Post 4 cycles FCR side effects

[Mathild]

FCR vasculitis & fungal pneumonia after 4 cycle

[Cllcanada Top Poster CURE Hero]

So sorry to hear this, are you being treated for both? What fungal pneumonia did you have?

I'm interested since I had invasive aspergillosis 6 months ago...

~chris

[Mathild in reply to Cllcanada]

PJP pneumonia.

[Mathild in reply to Cllcanada]

Also on prednisone for vasculitis. Had three weeks of atovaquone for fungal pjp. Still on oxygen 24/7 as well.

[dflo in reply to Cllcanada]

Chris, what medication are you taken for your aspergillosis. My husband had a fungal infection on his brain after treatment with imbruvica.

[Cllcanada Top Poster CURE Hero in reply to dflo]

I have had voriconazole IV and oral, and the side effects were awful. After a few months, I was switched to posaconazole, which, for me has been better. I have been on it 5 months, but the aspergillus remains... the treatments is stopping it spreading...

~chris

[Ohannie236]

Just want to say I'm so sorry you're going through this, Mathild. I hope things improve for you very soon. Love and prayers from Ohio. 💓

[Mathild in reply to Ohannie236]

Thank youOhannie26.