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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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Possible explanation for lack of hepatic B12 storage
I've seen a few posts on this forum regarding the seemingly inexplicable variations in B12 dosing schedules needed to keep different individuals from experiencing signs of deficiency. Furthermore, it seems that every MD believes one should store enough B12 in the liver for lengthy periods of time without
I've seen a few posts on this forum regarding the seemingly inexplicable variations in B12 dosing schedules needed to keep different individuals from experiencing signs of deficiency. Furthermore, it seems that every MD believes one should store enough B12 in the liver for lengthy periods of time without
USmedsyssucks
in
Pernicious Anaemia Society
3 years ago
Never ending story...
Hello, newbie here...I'll try keep it brief....started with multiple joint pain last Oct, diagnosed 12th March 2021 with RA. Started on Sulfasalazine and Naproxen back then along with a steroid depo, continued to up the dose till max, another depo, put on oral Methotrexate, again upping the dose then
Hello, newbie here...I'll try keep it brief....started with multiple joint pain last Oct, diagnosed 12th March 2021 with RA. Started on Sulfasalazine and Naproxen back then along with a steroid depo, continued to up the dose till max, another depo, put on oral Methotrexate, again upping the dose then
moon10008
in
NRAS
3 years ago
Does this sound ok?
My adult daughter was recently in hospital with a prolapsed disc and had a blood test which showed Hb of 10. Her GP did an iron profile and B12 as her uncle and grandfather had PA. B12 was 169 and ferritin 13 and HCT MCV and transferrin results abnormal. He is starting her on loading B12 injections
My adult daughter was recently in hospital with a prolapsed disc and had a blood test which showed Hb of 10. Her GP did an iron profile and B12 as her uncle and grandfather had PA. B12 was 169 and ferritin 13 and HCT MCV and transferrin results abnormal. He is starting her on loading B12 injections
Lunadoo
in
Pernicious Anaemia Society
3 years ago
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Headaches
Hi everyone I suffered a head injury in October 2020. So just over a year ago and I’ve fortunately recovered quite well. I have suffered and still suffer severe headaches but not as frequent as before. They begin with a pain in the base of my skull/neck and then seem to radiate through my head causing
Hi everyone I suffered a head injury in October 2020. So just over a year ago and I’ve fortunately recovered quite well. I have suffered and still suffer severe headaches but not as frequent as before. They begin with a pain in the base of my skull/neck and then seem to radiate through my head causing
Lottierose1
in
Headway
3 years ago
Can a soft tissue injury exacerbate PMR symptoms?
Seeking a bit of guidance from you lovely people - I injured my left tricep on Monday afternoon and went to A&E on Tuesday as the pain was unbearable. No bones broken and the tendons are intact. It’s my left shoulder that has PMR. The pain in my neck, shoulder and upper arm on my left side is so excruciating
Seeking a bit of guidance from you lovely people - I injured my left tricep on Monday afternoon and went to A&E on Tuesday as the pain was unbearable. No bones broken and the tendons are intact. It’s my left shoulder that has PMR. The pain in my neck, shoulder and upper arm on my left side is so excruciating
Horsewhisper
in
PMRGCAuk
3 years ago
Iron/bloods... confused!
Hi, I was diagnosed with iron deficiency anaemia in May and have been taking iron (gentle iron) and recently had a blood test to see if it had improved. I was annoyed to find that they didn't test ferritin again, just a full blood count. My haemoglobin is now 135 (range 120-150) so bang on. I spoke
Hi, I was diagnosed with iron deficiency anaemia in May and have been taking iron (gentle iron) and recently had a blood test to see if it had improved. I was annoyed to find that they didn't test ferritin again, just a full blood count. My haemoglobin is now 135 (range 120-150) so bang on. I spoke
Curlygal
in
Pernicious Anaemia Society
3 years ago
Advice on ferritin of 18
So here are my recent b12 and ferritin results. B12 looks ok, but ferritin is 18 (range is 15 - 300).I’m tired and my hair is falling out. My TSH is suppressed, and T3 and T4 towards the top of the range. I have no worries about these levels. Question?- will maintaining my healthy, iron rich diet, along
So here are my recent b12 and ferritin results. B12 looks ok, but ferritin is 18 (range is 15 - 300).I’m tired and my hair is falling out. My TSH is suppressed, and T3 and T4 towards the top of the range. I have no worries about these levels. Question?- will maintaining my healthy, iron rich diet, along
Boon79
in
Thyroid UK
3 years ago
Interdependance of iron load and thyroid function
The interrelationship between iron load and thyroid function is pretty well accepted, but I post here a paper showing the effect in children (can extrapolate safely to adults I think). It underlines the need for good iron loading to help rule out or confirm hypothyroidism.
Journal of Clinical and
The interrelationship between iron load and thyroid function is pretty well accepted, but I post here a paper showing the effect in children (can extrapolate safely to adults I think). It underlines the need for good iron loading to help rule out or confirm hypothyroidism.
Journal of Clinical and
diogenes
in
Thyroid UK
3 years ago
Should I get an MMA test?
Backstory - Hashi for 12yrs, 2 + years with added T3. History of blood tests for thyroid and Vits/minerals. I’m not great at taking my Vits/minerals regularly. So I haven’t had any supplements for at least 2mths because I had Covid, family issues and then another serous infection. So here we are with
Backstory - Hashi for 12yrs, 2 + years with added T3. History of blood tests for thyroid and Vits/minerals. I’m not great at taking my Vits/minerals regularly. So I haven’t had any supplements for at least 2mths because I had Covid, family issues and then another serous infection. So here we are with
NWA6
in
Thyroid UK
3 years ago
Iron deficiency anemia yes or no??
Hi there, I’ve just been reading some of the above posts and wondered if you could advise me?? I have Sjögrens and hypothyroidism and over the years I’ve been low on all vitamins tested eg, vit d, folate, vit b12 and recently I had a ferritin test at 31 ( range 13-150). I suffer with rsl . I’ve suffered
Hi there, I’ve just been reading some of the above posts and wondered if you could advise me?? I have Sjögrens and hypothyroidism and over the years I’ve been low on all vitamins tested eg, vit d, folate, vit b12 and recently I had a ferritin test at 31 ( range 13-150). I suffer with rsl . I’ve suffered
Onedge
in
Pernicious Anaemia Society
3 years ago
Iron deficiency anemia yes or no??
Hi there, I’ve just been reading some of the above posts and wondered if you could advise me?? I have Sjögrens and hypothyroidism and over the years I’ve been low on all vitamins tested eg, vit d, folate, vit b12 and recently I had a ferritin test at 31 ( range 13-150). I suffer with rsl . I’ve suffered
Hi there, I’ve just been reading some of the above posts and wondered if you could advise me?? I have Sjögrens and hypothyroidism and over the years I’ve been low on all vitamins tested eg, vit d, folate, vit b12 and recently I had a ferritin test at 31 ( range 13-150). I suffer with rsl . I’ve suffered
Onedge
in
Thyroid UK
3 years ago
Iron Infusions - the type of iron used may matter.
Here is a rather long and confusing article. Read it if you need to be lulled to sleep. https://journals.physiology.org/doi/full/10.1152/japplphysiol.91076.2008 In it I found a ridiculously interesting paragraph as follows: "Deficits in regional brain iron and changes in uptake and efflux of brain
Here is a rather long and confusing article. Read it if you need to be lulled to sleep. https://journals.physiology.org/doi/full/10.1152/japplphysiol.91076.2008 In it I found a ridiculously interesting paragraph as follows: "Deficits in regional brain iron and changes in uptake and efflux of brain
Hidden
in
Restless Legs Syndrome
3 years ago
Intrinsic factor and parietal cell antibody positive but MMA normal is it PA?
I have intrinsic factor abs and anti parietal cells but methylmalonic acid level is normal. B12,folate, hb are all in range.I have Hashis and a range of B12 deficiency systems Could anyone please advise if there is ever a situation when a GP would not prescribe B12 given the ap and IFabs? I am beginning
I have intrinsic factor abs and anti parietal cells but methylmalonic acid level is normal. B12,folate, hb are all in range.I have Hashis and a range of B12 deficiency systems Could anyone please advise if there is ever a situation when a GP would not prescribe B12 given the ap and IFabs? I am beginning
Aumshantii
in
Pernicious Anaemia Society
3 years ago
Dizzy spells and feeling faint.
Hello everyone, I wondered if anyone can help. Last couple of weeks been feeling dizzy, as though I might faint, bit of tingling down arms and missed heart beat, that's a bit rapid It comes on same time of day, early evening but not every day. Could it be the cancer, but wouldn't it happen all the
Hello everyone, I wondered if anyone can help. Last couple of weeks been feeling dizzy, as though I might faint, bit of tingling down arms and missed heart beat, that's a bit rapid It comes on same time of day, early evening but not every day. Could it be the cancer, but wouldn't it happen all the
Hidden
in
The Roy Castle Lung Cancer Foundation
3 years ago
Dry eyes & Vitamin B12
Hi, I have just come across an article online which I thought may be of interest to anyone who suffers from dry eyes as I do: [i]Vitamin B12 is a water-soluble vitamin that helps the body make DNA and nerve cells. Deficiency of this nutrient is associated with severe dry eye disease and eye pain, according
Hi, I have just come across an article online which I thought may be of interest to anyone who suffers from dry eyes as I do: [i]Vitamin B12 is a water-soluble vitamin that helps the body make DNA and nerve cells. Deficiency of this nutrient is associated with severe dry eye disease and eye pain, according
Moggy1234
in
Pernicious Anaemia Society
3 years ago
Aching Joints - Cod Liver Oil supplement?
I had my bloods done in August this year. Although I feel mostly ok, my joints have been hurting quite a lot recently and I am wondering whether to take some cod liver oil. I am currently taking 100mcg Levothyroxine, 1000mcgs methylcobalamin, complete B complex, Vitamin D3 5000iu and vitamin K2 1000ug
I had my bloods done in August this year. Although I feel mostly ok, my joints have been hurting quite a lot recently and I am wondering whether to take some cod liver oil. I am currently taking 100mcg Levothyroxine, 1000mcgs methylcobalamin, complete B complex, Vitamin D3 5000iu and vitamin K2 1000ug
Jillycee
in
Thyroid UK
3 years ago
After embryo transfer vitamins omega 3 fish oil- cod liver tablets safe? Please advise?
Omega 3 fish oil - cod liver oil safe after embryo transfer please advise iv been taking it for months this is my last FET try i dont want anything to mess up please help xx
Omega 3 fish oil - cod liver oil safe after embryo transfer please advise iv been taking it for months this is my last FET try i dont want anything to mess up please help xx
Rosie90
in
Fertility Network UK
3 years ago
Iron blood test
I've ordered a full iron panel test from medichecks, but just wondering presumably I should stop my b vitamin complex a week ahead, but what about my iron supplements? Should I stop these as with any thyroid test?
I've ordered a full iron panel test from medichecks, but just wondering presumably I should stop my b vitamin complex a week ahead, but what about my iron supplements? Should I stop these as with any thyroid test?
Molly161018
in
Thyroid UK
3 years ago
Cod liver oil and vit d
I'm supplementing vit d3 with K2 and magnesium, I'm starting high strength cod liver oil and would like to know if I could take them all together?
I'm supplementing vit d3 with K2 and magnesium, I'm starting high strength cod liver oil and would like to know if I could take them all together?
Geegee777
in
Thyroid UK
3 years ago
Raised LFT Question
Good morning, I was wondering if anyone could offer me any insight to my blood test results. I used Thriva to check my Liver function amongst other things and all come back ok except GGT of 112. I mentioned to GP and she ordered some more blood tests. In the meanwhile I have had a hysterectomy almost
Good morning, I was wondering if anyone could offer me any insight to my blood test results. I used Thriva to check my Liver function amongst other things and all come back ok except GGT of 112. I mentioned to GP and she ordered some more blood tests. In the meanwhile I have had a hysterectomy almost
Purpleloulou27
in
British Liver Trust
3 years ago
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