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Lip biopsy results
Hi. I had a lip biopsy 3 weeks ago. Rheumatologist feels I've sjogrens but I'm serum neg. I have had dry eyes +mouth, mouth ulcers, sore swollen glands under my jaw, sore ears,sore joints in hands and feet and ankles and wrists,weakness in lower legs and arms , awful fatigue and restless legs. I have
Hi. I had a lip biopsy 3 weeks ago. Rheumatologist feels I've sjogrens but I'm serum neg. I have had dry eyes +mouth, mouth ulcers, sore swollen glands under my jaw, sore ears,sore joints in hands and feet and ankles and wrists,weakness in lower legs and arms , awful fatigue and restless legs. I have
Nellies47
in
The Australian Sjögren's Syndrome Association
3 years ago
Where do I go from here?
Hi everyone, this is my 1st post for which I will apologise for in advance….it’s going to be a long one. Everything started for me in December with severe pain in my right side and under my right rib cage. After several visits to A&E the pain was being looked at as gallbladder issues, however after numerous
Hi everyone, this is my 1st post for which I will apologise for in advance….it’s going to be a long one. Everything started for me in December with severe pain in my right side and under my right rib cage. After several visits to A&E the pain was being looked at as gallbladder issues, however after numerous
Reemy
in
Thyroid UK
3 years ago
Pain relief
Hi can anyone say what type of painkillers they use to help with polymyalgia. Thanks
Hi can anyone say what type of painkillers they use to help with polymyalgia. Thanks
Uglow
in
PMRGCAuk
3 years ago
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Sore mouth syndrome
My 83 yrs mother had a heart attack 2 years ago and ever since has been suffering from an extremely sore mouth that is relentless. She has been waiting 13 months for her referral, I am thinking it’s sore mouth syndrome. Does anybody have any advice please.
My 83 yrs mother had a heart attack 2 years ago and ever since has been suffering from an extremely sore mouth that is relentless. She has been waiting 13 months for her referral, I am thinking it’s sore mouth syndrome. Does anybody have any advice please.
Yerr
in
Pernicious Anaemia Society
3 years ago
Is this normal?
Hey everyone. My doctor has said after speaking with a gynaecologist that I have endo - I haven’t had a scan and finding it impossible to get one. I’ve been in agony for two weeks now, started during my period and still here afterwards - at first the pain was in the middle and now it’s moved to the right
Hey everyone. My doctor has said after speaking with a gynaecologist that I have endo - I haven’t had a scan and finding it impossible to get one. I’ve been in agony for two weeks now, started during my period and still here afterwards - at first the pain was in the middle and now it’s moved to the right
abbiecx_
in
Endometriosis UK
3 years ago
Flare or not
I reduced prednisone on 2/11 now 11:11 and my hips don’t lie lol I’m not sure if I’m having a flare or just in pain. But painkillers not shifting. I hate the idea of going up on pred again but will follow your advice. 14to 13 mg It’s really restricted my walking. Thank you folks
I reduced prednisone on 2/11 now 11:11 and my hips don’t lie lol I’m not sure if I’m having a flare or just in pain. But painkillers not shifting. I hate the idea of going up on pred again but will follow your advice. 14to 13 mg It’s really restricted my walking. Thank you folks
Uglow
in
PMRGCAuk
3 years ago
Pain advice
Hey guys Any advice on pain killers to take or any sort of therapy to relief pain n stiffness in top of back neck and shoulders
Hey guys Any advice on pain killers to take or any sort of therapy to relief pain n stiffness in top of back neck and shoulders
Chocolate-lady
in
Fibromyalgia Action UK
3 years ago
Temperature during Endo flare
Hi all, I am hoping that someone is awake and more knowledgeable than me about this. Today my flare up has well and truly arrived, I have had a worse build up in respect of migraines disturbing vision, nausea and muscular pain from my neck all down my back and now tonight the pain is really awful, I
Hi all, I am hoping that someone is awake and more knowledgeable than me about this. Today my flare up has well and truly arrived, I have had a worse build up in respect of migraines disturbing vision, nausea and muscular pain from my neck all down my back and now tonight the pain is really awful, I
HolsBamboozledwomb
in
Endometriosis UK
3 years ago
Insane lower back, buttock
Hi. From 3 nights ago, I was perfectly fine, I did some cleaning up about 4 hours before bed and layed on my back watching something on my phone, had to go toilet and realized severe lower pack pain that seems to be affecting both sides but mostly left side. I don't have any other symptoms or problems
Hi. From 3 nights ago, I was perfectly fine, I did some cleaning up about 4 hours before bed and layed on my back watching something on my phone, had to go toilet and realized severe lower pack pain that seems to be affecting both sides but mostly left side. I don't have any other symptoms or problems
Marot
in
Pain Concern
3 years ago
Bit of a setback after last chemo
Last chemo was on Friday October 29th. Usual after effects - i.e. OK Friday and Saturday up to the evening; not too bad Sunday until the afternoon. As usual started to feel yukky and went to bed. Had a bit of cornflakes Monday morning and then nothing and off to bed again. Taking anti sickness pills
Last chemo was on Friday October 29th. Usual after effects - i.e. OK Friday and Saturday up to the evening; not too bad Sunday until the afternoon. As usual started to feel yukky and went to bed. Had a bit of cornflakes Monday morning and then nothing and off to bed again. Taking anti sickness pills
magstherunner
in
The Roy Castle Lung Cancer Foundation
3 years ago
Should I be worried?
Hi all, So im new here but I have a few concerns that I was hoping to get some clarification on, so here goes……. Some time ago i was taken to hospital with a suspected PE (blood clot), I had some scans done and thankfully no blood clot was found. A few weeks later and I was looking over my medical records
Hi all, So im new here but I have a few concerns that I was hoping to get some clarification on, so here goes……. Some time ago i was taken to hospital with a suspected PE (blood clot), I had some scans done and thankfully no blood clot was found. A few weeks later and I was looking over my medical records
MRSB18
in
HFI Connect - Hepatitis
3 years ago
HV88 Virus
Post liver transplant 3 years. Recently diagnosed with HV88 virus which I carried pre transplant but didn't know. Thankfully copies are low and now on 1mg of Sirolimus to keep copies low Taking 0.5 Advagraf now as LFT's are still excellent and all well within range and the reduction has helped renal
Post liver transplant 3 years. Recently diagnosed with HV88 virus which I carried pre transplant but didn't know. Thankfully copies are low and now on 1mg of Sirolimus to keep copies low Taking 0.5 Advagraf now as LFT's are still excellent and all well within range and the reduction has helped renal
Geordiemac
in
British Liver Trust
3 years ago
Anyone’s gfr from their labs differ from gfr calculators?
My labs show a different gfr than what the calculators show. Is it bc there’s other blood related factors that get equated? Bc my creatinine has remained at 1.10 and bun 20 for over 10 years but over the years my blood labs show my gfr going from 96-70 in about 10 years. Note I didn’t get labs done
My labs show a different gfr than what the calculators show. Is it bc there’s other blood related factors that get equated? Bc my creatinine has remained at 1.10 and bun 20 for over 10 years but over the years my blood labs show my gfr going from 96-70 in about 10 years. Note I didn’t get labs done
FThomp
in
Early CKD Support
3 years ago
Endometriosis, adhesions and struggling to work.
Hi everyone, I’ve been off work sick for the last week with constant abdominal and lower back pain made worse when sitting. I suffer with my bowels and long periods and have spent the past two years trying different ways of resolving my issues. My job involves me spending hours on the phone so no alternative
Hi everyone, I’ve been off work sick for the last week with constant abdominal and lower back pain made worse when sitting. I suffer with my bowels and long periods and have spent the past two years trying different ways of resolving my issues. My job involves me spending hours on the phone so no alternative
Las20
in
Endometriosis UK
3 years ago
Castle Walt Disney designed the castle he built at Disney Land. This castle welcomes you to the outskirts of the diamond village of Toledo.
My name is Anna, I was officially diagnosed by BMB of a Myeloproliferative Neoplasm, Essential Thrombocytosis in December 2011. I have been aware of the condition due to the consistently high platelets counts since I got a DVT while travelling in 1999. I have also been informed over the years and
My name is Anna, I was officially diagnosed by BMB of a Myeloproliferative Neoplasm, Essential Thrombocytosis in December 2011. I have been aware of the condition due to the consistently high platelets counts since I got a DVT while travelling in 1999. I have also been informed over the years and
Gordito
in
MPN Voice
3 years ago
GP rant🥲
I had to se my GP following receiving a letter from my neurologist advising about the MSA & medication will be needed to be prescribed by them. It was 10 mins I won’t forget, he read the letter and then said ‘ I don’t know why they send you a copy, so misleading ‘probable’ might mean you don’t have
I had to se my GP following receiving a letter from my neurologist advising about the MSA & medication will be needed to be prescribed by them. It was 10 mins I won’t forget, he read the letter and then said ‘ I don’t know why they send you a copy, so misleading ‘probable’ might mean you don’t have
Bizzyissy
in
Multiple System Atrophy Trust
3 years ago
Mysterious chest pain
Hoping for someone experiencing similar issues. I have had excruciating upper left chest pain for over 5 weeks. My Gp has sent me to a and e twice because the symptoms match a heart attack. ECG bloods and chest X-ray all normal. Diagnosed first with Costochondritis and then Bornholm disease. No painkillers
Hoping for someone experiencing similar issues. I have had excruciating upper left chest pain for over 5 weeks. My Gp has sent me to a and e twice because the symptoms match a heart attack. ECG bloods and chest X-ray all normal. Diagnosed first with Costochondritis and then Bornholm disease. No painkillers
Ponkysue
in
Thyroid UK
3 years ago
LIDOCAINE 5% PAIN PATCHES
My sister-in-law has these patches for her back pain (she has a steel rod for a back), and one day at her house she gave me a few for my muscle spasms and nerve pain. They are miracle workers! I asked my doctor for a prescription. He said FDA only recognized them for permanent Shingle nerve pain. My
My sister-in-law has these patches for her back pain (she has a steel rod for a back), and one day at her house she gave me a few for my muscle spasms and nerve pain. They are miracle workers! I asked my doctor for a prescription. He said FDA only recognized them for permanent Shingle nerve pain. My
agapepilgrim
in
My MSAA Community
3 years ago
Abdominal pain with gas, bloating and foul body odor
Along with that, I have slight
rectal
pain
possibly because of constant passing of gas . Body odor is very strong (leaky gas) and gets difficult to meet people and go out. I had colonoscopy, SIBO tests, endoscopy, been on various anti-depressants, but nothing worked. Anyone has these symptoms?
Along with that, I have slight
rectal
pain
possibly because of constant passing of gas . Body odor is very strong (leaky gas) and gets difficult to meet people and go out. I had colonoscopy, SIBO tests, endoscopy, been on various anti-depressants, but nothing worked. Anyone has these symptoms?
Lsgv100
in
IBS Network
3 years ago
Painkillers?
Hi. Feel a bit of a fraud as after reading on here, I am def not as bad as others..sorry...however I constantly have pain in my lower back, my legs and hips ache if i stand/sit for any length of time, I regularly have throbbing pain in my shins- even lying in bed in the middle of the night. I have a
Hi. Feel a bit of a fraud as after reading on here, I am def not as bad as others..sorry...however I constantly have pain in my lower back, my legs and hips ache if i stand/sit for any length of time, I regularly have throbbing pain in my shins- even lying in bed in the middle of the night. I have a
Kaytlou
in
Fibromyalgia Action UK
3 years ago
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