Experiences with

Pneumococcal infections

when do you go to the GP with a chest infection? I’ve got fairly bad asthma (fostair 100 mart x 8 puffs daily, montelukast, spiriva respimat, dymista nasal spray, fexofenadine, 4 short courses prednisolone this year) but have never had a bacterial chest infection before apart from earlier this year

Hi everyone , can anyone tell me if the pneumococcal vaccine is safe ? I have uctd and triple positive APS thanks Elfie

Hi I seem to have an ongoing problem with blocked sinuses / post nasal drip. I came across "Sinus massage" yesterday which seems to have shifted things a bit, but I am wondering if anyone has a tried and tested remedy other than Vicks and head over a bowl of hot water. The only time I have had a really

Hi all, first post on here but have watched from a distance for last couple of years and have gained much insight and knowledge from the community, thank you. My question is probably aimed to those that have suffered from GCA and what the early signs were. I have had PMR for 3.5 years and am steady

Hi does anyone get jaw pain I also get earache and a slight swelling to my face, I’ve had my teeth checked and it’s not that, I’ve had bloods taken and a scan which showed nothing, I’m awaiting a max facial appointment but the waiting list is so long. Any help would be much appreciated x

In September I went to the ED with acute abdominal pain which continued to worsen for 20 hours. After several tests I was taken by ambulance to the hospital where I stayed having tests for 3 days. In the hospital stay one of the tests was an Abdominal Dupex Complete Study which showed a a high grade

Hi everyone, I’ve been unfortunate to get shingles and I have been in agony with it. I didn’t get to see the doctor for three days before starting with the antibiotics. I’ve had 3 weeks of sleepless nights until recent. The pain has now subsided but I seem to be itching now at night across my stomach

Hi everyone, I wanted to share my experience and get some insights or advice from others who might have gone through something similar. I have bronchiectasis and Asthma along with sinus issues. Last month, I developed a fever and experienced an exacerbation of my symptoms. I visited my doctor, who

I’m due for my shingles vaccination next week but I have reservations as I’ve read that it might not be a good idea to have it with an auto immune disease which I believe PMR is🤔 please correct me if I’m wrong! So I’ve very mixed feelings as I know from family and friends that shingles is horrible to

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Hi everyone My Dr is starting me on Belimumab Benlysta and I just wanted to ask what people's experiences have been, particularly with the physical injection and pain side of things. As I have been on fragmin in the past for pregnancy and really did not enjoy that and struggled doing it / had to get

Two weeks back I was infected with Dengue Virus with fever and was hospitalised for 5 days. Due to continuous fever, the doctor stopped me the regular taking Arvast 10 mg Cholesterol lowering medicine. After I was discharged from hospital and I was followed up with doctor after one week of home rest,

I've had the same now for about 15 years. I've been referred to 4 consultants over that time and nothing clears it completely. Antibiotics ease it for a short time. I have a daily nasal spray Nasonex and antihistamines prescribed by GP. I use a Neti pot with Neil Med sachets when it gets really bad and

Currently at 4 mg prednisone. Started feeling sick 6 days ago and think this is much more than a cold (fever at about 100 F every day plus sinus congestion, dry cough and extreme fatigue). Fear it may be pneumonia as I'm way more miserable than I've ever been with a cold. Tested for COVID twice and

Hello. Two weeks back I was infected with Dengue Virus with fever and was hospitalised for 5 days. Due to continuous fever, the doctor stopped me the regular taking Arvast 10 mg Cholesterol lowering medicine. After I was discharged from hospital and I was followed up with doctor after one week of home

Finally, I have been diagnosed, Active non Bacterium Tuberculosis. Apparently had this over a year ! It's treatable and curable, TB must have become active just after the first Broncoscopy, PET scan didnt pick Up due to continued infection and inflammation., a further Broncoscopy last week picked

Hi I have been taking Nariparib for around a year. I am going to Thailand for Xmas and am booked in to get the hepatitis A, hep B, tetanus and typhoid jab. Does anyone know if it is safe for me to get these jabs? I’ve just read that I should avoid live vaccinations while on Nariparib….

Did a 'deep dive' on Lymphatic Drainage. What kept cross-referencing was rebounding. So, I got in the market for a mini-trampoline, then decided to 'go full send', committed to an annual membership at a trampoline park. Forget the dogma, 'this is for kids'. Usually there when kids are in school,

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I just learned about the Epcoritimab trial. The results are extraordinary. We are moving closer to a functional cure. The author said that if we combine a btk inhibitor, bcl-2, and CAR T, we could be looking at a CURE. https://cllsociety.org/2024/10/solid-results-for-epcoritimab-for-relapsed-refractory-cll