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bone protection
2 weeks in to Pred and very grateful for all the excellent advice. Resting a lot more, taking AdCal/ Vit D supplements and following advice in here have upped dietary intake of calcium ( enjoying hot milk before bed!). Have been told I don’t need a Dexa scan. have got Vit D/ K2 from Amazon. Can I
2 weeks in to Pred and very grateful for all the excellent advice. Resting a lot more, taking AdCal/ Vit D supplements and following advice in here have upped dietary intake of calcium ( enjoying hot milk before bed!). Have been told I don’t need a Dexa scan. have got Vit D/ K2 from Amazon. Can I
Scaredofpred
in
PMRGCAuk
2 months ago
Radical prostatectomy consultant in the south of England
I've been diagnosed with prostate cancer, quite aggressive with a Gleason of 9 (4+5). No spread has been detected on a CT scan and I'm due to have a NM bone whole body scan on Friday to detect any spread to the bones. Assuming there is no or little spread, I am keen to have a radical laparoscopic prostatectomy
I've been diagnosed with prostate cancer, quite aggressive with a Gleason of 9 (4+5). No spread has been detected on a CT scan and I'm due to have a NM bone whole body scan on Friday to detect any spread to the bones. Assuming there is no or little spread, I am keen to have a radical laparoscopic prostatectomy
MarkS
in
Prostate Cancer Network
8 months ago
R223 - PSA 26 Doubled since February
My husband has had 3 treatments of R223, had to postpone 4th treatment because of flu. On Monday had bloods taken in preparation of 4th treatment on 18th April 2024. Blood results ALP 76, at started of R223 106, HB 92 down from 102, (has Proctitis and occasional bleed, calcium a little low, taken
My husband has had 3 treatments of R223, had to postpone 4th treatment because of flu. On Monday had bloods taken in preparation of 4th treatment on 18th April 2024. Blood results ALP 76, at started of R223 106, HB 92 down from 102, (has Proctitis and occasional bleed, calcium a little low, taken
Janhpr
in
Advanced Prostate Cancer
3 months ago
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Post surgery issues
Hi thereLooking for advice/experiences post surgery. I had Interval Debulking/Radical Hysterectomy on 26 October. The surgery went well and I came home after 5 nights. I have suffered with horrible bloating and pain since and was told when still in the hospital it was from post-surgery gas which I know
Hi thereLooking for advice/experiences post surgery. I had Interval Debulking/Radical Hysterectomy on 26 October. The surgery went well and I came home after 5 nights. I have suffered with horrible bloating and pain since and was told when still in the hospital it was from post-surgery gas which I know
Jpembs
in
My Ovacome
8 months ago
Prominent pathologist at Johns Hopkins on leave, facing bullying claims, WaPo, by Steve Thompson & Katie Shepherd, 10/22/23
Looks to be another case of professional success breeding professional arrogance and familial preference. Seems to be a lot of that going around these days - in all sectors of society. BTW, as a patient, my fav reader comment to the article is: "tell someone that they make a nice anecdote". * * *
Looks to be another case of professional success breeding professional arrogance and familial preference. Seems to be a lot of that going around these days - in all sectors of society. BTW, as a patient, my fav reader comment to the article is: "tell someone that they make a nice anecdote". * * *
CaptnMojoe
in
Fight Prostate Cancer
8 months ago
Now for something completely different
Monday, when you probably will see this post. Crack of dawn. I will be on my way to University Hospital London for a Radical Prostatectomy on Weds. Yes, I've had to learn a new lexicon of terms and medical knowledge. Whilst for the last few months I have been an observer of comments and post rather
Monday, when you probably will see this post. Crack of dawn. I will be on my way to University Hospital London for a Radical Prostatectomy on Weds. Yes, I've had to learn a new lexicon of terms and medical knowledge. Whilst for the last few months I have been an observer of comments and post rather
Tryfan
in
AF Association
8 months ago
At a loss
I was prescribed Ropinirole .25 mg I took that for 4 days and could not handle the side effects. Day 4 was terrible. After reading the posts, it seems as if I am screwed if I don't take any medication for it so I guess I will just have to live with this condition drug free. I was never a pill popper
I was prescribed Ropinirole .25 mg I took that for 4 days and could not handle the side effects. Day 4 was terrible. After reading the posts, it seems as if I am screwed if I don't take any medication for it so I guess I will just have to live with this condition drug free. I was never a pill popper
Tree1228
in
Restless Legs Syndrome
4 days ago
Exercise? Diet? Therapy? Has this helped you?
Hey there! I am on a mission to research and implement different techniques to help me lose some weight, increase my core strength and endurance. A little bit about me: I am 27 years old and have suffered most of my life with joint and chronic mechanical back pain, Hypermobility, Spina Bifida Occulta
Hey there! I am on a mission to research and implement different techniques to help me lose some weight, increase my core strength and endurance. A little bit about me: I am 27 years old and have suffered most of my life with joint and chronic mechanical back pain, Hypermobility, Spina Bifida Occulta
UndercoverHippie
in
Fibromyalgia Action UK
7 days ago
Finally finished prednisolone.
Hi all, after just over 7.5 years I've finally managed to stop pred. It's been a very long and slow reduction with the inevitable hiccups along the way. I ended up on 0.5mg every 2 days and finished last week, with no ill effects that I'm aware of. The last PMR symptoms I had were in 2020. What I'd like
Hi all, after just over 7.5 years I've finally managed to stop pred. It's been a very long and slow reduction with the inevitable hiccups along the way. I ended up on 0.5mg every 2 days and finished last week, with no ill effects that I'm aware of. The last PMR symptoms I had were in 2020. What I'd like
Amstel
in
PMRGCAuk
4 months ago
Atrial fibrillation now as well!
So all is going rather well on the PMR front with Pred down to 5mg and slow reduction to 4.5 planned, I have a little boat once more, and then hey ho it‘s off off A&E feeling frightful with severe chest pains….. At 3.30am after 12.5 hours in a A&E , lots of cardiograms, bloods, x-ray and a good physical
So all is going rather well on the PMR front with Pred down to 5mg and slow reduction to 4.5 planned, I have a little boat once more, and then hey ho it‘s off off A&E feeling frightful with severe chest pains….. At 3.30am after 12.5 hours in a A&E , lots of cardiograms, bloods, x-ray and a good physical
Hopingsail
in
PMRGCAuk
4 months ago
ADT and bone health
I am 79 in exceptional physical condition. I have been on ADT after radical Prostatectomy for over 14 months and to date aside from the sexual libido loss I have had very little side effects. I have always been a health / exercise buff & continue to exercise everyday to maintain my mental & physical
I am 79 in exceptional physical condition. I have been on ADT after radical Prostatectomy for over 14 months and to date aside from the sexual libido loss I have had very little side effects. I have always been a health / exercise buff & continue to exercise everyday to maintain my mental & physical
Stevegr
in
Advanced Prostate Cancer
8 months ago
Medical Cannabis?
Has anyone tried medical cannabis for pain relief? I have severe arthritis which limits my life quite a lot, my doctor won’t refer me for knee replacement until I lose more weight, and being on Rux has meant more weight gain! Obviously will need to ask haematologist about. It is quite expensive and
Has anyone tried medical cannabis for pain relief? I have severe arthritis which limits my life quite a lot, my doctor won’t refer me for knee replacement until I lose more weight, and being on Rux has meant more weight gain! Obviously will need to ask haematologist about. It is quite expensive and
lizzziep
in
MPN Voice
1 month ago
Buprenorphine update - one week in
Well, I’ve been taking Buprenorphine for a week now, and I can barely believe it. I have had [u]zero[/u] RLS! My IRLSS has gone from the high 30s to 0. Absolutely no symptoms at all. I have spent my nights in bed like a normal person. The relief is unbelievable. On the first night I took one 0.2mg
Well, I’ve been taking Buprenorphine for a week now, and I can barely believe it. I have had [u]zero[/u] RLS! My IRLSS has gone from the high 30s to 0. Absolutely no symptoms at all. I have spent my nights in bed like a normal person. The relief is unbelievable. On the first night I took one 0.2mg
Claire_lc
in
Restless Legs Syndrome
1 month ago
Vasectomy as a Chef
Dear ya'll, I'm due to have my op in about 2 weeks time. Excited, as it's something that's been on the cards for a while but never followed through. I am a chef however, and all the sites say, avoid "heavy duties" for about a week. I have written to my manager and she's asked me to define this. I
Dear ya'll, I'm due to have my op in about 2 weeks time. Excited, as it's something that's been on the cards for a while but never followed through. I am a chef however, and all the sites say, avoid "heavy duties" for about a week. I have written to my manager and she's asked me to define this. I
MrCupcake
in
Men's Health Forum (Penis Health)
8 months ago
sleeve gastrectomy while on Imbruvica for CLL
Dear all, has anyone experienced doing bariatric surgery while on Imbruvica for CLL? many thanks,
Dear all, has anyone experienced doing bariatric surgery while on Imbruvica for CLL? many thanks,
ObiYan
in
CLL Support
4 months ago
A List for Newly Diagnosed that My Wife did in 2022 please add to list if anything is missed or wrong or needs updating. TIA
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
Shorehousejam
in
Advanced Prostate Cancer
8 months ago
Medicinal Cannabis
I’ve had a Triple Heart Bypass and Mitral Valve Repair. Before that I had a Lumber Spinal Laminectomy (which only worked for about 4 months). I’ve since also been diagnosed with Heart Failure so pain relief is very difficult. The Spinal Stenosis is now severe all down the Lumbar Region. I was
I’ve had a Triple Heart Bypass and Mitral Valve Repair. Before that I had a Lumber Spinal Laminectomy (which only worked for about 4 months). I’ve since also been diagnosed with Heart Failure so pain relief is very difficult. The Spinal Stenosis is now severe all down the Lumbar Region. I was
Davewm
in
Pain Concern
2 months ago
After Four Cycles of Ra-223
After four cycles of Ra-223 sadly it seems not to be doing as well as we would of liked. I have numinous new uptakes (to numinous to mention) as well as an increase in size of some of the older sites while a few have decreased in size or disappeared the new activity is outweighing the overall success
After four cycles of Ra-223 sadly it seems not to be doing as well as we would of liked. I have numinous new uptakes (to numinous to mention) as well as an increase in size of some of the older sites while a few have decreased in size or disappeared the new activity is outweighing the overall success
TheWizardofWesley
in
Advanced Prostate Cancer
2 months ago
Recording available for NoSilverBullet’s webinar by Dr Michelle Sexton on “How can medical cannabis help people with Parkinson’s?”
We were delighted to host Dr Michelle Sexton who talked to us about “How can medical cannabis help people with Parkinson’s?” The recording of the webinar is available now on our YouTube channel so please take a look: https://www.youtube.com/watch?v=SyPwBlCrHzM It is also now available as a Podcast
We were delighted to host Dr Michelle Sexton who talked to us about “How can medical cannabis help people with Parkinson’s?” The recording of the webinar is available now on our YouTube channel so please take a look: https://www.youtube.com/watch?v=SyPwBlCrHzM It is also now available as a Podcast
Michel0220
in
Cure Parkinson's
2 months ago
Buprenorphine, Nausea & Zofran (Ondansetron)
I successfully take 0.4 mg day buprenorphine to treat RLS but the nausea side effect is very troublesome and there does not seem to be a satisfactory plan to get the better of it. I have unsuccessfully tried many anti nausea drugs and methods including Symprove probiotic and seem to be left with only
I successfully take 0.4 mg day buprenorphine to treat RLS but the nausea side effect is very troublesome and there does not seem to be a satisfactory plan to get the better of it. I have unsuccessfully tried many anti nausea drugs and methods including Symprove probiotic and seem to be left with only
davchar23
in
Restless Legs Syndrome
2 months ago
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