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PEP for asthma
Due to being immunocompromised …on
Rituximab
infusion. I keep getting the same chest infection. Had three lots of antibiotics over 4 weeks. I was considering buying a PEP to try and keep my chest clear. Has anyone any advice on which to buy please? TIA
Due to being immunocompromised …on
Rituximab
infusion. I keep getting the same chest infection. Had three lots of antibiotics over 4 weeks. I was considering buying a PEP to try and keep my chest clear. Has anyone any advice on which to buy please? TIA
Evie3
in
Asthma Community Forum
4 months ago
Covid Vaccines - Update
Hi All I’ve been trying to find out when we’re next due a vaccine as I’m also due another dose of
rituximab
and was hoping to get it done first. Just seen an update on the NHS website , immune suppressed will be offered from April.
Hi All I’ve been trying to find out when we’re next due a vaccine as I’m also due another dose of
rituximab
and was hoping to get it done first. Just seen an update on the NHS website , immune suppressed will be offered from April.
Galaxy2
in
Vasculitis UK
5 months ago
Inflammation and mood
For me the first sign that my
rituximab
needs to be renewed is feeling low, a malaise. Happy to hear this is being taken seriously by medics. My rheumy is puzzled but says that as I've had RA since 1999 i know it better than anyone.
For me the first sign that my
rituximab
needs to be renewed is feeling low, a malaise. Happy to hear this is being taken seriously by medics. My rheumy is puzzled but says that as I've had RA since 1999 i know it better than anyone.
cathie
in
NRAS
2 months ago
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Rituximab and hair loss
Hello, I've just had my first two doses of
Rituximab
in February, and I've been noticing more hair loss when I wash my hair. Has anyone had this, and do you have any remedies? I have fine hair too. I'm on a mix of methotrexate, prednisolone and hydroxychloroquine. Many thanks!
Hello, I've just had my first two doses of
Rituximab
in February, and I've been noticing more hair loss when I wash my hair. Has anyone had this, and do you have any remedies? I have fine hair too. I'm on a mix of methotrexate, prednisolone and hydroxychloroquine. Many thanks!
poppies_are_red
in
LUPUS UK
5 months ago
Rituximab infusion tomorrow !!
But I have my first
rituximab
infusion tomorrow, I was wondering if anyone had any tips logistics-wise. Also, do they expect you to lie still for 6 hours and can you go to the bathroom? I figured I'd bring lunch, a jacket, a book, or a sketchbook and listen to music.
But I have my first
rituximab
infusion tomorrow, I was wondering if anyone had any tips logistics-wise. Also, do they expect you to lie still for 6 hours and can you go to the bathroom? I figured I'd bring lunch, a jacket, a book, or a sketchbook and listen to music.
poppies_are_red
in
LUPUS UK
6 months ago
Weakness
Hello,I've had rheumatoid arthritis 28 years been on different drugs over years ,I have been methotrexate 25mg weekly for years folic acid I've been on
rituximab
every 6 months first course then 2 weeks later 2nd course for 4 year ,I'm starting to feel very weak I'm normally won't let it beat me ,I feel
Hello,I've had rheumatoid arthritis 28 years been on different drugs over years ,I have been methotrexate 25mg weekly for years folic acid I've been on
rituximab
every 6 months first course then 2 weeks later 2nd course for 4 year ,I'm starting to feel very weak I'm normally won't let it beat me ,I feel
Justlucy
in
NRAS
4 months ago
Contact with child vaccinated against chicken pox
Got next
rituximab
in August 🤞 I have not seen my great niece for quite some time and had hoped to visit her as she is growing fast. I am told she has been vaccinated against chicken pox starting in March. As it is a live vaccine I was unsure if I should visit.
Got next
rituximab
in August 🤞 I have not seen my great niece for quite some time and had hoped to visit her as she is growing fast. I am told she has been vaccinated against chicken pox starting in March. As it is a live vaccine I was unsure if I should visit.
lollypocket
in
Vasculitis UK
1 month ago
Wendy
My husband was diagnosed in 2010 at the age of 40. 2013 he had FCR. 11 years later, he is in week 5 of venteclax,
Rituximab
to follow next month. Swollen lymph nodes have disappeared.
My husband was diagnosed in 2010 at the age of 40. 2013 he had FCR. 11 years later, he is in week 5 of venteclax,
Rituximab
to follow next month. Swollen lymph nodes have disappeared.
Fluxthecat10
in
CLL Support
3 months ago
Month 21 of 24 Rituximab and Venetoclax
I'm doing well with this treatment CLL wise with all bloods within normal range. Antibody levels are however below being of much use.Past 10 weeks I've had chronic diarrhoea with stool tests coming up negative. Blood tests all negative including C diff. I've been advised to stop Venetoclax for 2 weeks
I'm doing well with this treatment CLL wise with all bloods within normal range. Antibody levels are however below being of much use.Past 10 weeks I've had chronic diarrhoea with stool tests coming up negative. Blood tests all negative including C diff. I've been advised to stop Venetoclax for 2 weeks
Fastbike14
in
CLL Support
1 month ago
Selbourn
Two weeks ago I was given, what the Rummy called a maintenance dose, of
Rituximab
and of course 125mg of prednisone first. All good apart from little sleep after the Pred! But now OK but very tired all the time could be the ANCA or the meds who knows.
Two weeks ago I was given, what the Rummy called a maintenance dose, of
Rituximab
and of course 125mg of prednisone first. All good apart from little sleep after the Pred! But now OK but very tired all the time could be the ANCA or the meds who knows.
Selbourn
in
Vasculitis UK
5 months ago
Methotrexate and Prednisolone GPA
I have been told
Rituximab
not suitable for me. GPA symptoms are currently under control, have not been able to get below 5mg of pred without symptoms coming back. Recently I am having a hard time at work, making mistakes and working very slowly.
I have been told
Rituximab
not suitable for me. GPA symptoms are currently under control, have not been able to get below 5mg of pred without symptoms coming back. Recently I am having a hard time at work, making mistakes and working very slowly.
Wyllow
in
Vasculitis UK
2 months ago
Rituximab - any advice?
At my rheumatology appointment yesterday my consultant came to the conclusion that amgevita has not worked for me and we agreed I would stop that and start
Rituximab
. Has this worked well for others? I understand that this is given by infusion every 6 months and wondered how people found that?
At my rheumatology appointment yesterday my consultant came to the conclusion that amgevita has not worked for me and we agreed I would stop that and start
Rituximab
. Has this worked well for others? I understand that this is given by infusion every 6 months and wondered how people found that?
Bookworm55
in
NRAS
6 months ago
Rituximab
does anyone have any advice about the effect of the COVID vaccine on
Rituximab
. I had my first infusion in July which has been successful for me and given me a pain free life. So don’t want to ‘mess it up by risking Covid vaccine if it has a negative effect. thanks
does anyone have any advice about the effect of the COVID vaccine on
Rituximab
. I had my first infusion in July which has been successful for me and given me a pain free life. So don’t want to ‘mess it up by risking Covid vaccine if it has a negative effect. thanks
Welshwomanprestatyn
in
NRAS
8 months ago
Measles outbreak
I'm on
rituximab
, azathioprine and prednisolone. I'm up-to-date with vaccinations bit concerned about the measles outbreak in my area. Am I at risk due to being immunocompromised?
I'm on
rituximab
, azathioprine and prednisolone. I'm up-to-date with vaccinations bit concerned about the measles outbreak in my area. Am I at risk due to being immunocompromised?
Vqueen
in
Vasculitis UK
6 months ago
anti NMDA encephalitis
He had the steroids, the plasma exchange but it was the
Rituximab
that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have a big support network and appointments with professionals, surprisingly, seem so few and far between.
He had the steroids, the plasma exchange but it was the
Rituximab
that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have a big support network and appointments with professionals, surprisingly, seem so few and far between.
AntiNMDAWarriorWife
in
Headway
4 months ago
Avacopan and Pred
Hi, I had my first
rituximab
infusion last Tuesday. I have been supplied Avacopan, but still have Pred 40mg a day. No one has told me to stop Pred before starting Avacopan. Unsure if I should be stopping dead or finishing up existing tablets/tapering?
Hi, I had my first
rituximab
infusion last Tuesday. I have been supplied Avacopan, but still have Pred 40mg a day. No one has told me to stop Pred before starting Avacopan. Unsure if I should be stopping dead or finishing up existing tablets/tapering?
lollypocket
in
Vasculitis UK
5 months ago
What would you do??
I am currently on the Bruin-321 trial and am on my 3rd cycle of Pirtobrutinib, after a very rough time with Idelalisib +
Rituximab
infusions. They are not financially able to stay in hotels etc. and no other relatives close by. I don't know what I am feeling.
I am currently on the Bruin-321 trial and am on my 3rd cycle of Pirtobrutinib, after a very rough time with Idelalisib +
Rituximab
infusions. They are not financially able to stay in hotels etc. and no other relatives close by. I don't know what I am feeling.
rcusher
in
CLL Support
2 months ago
Abatacept
Good morning, I have been on
Rituximab
for a number of years , but having a really bad side effects now , saw Rhuemy a few weeks ago and she said that I might be switched to Abatacept .
Good morning, I have been on
Rituximab
for a number of years , but having a really bad side effects now , saw Rhuemy a few weeks ago and she said that I might be switched to Abatacept .
Jillyanne
in
NRAS
7 months ago
Gpa chest infection
Already on prednisolone, azathioprine and
rituximab
. Just doesn't seem to be shifting. Any advice on what to do to help fight the infection? Thanks in advance XX
Already on prednisolone, azathioprine and
rituximab
. Just doesn't seem to be shifting. Any advice on what to do to help fight the infection? Thanks in advance XX
Vqueen
in
Vasculitis UK
7 months ago
Help with rehab at home after acute phase of autoimmune encephalitis for my 16 year old
My daughter received treatment of steroids, IVIG and has just completed her second dose of
Rituximab
.
My daughter received treatment of steroids, IVIG and has just completed her second dose of
Rituximab
.
Cat29red
in
Encephalitis International
4 months ago
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