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Revesz syndrome
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Duloxetine no no....!
Well, I tried it and really didn't realise how depressed and anxious it made me until my husband mentioned it! I stuck with it for 3 weeks and that was it. I phoned the hospital and they noted yet another medication I've had a bad reaction to. The trouble is that the anxiety has hung on to the point
Well, I tried it and really didn't realise how depressed and anxious it made me until my husband mentioned it! I stuck with it for 3 weeks and that was it. I phoned the hospital and they noted yet another medication I've had a bad reaction to. The trouble is that the anxiety has hung on to the point
Blackwitch
in
Fibromyalgia Action UK
6 years ago
Should I mentally prepare for the possibility..?
Hello all. I’ve had elevated liver enzymes for some time together with some numb pain on my right side. When hungry especially. Since I’ve never had a family doctor, doctors just seem to raise their eyebrows at my results but then move right along to whatever reason I was there for (I’ve never gone for
Hello all. I’ve had elevated liver enzymes for some time together with some numb pain on my right side. When hungry especially. Since I’ve never had a family doctor, doctors just seem to raise their eyebrows at my results but then move right along to whatever reason I was there for (I’ve never gone for
MeN18
in
PBC Foundation
6 years ago
Leg jerks
Has anybody experienced leg jerks or torso jerks while being on lyrica? I have constant almost unstoppable jerks which make me mad!It feels like an electrode is hitting me!These jerks give me pain at my lower left leg.I could also describe them as tics.
Has anybody experienced leg jerks or torso jerks while being on lyrica? I have constant almost unstoppable jerks which make me mad!It feels like an electrode is hitting me!These jerks give me pain at my lower left leg.I could also describe them as tics.
Katerina22
in
Restless Legs Syndrome
6 years ago
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Sertraline,Tibilone Decapeptyl
Hi all I’m currently on my 6th month of decapeptyl and have been taking Tibilone alongside it for 3 months. My Dr has agreed to give me it for a year while I’m on the waiting list for surgery (triple discipline bowel,bladder and gynae so long wait list) and my pain is much improved however my mood
Hi all I’m currently on my 6th month of decapeptyl and have been taking Tibilone alongside it for 3 months. My Dr has agreed to give me it for a year while I’m on the waiting list for surgery (triple discipline bowel,bladder and gynae so long wait list) and my pain is much improved however my mood
GemParki
in
Endometriosis UK
6 years ago
Do I have Sjogrens ??
Symptoms so many !! Multiple positive ANA'S, severe paraesthesia (skin), extreme dry eyes, mouth, skin...Been going on now since January. Saw a Rheumatologist, blood work... She's uncertain ! Saw Neurologist...Had EME'S for Peripheral Neuropathy... results are negative ‼️Now back to Rheumatologist on
Symptoms so many !! Multiple positive ANA'S, severe paraesthesia (skin), extreme dry eyes, mouth, skin...Been going on now since January. Saw a Rheumatologist, blood work... She's uncertain ! Saw Neurologist...Had EME'S for Peripheral Neuropathy... results are negative ‼️Now back to Rheumatologist on
Bettyboop71345
in
The Australian Sjögren's Syndrome Association
6 years ago
Desperately needing advice please
Following down reg on buserelin I went for a scan today. It’s day 2 of my period and I was expecting them to say that my lining is nice and thin and I’m ready to start stimulation. Instead I was confronted with a huge black blob on the screen. They have found a cyst on my right side. It was so big that
Following down reg on buserelin I went for a scan today. It’s day 2 of my period and I was expecting them to say that my lining is nice and thin and I’m ready to start stimulation. Instead I was confronted with a huge black blob on the screen. They have found a cyst on my right side. It was so big that
Rainbowhope
in
Fertility Network UK
6 years ago
Throat issues
Hi all, I have Raynauld's and scleroderma having all the symptoms of CREST with muscle involvement of the oesophagus. I have had manometry tests which show the muscles of the oesophagus are affected Recently I have been experiencing a feeling of having lump in my throat around the Adams apple area making
Hi all, I have Raynauld's and scleroderma having all the symptoms of CREST with muscle involvement of the oesophagus. I have had manometry tests which show the muscles of the oesophagus are affected Recently I have been experiencing a feeling of having lump in my throat around the Adams apple area making
newton
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Spotting during pregnancy
I am currently 7 weeks pregnant and last week I started spotting. The spotting increases after a bowel movement. I went to the doctor thinking a miscarriage, but the baby showed a heartbeat. They put me on bedrest until I return to the doctor this Wednesday. The spotting still continues. It’s a dark
I am currently 7 weeks pregnant and last week I started spotting. The spotting increases after a bowel movement. I went to the doctor thinking a miscarriage, but the baby showed a heartbeat. They put me on bedrest until I return to the doctor this Wednesday. The spotting still continues. It’s a dark
Mandeelee19
in
Pregnancy and Parenting Support
6 years ago
Update on my twin pregnancy
Not sure if anyone remembers but in November I was lucky enough to find out I was pregnant after my 5th ivf attempt, with twins. On the 14th February I found out they were both boys. Which would mean that I would have 3 gorgeous boys. In April I went into early labour at only 26 weeks pregnant. The
Not sure if anyone remembers but in November I was lucky enough to find out I was pregnant after my 5th ivf attempt, with twins. On the 14th February I found out they were both boys. Which would mean that I would have 3 gorgeous boys. In April I went into early labour at only 26 weeks pregnant. The
Bobenhams3
in
Fertility Network UK
6 years ago
Warning - 12 Week Scan - Very Thankful
Hello ladies, We had our 12 week scan on Tuesday but I wanted to wait until our Nifty results were in too before I posted - not wanting to tempt fate and all that! All chromosome conditions have come back as low risk and the scan showed that all is well with the baby. After losing our first baby to
Hello ladies, We had our 12 week scan on Tuesday but I wanted to wait until our Nifty results were in too before I posted - not wanting to tempt fate and all that! All chromosome conditions have come back as low risk and the scan showed that all is well with the baby. After losing our first baby to
precioce
in
Fertility Network UK
6 years ago
Dopamine Agonist doses - the new maximum
From Buchfuhrer, Mark J., Strategies for the Treatment of Restless Legs Syndrome; Neurotherapeutics (2012) 9:776-790 Both of these drugs should be started at their lowest dose (ropinirole at 0.25 mg and pramipexole at 0.125 mg) and increased if necessary every 5 to 7 days by their initial dose until
From Buchfuhrer, Mark J., Strategies for the Treatment of Restless Legs Syndrome; Neurotherapeutics (2012) 9:776-790 Both of these drugs should be started at their lowest dose (ropinirole at 0.25 mg and pramipexole at 0.125 mg) and increased if necessary every 5 to 7 days by their initial dose until
involuntarydancer
in
Restless Legs Syndrome
6 years ago
Anyone else with other painful conditions?
I was diagnosed with EDS Hypermobility a few years ago. I have a partial subluxation in my neck, lordosis and generally wobbly joints. Only problem is, I've recently been told I likely have Rheumatic Fever. I'm waiting to see an infectious disease specialist and cardiologist. The thing is, I never
I was diagnosed with EDS Hypermobility a few years ago. I have a partial subluxation in my neck, lordosis and generally wobbly joints. Only problem is, I've recently been told I likely have Rheumatic Fever. I'm waiting to see an infectious disease specialist and cardiologist. The thing is, I never
lily82
in
Ehlers-Danlos Support UK
6 years ago
Help to find a nottingham rheumatologist with EDS interest
Hi there ,Im 24 and have been looking for a EDS specialist rheumatologist in Nottingham so that the type of my EDS can be fully determined . I was wondering if anyone has any advice on a specific Rheumatologist local to my area. I'm finding it hard to cope with daily life at this point in time my back
Hi there ,Im 24 and have been looking for a EDS specialist rheumatologist in Nottingham so that the type of my EDS can be fully determined . I was wondering if anyone has any advice on a specific Rheumatologist local to my area. I'm finding it hard to cope with daily life at this point in time my back
Daniellak
in
Ehlers-Danlos Support UK
6 years ago
Just curious
After many, many hours and days on end without sleep, I finally found a certified sleep medicine physician that really listened to me. Here is the drug regime he put me on: 1 neupro patch every 24 hrs. plus Horizant with the patch. Somehow they work together. Clonazepam (1 1mg tablet 3 times a day)
After many, many hours and days on end without sleep, I finally found a certified sleep medicine physician that really listened to me. Here is the drug regime he put me on: 1 neupro patch every 24 hrs. plus Horizant with the patch. Somehow they work together. Clonazepam (1 1mg tablet 3 times a day)
Keitha
in
Restless Legs Syndrome
6 years ago
Child with HEDS
My 13 year old daughter has EDS, very hypermobile, suffers from headaches, aches and pains, partial joint dislocations, food allergies, low blood pressure/dizzy spells (probably undiagnosed POTS). She also has long slender fingers (she is average height and and looks normal) bruises easily, stretchy
My 13 year old daughter has EDS, very hypermobile, suffers from headaches, aches and pains, partial joint dislocations, food allergies, low blood pressure/dizzy spells (probably undiagnosed POTS). She also has long slender fingers (she is average height and and looks normal) bruises easily, stretchy
bex68
in
Ehlers-Danlos Support UK
6 years ago
Blood test
Hi all. Good morning, just wondering if any of you have had blood results of Connective Tissue Disease & what did your consultants say about the findings? My docs think Sjogren's & Lupus disease, but it's early days. Look forward to hearing from you x
Hi all. Good morning, just wondering if any of you have had blood results of Connective Tissue Disease & what did your consultants say about the findings? My docs think Sjogren's & Lupus disease, but it's early days. Look forward to hearing from you x
Angellealea1
in
LUPUS UK
6 years ago
What blood tests do i need?
I was diagnosed with post partum Thyroiditis and would like to know which blood tests I need to get checked tomorrow. Thanks!
I was diagnosed with post partum Thyroiditis and would like to know which blood tests I need to get checked tomorrow. Thanks!
Wgriffy
in
Thyroid UK
6 years ago
Reassuring all the ladies with zero symptoms
Currently 8 weeks and 4 days pregnant with zero symptoms. Up until a week ago the only symptom I had was ever so slightly sore boobs off and on every few days and now nothing. I’m having scans every 5 days or so because of my history but baby is looking good with a strong heartbeat. After 6 pregnancy
Currently 8 weeks and 4 days pregnant with zero symptoms. Up until a week ago the only symptom I had was ever so slightly sore boobs off and on every few days and now nothing. I’m having scans every 5 days or so because of my history but baby is looking good with a strong heartbeat. After 6 pregnancy
Hidden
in
Fertility Network UK
6 years ago
Relapsing polychondritis
Hello, everyone. I was diagnosed with MPA ten years ago and have recently had a nasty flare which has been treated with Rituximab but this time does not seem to be working too well. I have had a very inflamed outer ear ( the pinna) which has been itchy and developed nodules along the edge of it. Did
Hello, everyone. I was diagnosed with MPA ten years ago and have recently had a nasty flare which has been treated with Rituximab but this time does not seem to be working too well. I have had a very inflamed outer ear ( the pinna) which has been itchy and developed nodules along the edge of it. Did
trebar
in
Vasculitis UK
6 years ago
Follow up appointment
Hi all you lovelies. I have my first follow up appointment with my clinic following my miscarriage this week. Just wondering what u think I could expect and what questions u feel I could ask maybe? Am fortunate (in some ways) that I have had one period and have ovulated since so hopefully that good
Hi all you lovelies. I have my first follow up appointment with my clinic following my miscarriage this week. Just wondering what u think I could expect and what questions u feel I could ask maybe? Am fortunate (in some ways) that I have had one period and have ovulated since so hopefully that good
Dreamingofbaby
in
Fertility Network UK
6 years ago
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