Hope you are all as well as you can be. Just a really quick one from me about Bilirubin ( I say quick, a rant more like 😂) It’s been a year and my levels are not dropping as quickly and still higher then doctors have expected, I do have portal hypertension but if anything that has calmed down firstly is this common for levels to stagnate? I’m doing everything in line with what I should do and not do but slowly finding I’m getting more deflated.
Now to the rant ( I apologise about this but I have to put it out there)
so my eyes had gave gone down to the point of what could be classed as looking normal, my doctors, friends and family have also agreed , I’m aware due to what I mentioned above I’m not going to have bright whites like I used to and At the start of the process I did resemble an extra from the Simpson’s with emojis looking more like selfies ... so yes very yellow . on one of my very rare ventures out yesterday ( and on my own - bad idea) I had a couple of comments from strangers and outright questions which took me off guard. well after getting home and thinking about it , it started to wind me up and started to upset me more than I thought it would .I’ve been fuming almost all night was it out of order for these comments or am I being too overly sensitive? Flippent comments from people that in fairness probably don’t realise the situation wash off my back but being questioned directly really made me think who the F are you? A doctor? Like the majority on here I am dealing with a lot of symptoms that make you a) feel like s**t and b) look like s**t every day so when you muster up the sanity and strength to go out and then have a complete stranger you interact with ask you or even worse tell you, oh so you have cirrhosis or liver problems At the checkout more than once I was wow! Due to my previous jobs I have got a very thick skin and a comeback Queen in Responses but due to tiredness I just looked blankly back as I really did not know how to respond. what gives them the right and secondly in a public place in front of other people to mention something that is obviously private and sensitive! I just don’t know if I should have said something to them even if it meant returning?
Anyway rant over... and breathe
Well Wishing you all a bright sunny bank holiday x