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Experiences with
Prednisone
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Sulfasalazine (SSX)
Rhemy has me reducing
prednisone
by 25 every 2 weeks. Only symptoms I have is a.m. stiffness that goes away after a trip to the bathroom. Alittle rt leg thigh pain like after a charlie horse wears off. Suggests that I should try ssz. I just want to keep going with
prednisone
for now.
Rhemy has me reducing
prednisone
by 25 every 2 weeks. Only symptoms I have is a.m. stiffness that goes away after a trip to the bathroom. Alittle rt leg thigh pain like after a charlie horse wears off. Suggests that I should try ssz. I just want to keep going with
prednisone
for now.
Seal49
in
PMRGCAuk
1 year ago
Struggling to accept/deal with pain and decreased range of movement
Hi, I was encouraged by medics to wean off and stop
prednisone
after 2 yrs on them due to osteopenia and inflammatory markers "normal". I did so in July 23 I am trying to continue to work as a nurse and occasionally take one dose of 400 mg ibuprofen a day/night which works well.
Hi, I was encouraged by medics to wean off and stop
prednisone
after 2 yrs on them due to osteopenia and inflammatory markers "normal". I did so in July 23 I am trying to continue to work as a nurse and occasionally take one dose of 400 mg ibuprofen a day/night which works well.
wakinguptolife
in
PMRGCAuk
1 year ago
Rheumatologist appt
Confirmed to taper off
prednisone
at 1mg every 3 days and when I get to 5 mg to drop by 1mg every month. I have to say it's been almost 2 hrs since the injections and my shoulders feel much better.
Confirmed to taper off
prednisone
at 1mg every 3 days and when I get to 5 mg to drop by 1mg every month. I have to say it's been almost 2 hrs since the injections and my shoulders feel much better.
Monkey321
in
PMRGCAuk
1 year ago
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Biphosphonates Questions
After almost 5 years and tapering VERY slowly got off of
prednisone
for about year when the GCA came back suddenly, but without PMR. Currently at 2mg
prednisone
from 60 , and Actemra every other week. Just tapered to 2 mg quickly (one year) maybe because I’ve had GCA before?
After almost 5 years and tapering VERY slowly got off of
prednisone
for about year when the GCA came back suddenly, but without PMR. Currently at 2mg
prednisone
from 60 , and Actemra every other week. Just tapered to 2 mg quickly (one year) maybe because I’ve had GCA before?
Pamk1949
in
PMRGCAuk
1 year ago
What next? Is my man a candidate for Pluvicto?
He has now been on Abi &
Prednisone
for 2 weeks, although after failing Extandi a few years ago, it probably won't do much for too long. We are going down to consult with an oncologist in Santa Barbara to see if he qualifies for Pluvicto, and we have a consultation with our wonderful Dr.
He has now been on Abi &
Prednisone
for 2 weeks, although after failing Extandi a few years ago, it probably won't do much for too long. We are going down to consult with an oncologist in Santa Barbara to see if he qualifies for Pluvicto, and we have a consultation with our wonderful Dr.
TahoeJ
in
Advanced Prostate Cancer
1 year ago
HCG level blip?
My HCG levels have been as follows: 12dp3dt- 580 13dp3dt - 847 15dp3dt- 1761 18dp3dt - 5463 20dp3t - 9075 My clinic have said they’re generally looking good but I didn’t double between 18dpt and 20dpt and so they’ve put me back on a steroid
prednisone
(I was on this at the start of my transfer
My HCG levels have been as follows: 12dp3dt- 580 13dp3dt - 847 15dp3dt- 1761 18dp3dt - 5463 20dp3t - 9075 My clinic have said they’re generally looking good but I didn’t double between 18dpt and 20dpt and so they’ve put me back on a steroid
prednisone
(I was on this at the start of my transfer
Siothew12
in
Fertility Network UK
1 year ago
Minor change in psa - reason to be concern?
He is currently on Eligard (March 26, 30mg every 3 months) and Abitaterone ( May 15, abiraterone 1000mg with 5 mg
prednisone
). He will do radiation in September. Any insights on whether he should connect with his doctor? These results are just posted on his online chart at them moment.
He is currently on Eligard (March 26, 30mg every 3 months) and Abitaterone ( May 15, abiraterone 1000mg with 5 mg
prednisone
). He will do radiation in September. Any insights on whether he should connect with his doctor? These results are just posted on his online chart at them moment.
Cafu6
in
Advanced Prostate Cancer
1 month ago
Mycophenolate
I have large vessel vasculitis and have been treated with a combination of Methotrexate and
Prednisone
. The consultant is considering switching Methotrexate to Mycophenolate. Does anyone have any experience of this drug? Many thanks
I have large vessel vasculitis and have been treated with a combination of Methotrexate and
Prednisone
. The consultant is considering switching Methotrexate to Mycophenolate. Does anyone have any experience of this drug? Many thanks
Mandyi
in
PMRGCAuk
8 months ago
detached retina
On
prednisone
9 1/2 yrs for pmr
On
prednisone
9 1/2 yrs for pmr
casse
in
PMRGCAuk
1 year ago
Hand cramp
I'm on
prednisone
since mid April and so far have been able go from 30 mg to 22.5mg a day Body feels fine but getting cramps only on my right hand which I use alot. Is this a pmr or
prednisone
side affect or could I have some sort of arthritis also
I'm on
prednisone
since mid April and so far have been able go from 30 mg to 22.5mg a day Body feels fine but getting cramps only on my right hand which I use alot. Is this a pmr or
prednisone
side affect or could I have some sort of arthritis also
Seal49
in
PMRGCAuk
1 year ago
Considering whether the AFib is from asthma inhaler.
Blame it on
prednisone
? Adrenal insufficiency ? My asthma inhaler? I decided to contact my pulmonary to, perhaps, change the inhaler, Breo, which has arrhythmia as an adverse effect. A person on my pulmonary support group had that happen to her and I see a study suggesting a connection.
Blame it on
prednisone
? Adrenal insufficiency ? My asthma inhaler? I decided to contact my pulmonary to, perhaps, change the inhaler, Breo, which has arrhythmia as an adverse effect. A person on my pulmonary support group had that happen to her and I see a study suggesting a connection.
Karenjaninaz
in
PMRGCAuk
1 year ago
Comment on exercise and fitness
Increase time/distance and maybe in a year you will be able to do the same distance as before PMR albeit at the lower intensity level. 3.Avoid strength training because muscle recovery is very hard while on
prednisone
.
Increase time/distance and maybe in a year you will be able to do the same distance as before PMR albeit at the lower intensity level. 3.Avoid strength training because muscle recovery is very hard while on
prednisone
.
pmr_nikola
in
PMRGCAuk
1 year ago
Ozempic, Wegovy, Mounjaro, etc?
She’s been able to taper to a pretty low dose of
prednisone
-but this last flare was bad. I’m wondering if any of you have tried the diabetic/weight loss drugs that are out now, and if they have had any effect on your PMR?
She’s been able to taper to a pretty low dose of
prednisone
-but this last flare was bad. I’m wondering if any of you have tried the diabetic/weight loss drugs that are out now, and if they have had any effect on your PMR?
Snowescape
in
PMRGCAuk
5 months ago
Whole pelvic radiation after testicular cancer?
His treatment consisted of 39 radiation sessions + 2 yrs of Lupron + Abiraterone/
Prednisone
. He’s extremely active, works out almost every day and we still mountain bike and hike all over our beautiful Colorado.
His treatment consisted of 39 radiation sessions + 2 yrs of Lupron + Abiraterone/
Prednisone
. He’s extremely active, works out almost every day and we still mountain bike and hike all over our beautiful Colorado.
Adendino
in
Advanced Prostate Cancer
11 months ago
Bee Sting and Prednisone
This is probably the most trivial question that I have asked the group thus far, but I was just stung in the neck (right where the lymph nodes in my throat reside) by a very angry bee and I was wondering if there are any issues with bee stings when one is on
prednisone
?
This is probably the most trivial question that I have asked the group thus far, but I was just stung in the neck (right where the lymph nodes in my throat reside) by a very angry bee and I was wondering if there are any issues with bee stings when one is on
prednisone
?
Donna5658
in
PMRGCAuk
1 year ago
dropped again 5 to 2.5 prednisone. Excpet for my bad middle finger, feeling great
a few weeks ago, i felt a change in my body like I no longer needed
prednisone
, and so far dropping has been easy.
a few weeks ago, i felt a change in my body like I no longer needed
prednisone
, and so far dropping has been easy.
sdowney717
in
PMRGCAuk
1 year ago
Finished pred
After a long 8 years and 3 months with PMR, a week ago I weaned off
prednisone
. I had been at 1mg for months then went to 1/2 then alternate days. I have had a few aches but nothing of the old pain and discomfort. Each day is better. Just the back and neck issues from stenosis now !
After a long 8 years and 3 months with PMR, a week ago I weaned off
prednisone
. I had been at 1mg for months then went to 1/2 then alternate days. I have had a few aches but nothing of the old pain and discomfort. Each day is better. Just the back and neck issues from stenosis now !
Fimckenz
in
PMRGCAuk
1 year ago
Night time prednisone
In the US, I have been taking
prednisone
at night...trying for 2 AM as suggested, but finding insomnia of sorts. Recently taken at 1 AM, but even this which works fine, causes me to awake around 11:30 PM and I try to make it to 2 AM, but struggle and end up taking my 20 mg between 12-1 AM....
In the US, I have been taking
prednisone
at night...trying for 2 AM as suggested, but finding insomnia of sorts. Recently taken at 1 AM, but even this which works fine, causes me to awake around 11:30 PM and I try to make it to 2 AM, but struggle and end up taking my 20 mg between 12-1 AM....
Joseph14612
in
PMRGCAuk
1 year ago
Update on my father
He’s been on ADT - Eligard shots every 3 months and
prednisone
+ zytiga everyday. It’s challenging as I work with him and see all the ins and outs of his behaviour while on those meds. He remains undetectable on the psa scale as of now (<0.02) Diagnosis in 2019 .
He’s been on ADT - Eligard shots every 3 months and
prednisone
+ zytiga everyday. It’s challenging as I work with him and see all the ins and outs of his behaviour while on those meds. He remains undetectable on the psa scale as of now (<0.02) Diagnosis in 2019 .
jberg22
in
Advanced Prostate Cancer
1 year ago
8/4/2023 Update
To review, after 19 months on Lupron, Zytiga,
prednisone
, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga.
To review, after 19 months on Lupron, Zytiga,
prednisone
, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga.
alperk
in
Advanced Prostate Cancer
1 year ago
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