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Prednisone
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Figuring things out - first year since diagnosis
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
CGSLE
in
LUPUS UK
2 months ago
Is it absolutely necessary to take omeprazole before Prednisolone?
I am on my second round of Prednisolone and have been told by the doctor that I must take omeprazole as well even though I’ve got osteoporosis. I have always taken it an hour before breakfast then Pred with my breakfast but wondered how long before can I take omeprazole. For instance will it still work
I am on my second round of Prednisolone and have been told by the doctor that I must take omeprazole as well even though I’ve got osteoporosis. I have always taken it an hour before breakfast then Pred with my breakfast but wondered how long before can I take omeprazole. For instance will it still work
Timelost
in
PMRGCAuk
2 months ago
Ablation concern - again!
Only one week to go - pre assessment tomorrow and I am a snippet away from pulling out, this is really getting to me now and I am so stressed and miserable 😣I was on prednisolone for polymyalgia until January 2024 (something my EP wasn't keen on). Having stopped it now my pain is returning but I am
Only one week to go - pre assessment tomorrow and I am a snippet away from pulling out, this is really getting to me now and I am so stressed and miserable 😣I was on prednisolone for polymyalgia until January 2024 (something my EP wasn't keen on). Having stopped it now my pain is returning but I am
Karendeena
in
Atrial Fibrillation Support
2 months ago
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Has anyone taken Perdnisone or Prednisolone with Warfarin ?
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
rosegardens
in
Hughes Syndrome APS Forum
2 months ago
Has anyone taken Perdnisone or Prednisolone with Warfarin ?
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
rosegardens
in
Anticoagulation Support
2 months ago
Is it an AFib episode
I was diagnosed with AFib about two and a half years ago, I have been on blood pressure medication for many years, I am 76 yrs old. I am also on Prednisolone for Polymyalgia Rheumatica fo the last 3 years and am gradually tapering the dose down. Was put on Edoxaban for the AFib and had an Echocardiogram
I was diagnosed with AFib about two and a half years ago, I have been on blood pressure medication for many years, I am 76 yrs old. I am also on Prednisolone for Polymyalgia Rheumatica fo the last 3 years and am gradually tapering the dose down. Was put on Edoxaban for the AFib and had an Echocardiogram
Jomaur
in
Atrial Fibrillation Support
2 months ago
stopping steroids
I have been on 1mg prednisolone for three months now. Advice would be nice from you the people who have helped me through these last six years. I am quite happy to continue to take the 1 mg but what are the chances of me stopping the pred and having to go back up to a higher dose? Thank you for any
I have been on 1mg prednisolone for three months now. Advice would be nice from you the people who have helped me through these last six years. I am quite happy to continue to take the 1 mg but what are the chances of me stopping the pred and having to go back up to a higher dose? Thank you for any
Reddev
in
PMRGCAuk
2 months ago
Alendronic Acid side effects
I've been on Prednisolone for PMR since October 2022, starting on 15mg and now down to 4.5. Reumatologist has told my GP I should be on a bisphosphonate and she's just prescribed Alendronic Acid. Reading the patient leaflet, the side-effects sound pretty grim. I'm going on a river cruise at the
I've been on Prednisolone for PMR since October 2022, starting on 15mg and now down to 4.5. Reumatologist has told my GP I should be on a bisphosphonate and she's just prescribed Alendronic Acid. Reading the patient leaflet, the side-effects sound pretty grim. I'm going on a river cruise at the
Hercules307
in
PMRGCAuk
2 months ago
Forgotten to take 15mg Pred dose this morning
Rushing to visit my husband who is very ill in hospital this morning I think I may have missed taking my 15 mg dose of Prednisolone. The tablets are still in my dosette box.Should itake them niw 12 hours too late or miss them out and take normal dose tomorrow morning. My dose has been up and diwn because
Rushing to visit my husband who is very ill in hospital this morning I think I may have missed taking my 15 mg dose of Prednisolone. The tablets are still in my dosette box.Should itake them niw 12 hours too late or miss them out and take normal dose tomorrow morning. My dose has been up and diwn because
essujay
in
PMRGCAuk
2 months ago
Day 14 on Prednisone!
Week two on pred tablets four a day last week three a day this week. Certainly seeing great improvement in my hand thank goodness. The pain was starting to get me down and not being able to use my hand properly made life difficult! Next week two tablets a day will let you know how I get on. Happy Weekend
Week two on pred tablets four a day last week three a day this week. Certainly seeing great improvement in my hand thank goodness. The pain was starting to get me down and not being able to use my hand properly made life difficult! Next week two tablets a day will let you know how I get on. Happy Weekend
Green230461
in
NRAS
1 year ago
Rutiximub infusion.
Hi all,I've been on hydroxychlourine for Lupus for 10 years or so but seems to have run its course as I was very ill from summer of 2023. Rheum then changed medication to mycophenolate but it doesn't seem to be working even after increasing dose to 1500mg per day and in conjunction with prednisolone.
Hi all,I've been on hydroxychlourine for Lupus for 10 years or so but seems to have run its course as I was very ill from summer of 2023. Rheum then changed medication to mycophenolate but it doesn't seem to be working even after increasing dose to 1500mg per day and in conjunction with prednisolone.
mitty
in
LUPUS UK
2 months ago
day 12: Prednisolone beginning to make a difference!
It’s Day 12 of my steroid trial to see if this is PMR (am on 15mg prednisolone) …. this isn’t a question but I just wanted to share that I woke in the night feeling something was different / inflammation not kicking in … and I woke just feeling a bit achy but able to leap out of bed, (well not leap
It’s Day 12 of my steroid trial to see if this is PMR (am on 15mg prednisolone) …. this isn’t a question but I just wanted to share that I woke in the night feeling something was different / inflammation not kicking in … and I woke just feeling a bit achy but able to leap out of bed, (well not leap
Preposterous
in
PMRGCAuk
2 months ago
High dose Prednisolone and effects
Hi, I was diagnosed with PMR, 8 years ago and was down to 2mg of prednisolone, however 3 weeks ago I ended up in A&E being told I’d developed GCA, after CT head scans and blood tests. Also had a temporal artery biopsy. I was prescribed 60mg of prednisolone, tapering gently so still on 50. My problem
Hi, I was diagnosed with PMR, 8 years ago and was down to 2mg of prednisolone, however 3 weeks ago I ended up in A&E being told I’d developed GCA, after CT head scans and blood tests. Also had a temporal artery biopsy. I was prescribed 60mg of prednisolone, tapering gently so still on 50. My problem
Karil
in
PMRGCAuk
2 months ago
10 year PMR anniversary! A new drug for me called Etanercept being advised.
Originally 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and treatment plan. A PET scan in 2018 by my new Rheumatologist satisfied him that I had PMR. Leflunomide trialled but did not work for me. My aim is
Originally 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and treatment plan. A PET scan in 2018 by my new Rheumatologist satisfied him that I had PMR. Leflunomide trialled but did not work for me. My aim is
MC60
in
PMRGCAuk
2 months ago
Taper Advice after too fast a taper
Sorry in advance that this is such a long post. Thank you for your consideration of my dilemma. I really value this wonderful forum and the expertise and experience of you all. The journey so far. Diagnosed GCA in July 2023. Had previously months of headaches, malaise, back to back frozen shoulders
Sorry in advance that this is such a long post. Thank you for your consideration of my dilemma. I really value this wonderful forum and the expertise and experience of you all. The journey so far. Diagnosed GCA in July 2023. Had previously months of headaches, malaise, back to back frozen shoulders
Leafsong66
in
PMRGCAuk
2 months ago
Prednisolone and Alcohol
Hi I am on a 5 day 4040mg steroids, I finish Sunday morning, my daughters wedding is on Monday, typical ! I don't drink as also on Methotrexate , but was looking forward to toasting a poss one other drink, what do you think ? will it be out of my system?
Hi I am on a 5 day 4040mg steroids, I finish Sunday morning, my daughters wedding is on Monday, typical ! I don't drink as also on Methotrexate , but was looking forward to toasting a poss one other drink, what do you think ? will it be out of my system?
trace58
in
NRAS
2 months ago
Synacthen Test
Hi, I received a letter from my Rheumatologist saying that my cortisol levels are normal following the Synacthen test 2 weeks ago. It says it is now safe to stop taking steroids. My question is, as i have been on steroids for over 5 years should i just stop or continue reducing. I am now taking 2.5mg
Hi, I received a letter from my Rheumatologist saying that my cortisol levels are normal following the Synacthen test 2 weeks ago. It says it is now safe to stop taking steroids. My question is, as i have been on steroids for over 5 years should i just stop or continue reducing. I am now taking 2.5mg
studiomaster
in
PMRGCAuk
2 months ago
Ambiee
Hi there diagnosed with PMR April 23, after having very bad lower middle back pain, pain in shoulders arms & neck (ha MRI as originally thought it was slipped lower disc, but negative on this, raised blood results confirmed PMRBeen on Prednisolone tapering regime started on 30mg now at 1mg only seen
Hi there diagnosed with PMR April 23, after having very bad lower middle back pain, pain in shoulders arms & neck (ha MRI as originally thought it was slipped lower disc, but negative on this, raised blood results confirmed PMRBeen on Prednisolone tapering regime started on 30mg now at 1mg only seen
Singham1
in
PMRGCAuk
2 months ago
Out of the blue fast falling platelets. CLL and ITP since long. By pass surgery of heart one year ago.
Troublesome ITP since 9 years. Past 6 months platelets has finally been stable, treated with Revolade (Eltrombopag) 25 mg and low dose Prednisolone. In January one year ago, two of my clogged arteries in heart had a by pass surgery. Survived serious complications. Slow heart rehabilitation. Was looking
Troublesome ITP since 9 years. Past 6 months platelets has finally been stable, treated with Revolade (Eltrombopag) 25 mg and low dose Prednisolone. In January one year ago, two of my clogged arteries in heart had a by pass surgery. Survived serious complications. Slow heart rehabilitation. Was looking
Accordion
in
CLL Support
2 months ago
Back pain and spasms
I was diagnosed with PMR in 2020. I have been on prednisolone since then trying to type it off but only actually managed to get off of the drug for about three weeks before having to restart. I’ve only really had pain in my lower body and legs, only occasionally in my arms. Recently I have had acute
I was diagnosed with PMR in 2020. I have been on prednisolone since then trying to type it off but only actually managed to get off of the drug for about three weeks before having to restart. I’ve only really had pain in my lower body and legs, only occasionally in my arms. Recently I have had acute
Ladybay0
in
PMRGCAuk
2 months ago
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