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Real Nervous about Genomic Resuits, What type of Physician do I go to in NY who Specializes in Mutations w/ Advanced Prostate Cancer?
Had my prostate removed and had another round of Germline mainly Genomics testing done… Gleason 8/9 Stage 4 Grade 5 : 4+5=9 ypT3a Firmagon @28 days, Zytiga with Prednisone Daily, Taltz monthly for severe plague psoriasis VIT D 6 weeks, once a weeks, 50k units, no prolia or Z Acid for bones,
Had my prostate removed and had another round of Germline mainly Genomics testing done… Gleason 8/9 Stage 4 Grade 5 : 4+5=9 ypT3a Firmagon @28 days, Zytiga with Prednisone Daily, Taltz monthly for severe plague psoriasis VIT D 6 weeks, once a weeks, 50k units, no prolia or Z Acid for bones,
Shorehousejam
in
Fight Prostate Cancer
8 months ago
Recording available for NoSilverBullet’s webinar by Dr Michelle Sexton on “How can medical cannabis help people with Parkinson’s?”
We were delighted to host Dr Michelle Sexton who talked to us about “How can medical cannabis help people with Parkinson’s?” The recording of the webinar is available now on our YouTube channel so please take a look: https://www.youtube.com/watch?v=SyPwBlCrHzM It is also now available as a Podcast
We were delighted to host Dr Michelle Sexton who talked to us about “How can medical cannabis help people with Parkinson’s?” The recording of the webinar is available now on our YouTube channel so please take a look: https://www.youtube.com/watch?v=SyPwBlCrHzM It is also now available as a Podcast
Michel0220
in
Cure Parkinson's
2 months ago
I’m nervous about my Genomic Results plus anyone want to share their experience?
Had my prostate removed and had another round of Germline mainly Genomics testing done… Gleason 9 Stage 4 Grade 5 Firmagon @28 days, Zytiga with Prednisone Daily, Taltz monthly for severe plague psoriasis VIT D 6 weeks, once a weeks, 50k units, no prolia or Z Acid for bones, my teeth need work
Had my prostate removed and had another round of Germline mainly Genomics testing done… Gleason 9 Stage 4 Grade 5 Firmagon @28 days, Zytiga with Prednisone Daily, Taltz monthly for severe plague psoriasis VIT D 6 weeks, once a weeks, 50k units, no prolia or Z Acid for bones, my teeth need work
Shorehousejam
in
Advanced Prostate Cancer
8 months ago
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Coming off Pramipexole
I'm a 65 year old female in Norfolk in the UK, with hereditary RLS for which I was prescribed X1 every evening 0.088mg Pramipexole some 10 (possibly?) years ago. A year ago I had a single mastectomy, am on Anastrazole oestrogen suppressant hormone treatment and a Calcium/D3 supplement for that, along
I'm a 65 year old female in Norfolk in the UK, with hereditary RLS for which I was prescribed X1 every evening 0.088mg Pramipexole some 10 (possibly?) years ago. A year ago I had a single mastectomy, am on Anastrazole oestrogen suppressant hormone treatment and a Calcium/D3 supplement for that, along
GreyMaus
in
Restless Legs Syndrome
11 months ago
Buprenorphine, Nausea & Zofran (Ondansetron)
I successfully take 0.4 mg day buprenorphine to treat RLS but the nausea side effect is very troublesome and there does not seem to be a satisfactory plan to get the better of it. I have unsuccessfully tried many anti nausea drugs and methods including Symprove probiotic and seem to be left with only
I successfully take 0.4 mg day buprenorphine to treat RLS but the nausea side effect is very troublesome and there does not seem to be a satisfactory plan to get the better of it. I have unsuccessfully tried many anti nausea drugs and methods including Symprove probiotic and seem to be left with only
davchar23
in
Restless Legs Syndrome
2 months ago
Need Relief
I have been experiencing pancreatic pain for 6 mos now. Have been to the ED 5 times in that time period. I thought I knew what pain was with my lower back issues - but I was unfortunately mistaken. During these acute pancreatic episodes - the best way to describe the pain is to say that I was out of
I have been experiencing pancreatic pain for 6 mos now. Have been to the ED 5 times in that time period. I thought I knew what pain was with my lower back issues - but I was unfortunately mistaken. During these acute pancreatic episodes - the best way to describe the pain is to say that I was out of
TVspike
in
Chronic Pancreatitis Support
2 months ago
Next NoSilverBullet webinar on 22nd of April: Dr M Sexton on “How can medical cannabis help people with Parkinson’s?”
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm London time on Monday, the 22nd of April. Dr Michelle Sexton will be talking to us about “How can medical cannabis help people with Parkinson’s?” Please use the Eventbrite link below to register for
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm London time on Monday, the 22nd of April. Dr Michelle Sexton will be talking to us about “How can medical cannabis help people with Parkinson’s?” Please use the Eventbrite link below to register for
Michel0220
in
Cure Parkinson's
2 months ago
Buprenorphine and Nausea
Basically I successfully use buprenorphine (0.4mg/da) to block RLS but the resultant nausea is a serious well known side affect. I have been well guided by many on this site as to how to combat the nausea and have tried many of the suggested solutions except for me the last resort medical cannabis.
Basically I successfully use buprenorphine (0.4mg/da) to block RLS but the resultant nausea is a serious well known side affect. I have been well guided by many on this site as to how to combat the nausea and have tried many of the suggested solutions except for me the last resort medical cannabis.
davchar23
in
Restless Legs Syndrome
2 months ago
Implant brand preferences?
Hello All, I'm 53 and had a radical prostatectomy in Feb 2023 for Gleason 5+5, stage 3, positive node=1, intraductal carcinoma. Surgeon was unable to spare any nerves and I've got nothing in the area of erections. All providers have agreed I will not regain erectile function on my own, although I'll
Hello All, I'm 53 and had a radical prostatectomy in Feb 2023 for Gleason 5+5, stage 3, positive node=1, intraductal carcinoma. Surgeon was unable to spare any nerves and I've got nothing in the area of erections. All providers have agreed I will not regain erectile function on my own, although I'll
Firstglantz
in
Prostate Cancer And Gay Men
9 months ago
Medical Cannabis
I have Severe Spinal Stenosis and due to also being diagnosed with Heart Failure following a Triple Bypass and Mitral Valve Repair the only pain relief I’ve now been given is Oramorph. I’ve always looked on this as the “last resort “ for pain relief but over the last several days the pain has become
I have Severe Spinal Stenosis and due to also being diagnosed with Heart Failure following a Triple Bypass and Mitral Valve Repair the only pain relief I’ve now been given is Oramorph. I’ve always looked on this as the “last resort “ for pain relief but over the last several days the pain has become
Davewm
in
Pain Concern
3 months ago
Off topic
Good morning lovely people. It will be four weeks on Monday since my radical cystectomy. I was back home after five days! unfortunately back in hospital 4 days later as an emergency. Back home a week later and all is well. I have fully accepted and adapted to my new life and am working slowly at
Good morning lovely people. It will be four weeks on Monday since my radical cystectomy. I was back home after five days! unfortunately back in hospital 4 days later as an emergency. Back home a week later and all is well. I have fully accepted and adapted to my new life and am working slowly at
stbernhard
in
NRAS
9 months ago
Test results
Hi I've just had a range of bloods done by my Gp as I'm feeling so tired and keep falling a sleep during the day. They all look OK apart from low end for calcium and my ggt liver one. Which could be because of antibiotics I'm permanently on for my cuti or my gallbladder which I'm waiting to be removed
Hi I've just had a range of bloods done by my Gp as I'm feeling so tired and keep falling a sleep during the day. They all look OK apart from low end for calcium and my ggt liver one. Which could be because of antibiotics I'm permanently on for my cuti or my gallbladder which I'm waiting to be removed
France92
in
Thyroid UK
9 months ago
Update on NOT a UTI
Hi, just to update. I had the cystoscopy this morning, not a pleasant experience, but no cancer, no inflammation and no gritty substance, so that at least is good. She did say some people's kidneys do just excrete microscopic blood particles as their normal, but that I possibly have overactive bladder
Hi, just to update. I had the cystoscopy this morning, not a pleasant experience, but no cancer, no inflammation and no gritty substance, so that at least is good. She did say some people's kidneys do just excrete microscopic blood particles as their normal, but that I possibly have overactive bladder
Pusph
in
PMRGCAuk
5 months ago
Down to 5mg! - wondering about changing timing of dose?
Hi Everyone, I haven't posted lately as I have been steadily reducing using Dorset Lady's 5-week plan - at a .5mg rate since 7 - with a few pauses along the way to manage stress points (such as my BP meds that I had been on since 1990 suddenly ceasing manufacture!). Generally feeling much better,
Hi Everyone, I haven't posted lately as I have been steadily reducing using Dorset Lady's 5-week plan - at a .5mg rate since 7 - with a few pauses along the way to manage stress points (such as my BP meds that I had been on since 1990 suddenly ceasing manufacture!). Generally feeling much better,
Hopingsail
in
PMRGCAuk
5 months ago
When to take meds
I have been on levothyroxine 75mg for few years now I have to take alendronic acid and adcal d3 for my bones. I now read you should not take aa and levo at same time been prescribed to take in morn. The adcal d3 at night wondered if anyone on same how they take them. Has anyone got side effects from
I have been on levothyroxine 75mg for few years now I have to take alendronic acid and adcal d3 for my bones. I now read you should not take aa and levo at same time been prescribed to take in morn. The adcal d3 at night wondered if anyone on same how they take them. Has anyone got side effects from
bellsjet
in
Thyroid UK
7 days ago
Escape from Augmentation part 2
I have been excellently helped by several forum participants in my "escape from augmentation" and am now at a stage where I need to report my story and ask another question going forward:- I would like to ask for comments on my current situation. I am writing this note having been awoken by nausea
I have been excellently helped by several forum participants in my "escape from augmentation" and am now at a stage where I need to report my story and ask another question going forward:- I would like to ask for comments on my current situation. I am writing this note having been awoken by nausea
davchar23
in
Restless Legs Syndrome
3 months ago
osteoporosis
I was told I had osteopenia whist workng as nurse in the xray department ( a dexa scan machine was new so all females were able to have a scan to give experience to the radiographers who had been trained in osteoporosis and scanning, I must admit I did have several scans under this 'scheme' and eventually
I was told I had osteopenia whist workng as nurse in the xray department ( a dexa scan machine was new so all females were able to have a scan to give experience to the radiographers who had been trained in osteoporosis and scanning, I must admit I did have several scans under this 'scheme' and eventually
Booge_15
in
PMRGCAuk
5 months ago
Managing post surgery expectations
I had a radical prostatectomy and lymph node dissection on 9/12 and my catheter removed on 9/22. (Surgery was successful and I received the best pathology report possible.) As I am now at the very early stages of getting urinary control back, I'm struggling to understand what might be "normal" or "expected
I had a radical prostatectomy and lymph node dissection on 9/12 and my catheter removed on 9/22. (Surgery was successful and I received the best pathology report possible.) As I am now at the very early stages of getting urinary control back, I'm struggling to understand what might be "normal" or "expected
Shopnot
in
Prostate Cancer Network
9 months ago
ART NIH Predicting the Outcome of Salvage Radiation Therapy for Recurrent Prostate Cancer After Radical Prostatectomy
Summary: Patients in this audience have had both radical prostatectomies (RP) and salvage radiation treatment (sRT) and want to know their chances of having recurrent prostate cancer. This study developed a predictive model called a nomogram that predicts the 6-year progression-free probability (PFP
Summary: Patients in this audience have had both radical prostatectomies (RP) and salvage radiation treatment (sRT) and want to know their chances of having recurrent prostate cancer. This study developed a predictive model called a nomogram that predicts the 6-year progression-free probability (PFP
RMontana
in
Active Surveillance - Prostate Cancer
9 months ago
taking trazodone with Gabapentin
First of all, I am so thankful for this community and the information I have found on here. I am finally getting relief from my RLS by taking gabapentin. My doctor has been way too conservative, starting me at 100mg and only increasing 100mg every week or two weeks. I am finally at a dosage of 1200mg
First of all, I am so thankful for this community and the information I have found on here. I am finally getting relief from my RLS by taking gabapentin. My doctor has been way too conservative, starting me at 100mg and only increasing 100mg every week or two weeks. I am finally at a dosage of 1200mg
Tbone87
in
Restless Legs Syndrome
3 months ago
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