Update.: Apologies for the silence. I have had... - CLL Support

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Update.

Jacksc06 profile image
Jacksc06
β€’61 Replies

Apologies for the silence. I have had quite an eventful few months. My former partner served me with a court order to sell the house which threw me somewhat. That on top of trying to deal with the loss of my mother and stepfather in quick succession sent me down a dark path. I have had counselling and am being treated for depression and anxiety. Things were looking up until 2 weeks ago, I had my shingrix booster and started to feel unwell after 2 days. I contacted my GP and the nurse said that it should subside. The following day I called 111 and the paramedic I spoke to asked me if I could get to A&E as it was likely to be a long wait for an ambulance. I was burning up extremely short of breath and my heart was beating at an extremely fast pace. A friend came to take me and when he saw me said "You are Yellow!!". I was admitted and given 2 pints of blood then a round of Rituximab. I was discharged on Wednesday and have to have 4 more rounds if Rituximab. The diagnosis was Haemolytic anaemia. Feeling weary but ok .Love and strength to all.

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Jacksc06 profile image
Jacksc06
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61 Replies
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ClassyLady3 profile image
ClassyLady3

I am so glad your friend came to take you! I will keep you in my πŸ™ as you recover.

Jacksc06 profile image
Jacksc06β€’ in reply toClassyLady3

Thank you.

Newdawn profile image
NewdawnAdministrator

You’re having a rough time Jack and I hope there’s much better times ahead for you.

Newdawn

Jacksc06 profile image
Jacksc06β€’ in reply toNewdawn

Thank you

Phil4-13 profile image
Phil4-13

Jacksc06, though your news is devastating, I have to comment you sound stronger in mind and spirit through it all. I'm praying for your body to heal and you can feel the new better balance in it. Have the doctors determined you were having a bad reaction to the shingrix shot? My reaction was not as severe as yours, but enough of a scare, I said, "No more!". Surprisingly, my doctors agreed. So I always have the shingles anti viral medicine in my medicine cabinet. My outbreaks have not been as bad as others I've heard of. I'm relieved you're seeing a professional to help you sort through this time. Much love sent to you. 😊Sandra

Jacksc06 profile image
Jacksc06β€’ in reply toPhil4-13

Hi Sandra. Yes it is thought the jab caused it. Very scary time at one point I thought I was done for.

MsChief profile image
MsChiefβ€’ in reply toPhil4-13

You have been strong for a long time, Jackson. This too will pass. Take care of yourself first. Take time to grieve for your parents - the negative issues in your life will resolve going forward. Best to you always.

Spark_Plug profile image
Spark_Plug

Oh Jacksc06, what a deluge of troubles πŸ˜”. I'm sorry that you've lost loved ones. The physical attack must have been a fright.

I can imagine that the housing / financial issue was a gut punch, that will probably resolve (maybe not the way you would like) but you will get past it.

Try to stay as healthy as you can, as the F1 guys say "keep your head down" (emotionally).

There is good coming around for you just ride this rough patch out.πŸ‘

Jacksc06 profile image
Jacksc06β€’ in reply toSpark_Plug

Thank you. Indeed it has been tough but we must preserve.

Ghounds profile image
Ghounds

Oh dear ... a lot going on indeed. I'm sorry for the loss of your mother and stepfather, I'm still trying to get my own mother's estate finalised and it's a stressful process.I hope the counselling helps you and that you recover quickly from the anaemia. πŸ™

Jacksc06 profile image
Jacksc06β€’ in reply toGhounds

Thank you, Sorry for your loss.

Ghounds profile image
Ghoundsβ€’ in reply toJacksc06

Thank you. It's complicated by the fact we were never close.

Thundercat2 profile image
Thundercat2

So sorry to hear this. Life doesn't take it easy on us. Not only health issues but relationship issues and losing loved ones too? That's really rough. It sounds as though you are bending but not breaking. In January of 2022 I wasn't sure I was going to make it either and I did and lived to tell. Hang in there and may there be sunnier days ahead for you.

Jacksc06 profile image
Jacksc06β€’ in reply toThundercat2

Thank you.

Flylikeabird727 profile image
Flylikeabird727

Prayers sent and Hoping for the very best for you. And you can recover soon.πŸ™πŸ™πŸ™

Jacksc06 profile image
Jacksc06β€’ in reply toFlylikeabird727

Many thanks.

RZ8983DV profile image
RZ8983DV

Sorry to hear of the loss of your mother and stepfather and the court order to sell the houseHope you have better times in the future

Jacksc06 profile image
Jacksc06β€’ in reply toRZ8983DV

Thank you. Hope springs eternal.

terryI_uk profile image
terryI_uk

Nice to hear from you jacks, sorry you're having a tough time again. Hope your counselling is helping, God bless, Terry

Jacksc06 profile image
Jacksc06β€’ in reply toterryI_uk

Thank you Terry. Counselling is going well.

Michaeljohn50 profile image
Michaeljohn50

Very sorry to read about your latest round of bad news. "Just when you thought it couldn't get any worse" etc would floor most people, but not you. You have demonstrated very unusual strength and resilience over the last few years, However, you have most probably asked "why me ?* countless times. Good karma will come around, you deserve it.

You have taken the key step of seeking help, you are strong. you will get through it all. There is an ocean of goodwill out there and particularly in this group. Hang on in.

Very best wishes, Michael

Jacksc06 profile image
Jacksc06β€’ in reply toMichaeljohn50

Thank you Michael.

Walkingtall62 profile image
Walkingtall62

oh Jack, this is awful. Sending on as much strength and love that will fit through your computer. Sometimes I wonder where my own words come fromπŸ™‚

Jacksc06 profile image
Jacksc06β€’ in reply toWalkingtall62

Thank you. It has indeed been awful. Looking forward to better times.

opal11uk profile image
opal11uk

Sending my very best wishes for your recovery and hopefully a brighter future x

Jacksc06 profile image
Jacksc06β€’ in reply toopal11uk

Thank you.

kathymac5252 profile image
kathymac5252

Sending healing energy your way. In body and mind from America

Jacksc06 profile image
Jacksc06β€’ in reply tokathymac5252

Thank you.

Nana1961 profile image
Nana1961

sending prayers for you!

Jacksc06 profile image
Jacksc06β€’ in reply toNana1961

Thank you.

Islandvibes profile image
Islandvibes

sounds very scary. Glad your out of hospital and getting txc

Jacksc06 profile image
Jacksc06β€’ in reply toIslandvibes

Many thanks.

CLLCalifornia-USA profile image
CLLCalifornia-USA

Jack, thanks for the update. It’s difficult to lose parents, but your home also must have been devastating. So glad you have found a good counselor to help navigate these tough times. You have been through the hardest times and always come back stronger. Continue moving forward and know we are here for you. πŸ™Sally

Jacksc06 profile image
Jacksc06β€’ in reply toCLLCalifornia-USA

Thank you Sally.

LeoPa profile image
LeoPa

Was the HA triggered by the vaccine?

Jacksc06 profile image
Jacksc06

My haematologist thinks so. He said even non live vaccines can have trace elements and he had patients that reacted the sane from the covid jab.

spi3 profile image
spi3

So sorry in what you are going through- when life is at its toughest - you need to take care of you - what I do to calm my anxiety is to walk and pray -- you will be in my prayers

Jacksc06 profile image
Jacksc06β€’ in reply tospi3

Thank you.

Smakwater profile image
Smakwater

Sharks are always in the water. Stay in the boat, stay afloat Jack, good weather comes after the storm.

I've been told that "Calm seas don't make a sailor".

I knowπŸ‘€ I didn't wanna grow up to be a sailor either! it just happened.

JM

Jacksc06 profile image
Jacksc06β€’ in reply toSmakwater

Thanks. Very true.

Bornagain514 profile image
Bornagain514

Jack

I am so sorry for all your recent loss. Take care of yourself as best you can so you can be a blessing to others. You have much to offer!

Blessings,

Bornagain

Jacksc06 profile image
Jacksc06β€’ in reply toBornagain514

Thank you.

Basil01 profile image
Basil01

I'm really sorry for the loss of your loved ones Jack. You've had to deal with some very unpleasant turns. I hope that things start to change for the better. Be kind to yourself and I hope every day finds you stronger. X

Jacksc06 profile image
Jacksc06β€’ in reply toBasil01

Thank you.

DianeSH profile image
DianeSH

I am so sorry for all your loss and problems. I know what it feels like to be snowed under or plowed over....I am just coming out of a few hard months but nothing like yours.....I have to be a bit self-centered though as I met with the specialist yesterday and he was very high on me getting the shingles shot.....I have only heard bad things about the reactions and am not looking forward to it...Hang in there..hopefully the worst is over for you

Jacksc06 profile image
Jacksc06β€’ in reply toDianeSH

Thank you. If you get ANY reaction play it safe and seek medical advice.

DianeSH profile image
DianeSHβ€’ in reply toJacksc06

thank you....I will do that....should I wait until I know which oncologist I will be using?

Jacksc06 profile image
Jacksc06β€’ in reply toDianeSH

I would ask your health care team for advice prior to the vaccination.

Eedew profile image
Eedew

Thankful your friend was there for you. Glad to hear things are better πŸ’™

Jacksc06 profile image
Jacksc06β€’ in reply toEedew

Thank you. Yes he was a godsend.

CycleWonder profile image
CycleWonder

Jacksc06 - It is very nice to hear from you even if your experiences have not been on the positive side. I am pleased you are seeing a counselor. I talk with mine every other week and I always lots to discuss.

Please post when you are able so we can be supportive of your health journey and how you are doing in any aspect you are open to sharing. I hope you have some certainty in your housing situation soon.

Jacksc06 profile image
Jacksc06β€’ in reply toCycleWonder

Many thanks.

chif888 profile image
chif888

Hello Jack, sorry for your hard time. Please note that the brighter days are coming, really soon. My bet is tomorrow.

Jacksc06 profile image
Jacksc06β€’ in reply tochif888

Many thanks.

Danie50 profile image
Danie50

😱omg ! Yes that's a lot ! I hope you are feeling better !

Jacksc06 profile image
Jacksc06β€’ in reply toDanie50

Getting there thanks.

Silvafoxe profile image
Silvafoxe

OMG you have had quite an uphill climb but you made it through and praying that you will continue getting better. Sorry to hear about your losses.

Jacksc06 profile image
Jacksc06β€’ in reply toSilvafoxe

Many thanks.

debdetermine58 profile image
debdetermine58

Feel betterπŸ˜‡πŸ™β€οΈ

Jacksc06 profile image
Jacksc06β€’ in reply todebdetermine58

Thank you.

skipro profile image
skipro

Wow that's a lot!

πŸ™πŸ™πŸ™πŸ™πŸ™πŸ™πŸ™

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