Mycophenolate

[Mandyi]

I have large vessel vasculitis and have been treated with a combination of Methotrexate and Prednisone. The consultant is considering switching Methotrexate to Mycophenolate. Does anyone have any experience of this drug?

Many thanks

[DorsetLady PMRGCAuk volunteer]

Hi,

Not sure there are many on this forum who are prescribed it … have you asked on the Vasculitis one ?

healthunlocked.com/vasculit...

Can I ask why the change?

[PMRpro Ambassador]

It isn't routinely used in PMR so I doubt there are many on the forum. Why the change?

What country are you in? I assume the USA?

[Phoebess]

I also have LVV and am 3 years down the line . I've had just about every drug available, but they've either not worked or I've had side effects. I've been on mycophenolate for just over a year now, and had to stop it for a little while when I had deranged liver enzymes ( not due to the Mycophenolate but to gallstones as it turns out) . I'm still taking prednisolone though, currently can't seem to get lower than 5mgms.

Why the change from Methotrexate?

[winfong]

Try Googling "Mycophenolate GCA." I found tons of info.