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Rituximab
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rituximab
I wondered if anyone has had
rituximab
infusions for their myositis and what the experience has been like - impact on disease, side effects, infections due to immune suppression, infusion process itself? The rheumatologist has given this as a potential option and I’m seeking some insight.
I wondered if anyone has had
rituximab
infusions for their myositis and what the experience has been like - impact on disease, side effects, infections due to immune suppression, infusion process itself? The rheumatologist has given this as a potential option and I’m seeking some insight.
ruablue
in
Myositis UK
6 months ago
Rituximab
Hello everyone I have not posted before but read the other posts every day I have SLE, osteoporosis, arthiritus, CKD, amoloid and was recently hospitalised with acute fibrosis of the lungs I am In constant pain due to broken bones in spine My Rheumatologist has got me accepted for
Rituximab
Hello everyone I have not posted before but read the other posts every day I have SLE, osteoporosis, arthiritus, CKD, amoloid and was recently hospitalised with acute fibrosis of the lungs I am In constant pain due to broken bones in spine My Rheumatologist has got me accepted for
Rituximab
Catcon01
in
LUpus Patients Understanding and Support
6 months ago
Rituximab - any advice?
At my rheumatology appointment yesterday my consultant came to the conclusion that amgevita has not worked for me and we agreed I would stop that and start
Rituximab
. Has this worked well for others? I understand that this is given by infusion every 6 months and wondered how people found that?
At my rheumatology appointment yesterday my consultant came to the conclusion that amgevita has not worked for me and we agreed I would stop that and start
Rituximab
. Has this worked well for others? I understand that this is given by infusion every 6 months and wondered how people found that?
Bookworm55
in
NRAS
4 months ago
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Measles outbreak
I'm on
rituximab
, azathioprine and prednisolone. I'm up-to-date with vaccinations bit concerned about the measles outbreak in my area. Am I at risk due to being immunocompromised?
I'm on
rituximab
, azathioprine and prednisolone. I'm up-to-date with vaccinations bit concerned about the measles outbreak in my area. Am I at risk due to being immunocompromised?
Vqueen
in
Vasculitis UK
3 months ago
Anti viral?
I'm on
rituximab
and azathioprine aswell as prednisolone. I've not yet done a test but have been feeling breathless and coughing more than normal. I'm not allowed to have my covid or flu vaccinations due to my recent
rituximab
infusion.
I'm on
rituximab
and azathioprine aswell as prednisolone. I've not yet done a test but have been feeling breathless and coughing more than normal. I'm not allowed to have my covid or flu vaccinations due to my recent
rituximab
infusion.
Vqueen
in
Vasculitis UK
6 months ago
Abatacept
Good morning, I have been on
Rituximab
for a number of years , but having a really bad side effects now , saw Rhuemy a few weeks ago and she said that I might be switched to Abatacept .
Good morning, I have been on
Rituximab
for a number of years , but having a really bad side effects now , saw Rhuemy a few weeks ago and she said that I might be switched to Abatacept .
Jillyanne
in
NRAS
4 months ago
Selbourn
Two weeks ago I was given, what the Rummy called a maintenance dose, of
Rituximab
and of course 125mg of prednisone first. All good apart from little sleep after the Pred! But now OK but very tired all the time could be the ANCA or the meds who knows.
Two weeks ago I was given, what the Rummy called a maintenance dose, of
Rituximab
and of course 125mg of prednisone first. All good apart from little sleep after the Pred! But now OK but very tired all the time could be the ANCA or the meds who knows.
Selbourn
in
Vasculitis UK
2 months ago
Gpa chest infection
Already on prednisolone, azathioprine and
rituximab
. Just doesn't seem to be shifting. Any advice on what to do to help fight the infection? Thanks in advance XX
Already on prednisolone, azathioprine and
rituximab
. Just doesn't seem to be shifting. Any advice on what to do to help fight the infection? Thanks in advance XX
Vqueen
in
Vasculitis UK
4 months ago
Avacopan and Pred
Hi, I had my first
rituximab
infusion last Tuesday. I have been supplied Avacopan, but still have Pred 40mg a day. No one has told me to stop Pred before starting Avacopan. Unsure if I should be stopping dead or finishing up existing tablets/tapering?
Hi, I had my first
rituximab
infusion last Tuesday. I have been supplied Avacopan, but still have Pred 40mg a day. No one has told me to stop Pred before starting Avacopan. Unsure if I should be stopping dead or finishing up existing tablets/tapering?
lollypocket
in
Vasculitis UK
3 months ago
Obinutuzumab not recommended for funding by NHS England
NHS England have not recommended funding obinutuzumab for people with lupus and secondary non-response to
rituximab
. However, they are prepared to consider it again in the future.
NHS England have not recommended funding obinutuzumab for people with lupus and secondary non-response to
rituximab
. However, they are prepared to consider it again in the future.
Debbie_kinsey
Administrator
in
LUPUS UK
4 months ago
Weakness
Hello,I've had rheumatoid arthritis 28 years been on different drugs over years ,I have been methotrexate 25mg weekly for years folic acid I've been on
rituximab
every 6 months first course then 2 weeks later 2nd course for 4 year ,I'm starting to feel very weak I'm normally won't let it beat me ,I feel
Hello,I've had rheumatoid arthritis 28 years been on different drugs over years ,I have been methotrexate 25mg weekly for years folic acid I've been on
rituximab
every 6 months first course then 2 weeks later 2nd course for 4 year ,I'm starting to feel very weak I'm normally won't let it beat me ,I feel
Justlucy
in
NRAS
23 days ago
Recurring high temperatures?
GPA current treatment
rituximab
azathioprine and prednisolone
GPA current treatment
rituximab
azathioprine and prednisolone
Vqueen
in
Vasculitis UK
5 months ago
Golimumab v. Rituximab? What is others' experience?
I'd like to know what experience others have had of
rituximab
: side effects, effectiveness, etc. so that I'm ready with questions to ask at my next appointment.
I'd like to know what experience others have had of
rituximab
: side effects, effectiveness, etc. so that I'm ready with questions to ask at my next appointment.
Lifesforliving
in
NRAS
5 months ago
anti NMDA encephalitis
He had the steroids, the plasma exchange but it was the
Rituximab
that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have a big support network and appointments with professionals, surprisingly, seem so few and far between.
He had the steroids, the plasma exchange but it was the
Rituximab
that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have a big support network and appointments with professionals, surprisingly, seem so few and far between.
AntiNMDAWarriorWife
in
Headway
2 months ago
Wendy
My husband was diagnosed in 2010 at the age of 40. 2013 he had FCR. 11 years later, he is in week 5 of venteclax,
Rituximab
to follow next month. Swollen lymph nodes have disappeared.
My husband was diagnosed in 2010 at the age of 40. 2013 he had FCR. 11 years later, he is in week 5 of venteclax,
Rituximab
to follow next month. Swollen lymph nodes have disappeared.
Fluxthecat10
in
CLL Support
4 hours ago
RITUXIMAB
THE KIDNEY CONSULTANT HAS DECIDED THAT MY IMMUNE SYSTEM NEEDS TO BE LOWERED TO AVOID TOTAL KIDNEY FAILURE BECAUSE IT HAS CAUSED VASCULITIS AND I AM TO START
RITUXIMAB
NEXT WEEK. I HAVE HAD MY PRED INCREASED TO 40MG A DAY.
THE KIDNEY CONSULTANT HAS DECIDED THAT MY IMMUNE SYSTEM NEEDS TO BE LOWERED TO AVOID TOTAL KIDNEY FAILURE BECAUSE IT HAS CAUSED VASCULITIS AND I AM TO START
RITUXIMAB
NEXT WEEK. I HAVE HAD MY PRED INCREASED TO 40MG A DAY.
eyeBRing
in
PMRGCAuk
7 months ago
2nd Dose of Shingrix - How Long After Rituximab?
Hi everybody as mentioned in an earlier post I had my 1st Shingrix Vaccine yesterday, no worries my Consultant told me no closer than a month before my
Rituximab
, that’s due end of November so job done.
Hi everybody as mentioned in an earlier post I had my 1st Shingrix Vaccine yesterday, no worries my Consultant told me no closer than a month before my
Rituximab
, that’s due end of November so job done.
Investigator1
in
Vasculitis UK
6 months ago
Why did my infusions get stopped?
I’ve had several
Rituximab
infusions, usually every 9 months to a year apart; the last one was in 2021. In 2022 I was informed that
Rituximab
would be replaced by Rituxithon ( I hope that’s right) as its cheaper. I haven’t got a problem with this.
I’ve had several
Rituximab
infusions, usually every 9 months to a year apart; the last one was in 2021. In 2022 I was informed that
Rituximab
would be replaced by Rituxithon ( I hope that’s right) as its cheaper. I haven’t got a problem with this.
SwimmerBTC
in
NRAS
3 months ago
CNS Symptoms and Advice
When I started
rituximab
7 ish years ago I remember being disappointed as it took a good year or so for things to improve but then my main problem was peripheral nerve damage, with autonomic involvement .
When I started
rituximab
7 ish years ago I remember being disappointed as it took a good year or so for things to improve but then my main problem was peripheral nerve damage, with autonomic involvement .
Galaxy2
in
Vasculitis UK
4 months ago
Help with rehab at home after acute phase of autoimmune encephalitis for my 16 year old
My daughter received treatment of steroids, IVIG and has just completed her second dose of
Rituximab
.
My daughter received treatment of steroids, IVIG and has just completed her second dose of
Rituximab
.
Cat29red
in
Encephalitis Society
1 month ago
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