Rituximab experience?

[Kafkaontheshore]

Hi all. I have had large vessel vasculitis for over three years which, despite several different treatments, is proving difficult to control. An FDG PET CT scan last November showed some inflammation in all areas of my aorta still. I have just started Rituximab infusions. This has made me feel even more fatigued and weak. Just hope it helps in the longer term. Does anyone have experience of this treatment? If so did you tolerate it ok? How did things work out for you? Thanks in advance 😀

[DorsetLady PMRGCAuk volunteer]

You might get more answers on the vasculitis or the NRAS forums.. drug seems to get more of a mention on both of those -

healthunlocked.com/vasculit...

healthunlocked.com/nras

[Kafkaontheshore in reply to DorsetLady]

Thanks will do 👍

[PMRpro Ambassador]

As DL says - try the Vasculitis forum, Rituximab is used for other forms of vasculitis. And I think there are some on it on the LupusUK forum.

[Kafkaontheshore in reply to PMRpro]

Thanks again