibrutinib?
Hi Everyone, I started doing research on treatments and how I can handle the cost, since our insurance does not cover anything. We are doing the bone marrow this week and we will know for sure, but our doctor assumes Ibrutinib, combination or FCR, I prefer the first. However the cost is insane, I found
Hi Everyone, I started doing research on treatments and how I can handle the cost, since our insurance does not cover anything. We are doing the bone marrow this week and we will know for sure, but our doctor assumes Ibrutinib, combination or FCR, I prefer the first. However the cost is insane, I found
paula_dae
in
CLL Support
6 years ago
What is the difference between Methotrexate and Rutiximab?
I have been having
Rituximab
infusions since November (initially 2, 2 weeks apart, then 6 monthly). What is the difference between Methotrexate and Rutiximab?
I have been having
Rituximab
infusions since November (initially 2, 2 weeks apart, then 6 monthly). What is the difference between Methotrexate and Rutiximab?
sarahdollygirl
in
Vasculitis UK
6 years ago
Effects of long term antibiotics
I have Churg Strauss, currently treated with
Rituximab
, 5mg Prednisilone, Following a fungal infection in my lungs last winter which had to be treated with very strong antibiotics I am still taking a low dose full time.
I have Churg Strauss, currently treated with
Rituximab
, 5mg Prednisilone, Following a fungal infection in my lungs last winter which had to be treated with very strong antibiotics I am still taking a low dose full time.
sarahdollygirl
in
Vasculitis UK
6 years ago
Rituximab and belimibub
They have just offered me screening for a trial of the
rituximab
/belimibub combination. She said that often when just taking one of them, the body can work the drug out, bug taking both as a combo seems to confuse the it!
They have just offered me screening for a trial of the
rituximab
/belimibub combination. She said that often when just taking one of them, the body can work the drug out, bug taking both as a combo seems to confuse the it!
puffyface
in
LUPUS UK
6 years ago
Clonal Evolution, mutations and resistance to CLL treatment
. -------- VENETOCLAX ===== Of course we also have another treatment option emerging Venetoclax in combination with either
rituximab
or ibrutinib. It kills CLL cells very quickly. Will it induce clonal evolution and treatment resistance?
. -------- VENETOCLAX ===== Of course we also have another treatment option emerging Venetoclax in combination with either
rituximab
or ibrutinib. It kills CLL cells very quickly. Will it induce clonal evolution and treatment resistance?
AdrianUK
in
CLL Support
6 years ago
adverse reaction to aromatherapy?
The cancer nurse at my GP practise suggested I might like to take advantage of various treatments our local hospice provides for cancer sufferers. I went today for a chat with the therapist to discuss the options. She had a diffuser, puffing out essential oils, mixed with water. My lungs started to
The cancer nurse at my GP practise suggested I might like to take advantage of various treatments our local hospice provides for cancer sufferers. I went today for a chat with the therapist to discuss the options. She had a diffuser, puffing out essential oils, mixed with water. My lungs started to
Mandy56
in
CLL Support
6 years ago
Just got my FISH results
Hi everyone, I've just been to see my haematologist for my FISH results, the first since diagnosed 3 weeks ago. He says I have both the 11q and 13 deletions. I know the 11q isnt very good so we were pretty disappointed. I am starting FCR treatment next week. Could someone let me know what to expect?
Hi everyone, I've just been to see my haematologist for my FISH results, the first since diagnosed 3 weeks ago. He says I have both the 11q and 13 deletions. I know the 11q isnt very good so we were pretty disappointed. I am starting FCR treatment next week. Could someone let me know what to expect?
fugazi
in
CLL Support
6 years ago
Heart racing after infusion for Wegeners
Could this be
Rituximab
related for the GPA I’ve tolerated it well before but had a big dose this time. If anyone can get back to me ASAP I’d appreciate it very much Thanks in advance B
Could this be
Rituximab
related for the GPA I’ve tolerated it well before but had a big dose this time. If anyone can get back to me ASAP I’d appreciate it very much Thanks in advance B
Balderick
in
Vasculitis UK
6 years ago
2 nd fcr day over
A big thank you for all your good wishes and advice, I sailed through second day no reactions at all, now a break till October once again thank you for all your kind words of support.
A big thank you for all your good wishes and advice, I sailed through second day no reactions at all, now a break till October once again thank you for all your kind words of support.
dandelup
in
CLL Support
6 years ago
Rituximab infusion
Hi everyone, just wondering if it's normal to have dizziness after the
rituximab
infusions ?
Hi everyone, just wondering if it's normal to have dizziness after the
rituximab
infusions ?
285641
in
NRAS
6 years ago
Completely lost appetite
Hi there I hope everybody is doing well here. Very soon I am going to start my first cycle of FCR. The problem is that there is loss of appetite not due to fear of therapy but due to my progressive CLL.I want to know ,if any had such an experience ,when my symptoms will resolve? Will that happen after
Hi there I hope everybody is doing well here. Very soon I am going to start my first cycle of FCR. The problem is that there is loss of appetite not due to fear of therapy but due to my progressive CLL.I want to know ,if any had such an experience ,when my symptoms will resolve? Will that happen after
MoSamir
in
CLL Support
6 years ago
First dose over
Just had my first day of fcr, had slight blip halfway through got the shivers and for some reason got very emotional don’t ask me why, the nurses reckon it’s the enormity of what your having done to you suddenly hitting me anyway they sorted me out and finished the treatment felt a idiot , apparently
Just had my first day of fcr, had slight blip halfway through got the shivers and for some reason got very emotional don’t ask me why, the nurses reckon it’s the enormity of what your having done to you suddenly hitting me anyway they sorted me out and finished the treatment felt a idiot , apparently
dandelup
in
CLL Support
6 years ago
One year on from FCR - and I feel great
Teachers in the UK return to work this week after our summer holiday. For me, a teacher returning to his 23rd 'Start of the year' this year I am reminded that this time a year ago I was having the last of my 6 cycles of FCR. Since then, I've led my school through an OFSTED inspection, travelled to Italy
Teachers in the UK return to work this week after our summer holiday. For me, a teacher returning to his 23rd 'Start of the year' this year I am reminded that this time a year ago I was having the last of my 6 cycles of FCR. Since then, I've led my school through an OFSTED inspection, travelled to Italy
MattGGibson
in
CLL Support
6 years ago
Just a quick question re fcr
Starting FCR next week I presume I will have a picc line fitted? Just one of the many questions I forgot to ask yesterday at my appointment
Starting FCR next week I presume I will have a picc line fitted? Just one of the many questions I forgot to ask yesterday at my appointment
dandelup
in
CLL Support
6 years ago
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