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Advice - Thoughts - Bone Marrow Suppression - Blood Counts
Hello everyone. I haven’t posted for a while. I completed Xofigo at the end of October. The PET scan showed several tumors were reduced. Then my PSA started doubling each month. Also my RBC stays around 2.4, HGB 8 and platelets 15-20. I’ve taken 2 doses of Docataxel. The first one was only at 50% of
Hello everyone. I haven’t posted for a while. I completed Xofigo at the end of October. The PET scan showed several tumors were reduced. Then my PSA started doubling each month. Also my RBC stays around 2.4, HGB 8 and platelets 15-20. I’ve taken 2 doses of Docataxel. The first one was only at 50% of
BigTex3
in
Advanced Prostate Cancer
2 years ago
CLL with CNS involvement
Hi All. My fiancé was diagnosed with CLL in early February 2022. He's 36 years old, asmathic but otherwise a very fit guy. Since then he's had partial to paralysis and neurological symptoms. He hasn't been able to have biopsy because his blood counts were very low - basically no hemoglobin, no wbc and
Hi All. My fiancé was diagnosed with CLL in early February 2022. He's 36 years old, asmathic but otherwise a very fit guy. Since then he's had partial to paralysis and neurological symptoms. He hasn't been able to have biopsy because his blood counts were very low - basically no hemoglobin, no wbc and
Blue-bird_
in
CLL Support
2 years ago
Guess what?! Guess what?!
Jeff has already been approved for MNSure!!! Gone are the worries of a lapse of insurance coverage, gone is the fear his treatment would be interrupted, gone is getting on COBRA and its ridiculous price!!! Jeff was mistaken and had thought his insurance ended the Tuesday after he got laid off. He actually
Jeff has already been approved for MNSure!!! Gone are the worries of a lapse of insurance coverage, gone is the fear his treatment would be interrupted, gone is getting on COBRA and its ridiculous price!!! Jeff was mistaken and had thought his insurance ended the Tuesday after he got laid off. He actually
Pancake_Lefse
in
Advanced Prostate Cancer
2 years ago
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Update
Hello friends. I thought I would let you know how things are going here at Southampton Hospital. It's now about three weeks since I finished the debulking chemotherapy. It was tough and I naively thought that I would start to feel better when it was finished, but I felt very weak and ill for some time
Hello friends. I thought I would let you know how things are going here at Southampton Hospital. It's now about three weeks since I finished the debulking chemotherapy. It was tough and I naively thought that I would start to feel better when it was finished, but I felt very weak and ill for some time
Otterfield
in
MPN Voice
2 years ago
How often should varices be checked?
My husband had three separate episodes of variceal bleeds in the fall of 2020. Esophageal and gastric varices which were either banded or glued. Sent home and no follow up, nothing. Now 18 months later he was back in hospital with another gastric bleed. It took four endoscopies to finally locate and
My husband had three separate episodes of variceal bleeds in the fall of 2020. Esophageal and gastric varices which were either banded or glued. Sent home and no follow up, nothing. Now 18 months later he was back in hospital with another gastric bleed. It took four endoscopies to finally locate and
MississaugaLiver
in
British Liver Trust
2 years ago
What genetic / genomic information does a BMB give that bloods don’t?
Hi. I’ve been dipping getting in and out of this friendly and helpful group since I discovered it I have PMF, diagnosed 5 years ago and am having a hard time getting accurate information about my mutation status. The last two BMBs were poor samples - short or crushed cores. Only found out when
Hi. I’ve been dipping getting in and out of this friendly and helpful group since I discovered it I have PMF, diagnosed 5 years ago and am having a hard time getting accurate information about my mutation status. The last two BMBs were poor samples - short or crushed cores. Only found out when
Rachelthepotter
in
MPN Voice
2 years ago
Inhaler
I was diagnosed with COPD about 4 years ago. I had another lung function test the following year but have only had “telephone lung function tests” since then😩. The respiratory nurse at my doctor’s surgery retired last month and has not been replaced so I’m finding it difficult to get advice. Just before
I was diagnosed with COPD about 4 years ago. I had another lung function test the following year but have only had “telephone lung function tests” since then😩. The respiratory nurse at my doctor’s surgery retired last month and has not been replaced so I’m finding it difficult to get advice. Just before
Janann25
in
Lung Conditions Community Forum
2 years ago
News on new MF therapy Momelotinib
I just saw in the business news that Glaxo Co is buying an MF drug maker, Sierra Oncology, for its new drug Momelotinib. Implication is Glaxo expects FDA approval. I never used to look at these things, but MPN stuff gets interesting when you've got the Dx of one. Momelotinib failed its first round
I just saw in the business news that Glaxo Co is buying an MF drug maker, Sierra Oncology, for its new drug Momelotinib. Implication is Glaxo expects FDA approval. I never used to look at these things, but MPN stuff gets interesting when you've got the Dx of one. Momelotinib failed its first round
EPguy
in
MPN Voice
2 years ago
Kind of wondering…
Since the past four years, I have been having trouble with my hemoglobin. I am always becoming severely anemic. When I was in the hospital last year, they needed to give me two blood transfusions and six iron infusions. I was seen by a gynaecologist, (she is awesome!!), and it was determined des that
Since the past four years, I have been having trouble with my hemoglobin. I am always becoming severely anemic. When I was in the hospital last year, they needed to give me two blood transfusions and six iron infusions. I was seen by a gynaecologist, (she is awesome!!), and it was determined des that
Willow7733
in
LUPUS UK
2 years ago
Blood type Data from our CBC's?
I've been curious on my blood type. It would seem we should automatically have this info from our routine tests, but if so I can't find it, and could be insurance doesn't usually pay for this. Have other members received or know how to find this info? It must be routine for transfusion patients, for
I've been curious on my blood type. It would seem we should automatically have this info from our routine tests, but if so I can't find it, and could be insurance doesn't usually pay for this. Have other members received or know how to find this info? It must be routine for transfusion patients, for
EPguy
in
MPN Voice
2 years ago
Allogeneic Bone Marrow–Derived Mesenchymal Stem Cell Safety in Idiopathic Parkinson's Disease
Credit to Hidden and kevowpd ! Allogeneic Bone Marrow–Derived Mesenchymal Stem Cell Safety in Idiopathic Parkinson's Disease 2021 (full text) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451899/ "Background Neuroinflammation plays a key role in PD pathogenesis, and allogeneic bone marrow–derived
Credit to Hidden and kevowpd ! Allogeneic Bone Marrow–Derived Mesenchymal Stem Cell Safety in Idiopathic Parkinson's Disease 2021 (full text) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451899/ "Background Neuroinflammation plays a key role in PD pathogenesis, and allogeneic bone marrow–derived
Bolt_Upright
in
Cure Parkinson's
2 years ago
New Member to Pancreatitis Support / Patient Intro
Hello Pancreatitis Support, I'm a CLL type Leukaemia patient (and part of a great HU community for that. Its a Chronic condition). CLL implies gene defects. DX early 2011, TX 2014/2015 with Chemoimmunotherapy. Also got suspect Polygenic Hypercholesterolemia and been on Atorvastatin since late 2020
Hello Pancreatitis Support, I'm a CLL type Leukaemia patient (and part of a great HU community for that. Its a Chronic condition). CLL implies gene defects. DX early 2011, TX 2014/2015 with Chemoimmunotherapy. Also got suspect Polygenic Hypercholesterolemia and been on Atorvastatin since late 2020
Ernest2
in
Chronic Pancreatitis Support
2 years ago
Olaparib induced anaemia and walking probs, anyone?
Hi Wonderwomen, I have been on olaparib for just under 3 months. It depressed my bone marrow production of red blood cells, I became very anaemicand was given 3 blood transfusions last week, taken off olaparib for 14 days and will go back on at 275. Mg per day if my Haemoglobin stays at about 82 by
Hi Wonderwomen, I have been on olaparib for just under 3 months. It depressed my bone marrow production of red blood cells, I became very anaemicand was given 3 blood transfusions last week, taken off olaparib for 14 days and will go back on at 275. Mg per day if my Haemoglobin stays at about 82 by
Trickysite
in
My Ovacome
2 years ago
Renal Biopsy Gone Wrong
On March 16, I had a CT guided Renal Biopsy. The procedure itself went smoothly and pain free. Post procedure I was observed for about 45 minutes and then sent home to resume normal activity. By the time I reached my house (15 minutes) I was in so much pain it was blurring my vision. My wife made me
On March 16, I had a CT guided Renal Biopsy. The procedure itself went smoothly and pain free. Post procedure I was observed for about 45 minutes and then sent home to resume normal activity. By the time I reached my house (15 minutes) I was in so much pain it was blurring my vision. My wife made me
MSWwv
in
Kidney Disease
2 years ago
I am exhausted
Had a blood transfusion a month ago , had two periods this month, a shopping trip to asda zonked me out. Monday due to have bloods tests
Had a blood transfusion a month ago , had two periods this month, a shopping trip to asda zonked me out. Monday due to have bloods tests
Bluelady-sing
in
Pelvic Pain Support Network
2 years ago
Covid 19 Shot and ITP
Has anyone else in this group develop ITP after getting their Covid 19 shot? One week after getting my first Pfizer Covid 19 shot I developed ITP. My count dropped to 3,000 and was hospitalized for a week getting a platelet transfusion and IVIG treatments. After 8 months of treatment I am now considered
Has anyone else in this group develop ITP after getting their Covid 19 shot? One week after getting my first Pfizer Covid 19 shot I developed ITP. My count dropped to 3,000 and was hospitalized for a week getting a platelet transfusion and IVIG treatments. After 8 months of treatment I am now considered
hiltonhead
in
ITP Support Association
3 years ago
Headaches
I was diagnosed with ITP 8 months ago after I got my first Covid 19 shot. A week after the shot I had bruising all over my arms and stomach. I went to my doctor and my platelet count was 3,000. I was put in the hospital for a week and given a platelet transfusion and IVIG treatment. Since then I
I was diagnosed with ITP 8 months ago after I got my first Covid 19 shot. A week after the shot I had bruising all over my arms and stomach. I went to my doctor and my platelet count was 3,000. I was put in the hospital for a week and given a platelet transfusion and IVIG treatment. Since then I
hiltonhead
in
ITP Support Association
3 years ago
On to Vonjo
My wife was diagnosed with ET in the early 90's and started on Hydrea then moved to Anagrelide. Then it progressed to MF and she was on Jakafi and then Inrebic which stopped because of very low platelets and hemoglobin. Then she started courses of weekly infusions of Azacitidin along with two weeks
My wife was diagnosed with ET in the early 90's and started on Hydrea then moved to Anagrelide. Then it progressed to MF and she was on Jakafi and then Inrebic which stopped because of very low platelets and hemoglobin. Then she started courses of weekly infusions of Azacitidin along with two weeks
Pte82
in
MPN Voice
2 years ago
ATARI trial
Hi all. Today I had my results from my 2 month scan. It’s showing my lesions had either halved or unmeasurable. These are in my omentum. I do have some others in my pelvic area but again unmeasurable. I do have to say they was small to start off with. I have clear cell cervical cancer but hope this
Hi all. Today I had my results from my 2 month scan. It’s showing my lesions had either halved or unmeasurable. These are in my omentum. I do have some others in my pelvic area but again unmeasurable. I do have to say they was small to start off with. I have clear cell cervical cancer but hope this
Starbarn
in
My Ovacome
2 years ago
SBRT or Lu-PSMA for Oligometastatic HSPC? How about Both?
Here is a personal update about my case. I have been doing follow up PSMA PET scans of pelvic lymph nodes in left pelvis since that region was treated with EBRT in late 2019. PSA dropped from 0.28 to 0.14 following treatment and drifted lower but never undetectable. I have been off of ADT and using cyclic
Here is a personal update about my case. I have been doing follow up PSMA PET scans of pelvic lymph nodes in left pelvis since that region was treated with EBRT in late 2019. PSA dropped from 0.28 to 0.14 following treatment and drifted lower but never undetectable. I have been off of ADT and using cyclic
MateoBeach
in
Advanced Prostate Cancer
2 years ago
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