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Pernicious anaemia
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Iron could help B12 levels
Hi everyone, I’ve never post before… but I came across some useful information that could help you all. In my own personal experience I developed a b12 deficiency for no particular reason, I’ve been tested for pernicious anemia and that came back negative, I put it down to a mixture of a restricted
Hi everyone, I’ve never post before… but I came across some useful information that could help you all. In my own personal experience I developed a b12 deficiency for no particular reason, I’ve been tested for pernicious anemia and that came back negative, I put it down to a mixture of a restricted
MarvelDC
in
Pernicious Anaemia Society
6 months ago
Boron, an interesting article about supplement for T3 increase
Found this article which I found interesting as a possible supplement to assist with T3 may consider after next blood test if no improvement. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4712861/?fbclid=IwAR3dMJ-9rLLZ47g1qBU4LbMViJROk8gIbRNhijGMMW3giwHjVbsY06Huppk
Found this article which I found interesting as a possible supplement to assist with T3 may consider after next blood test if no improvement. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4712861/?fbclid=IwAR3dMJ-9rLLZ47g1qBU4LbMViJROk8gIbRNhijGMMW3giwHjVbsY06Huppk
Humphre
in
Thyroid UK
6 months ago
hematocrit 23 - blood transfusion
My husband’s mylofrobisis has progressed to high risk . He was just put on jakafi at 10mg twice a day for about a month now He feels much better after changing from droxia to Jakafi and his appetite is good and not as anemic.. however we just came in from seeing his MPN doctor and his hemoglobin
My husband’s mylofrobisis has progressed to high risk . He was just put on jakafi at 10mg twice a day for about a month now He feels much better after changing from droxia to Jakafi and his appetite is good and not as anemic.. however we just came in from seeing his MPN doctor and his hemoglobin
Bainbridge
in
MPN Voice
11 months ago
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how do you get PA
hi everyone This may sound like a stupid question but I was wondering what makes you get pernicious anemia? Also is anyone experiencing fatigue whilst still taking the injection, I’ve got to wait another 4 weeks before my next one and I feel so tired
hi everyone This may sound like a stupid question but I was wondering what makes you get pernicious anemia? Also is anyone experiencing fatigue whilst still taking the injection, I’ve got to wait another 4 weeks before my next one and I feel so tired
Becca2023
in
Pernicious Anaemia Society
1 year ago
Advice on latest test results
Hi, I got diagnosed with underactive thyroid in September 2023. I was put on 50g of Levothyroxine and iron tablets as I had low ferritin and anemic. My latest results show I'm no longer anemic but my ferritin is still relativity low despite having been on iron tablets for 2 months. Dr seems to be
Hi, I got diagnosed with underactive thyroid in September 2023. I was put on 50g of Levothyroxine and iron tablets as I had low ferritin and anemic. My latest results show I'm no longer anemic but my ferritin is still relativity low despite having been on iron tablets for 2 months. Dr seems to be
Shoesy99
in
Thyroid UK
6 months ago
interesting find
has anyone tried grass fed beef liver supplements. I’m wondering if these freeze dried capsules would be beneficial because of the vitamins and minerals in them as I don't seem to be able to keep my levels of anything up without supplementing. As soon as I stop they seem to drop again quite quickly ,
has anyone tried grass fed beef liver supplements. I’m wondering if these freeze dried capsules would be beneficial because of the vitamins and minerals in them as I don't seem to be able to keep my levels of anything up without supplementing. As soon as I stop they seem to drop again quite quickly ,
Thrones12
in
Pernicious Anaemia Society
11 months ago
Help with diagnosis
Hi, I have
pernicious
anaemia
(PA) and members from the PA society group on HealthUnlocked signposted me here. Some of the symptoms of hypothyroidism and PA overlap. I dont seem to be responding as well as I expected with B12 injections for PA and my last bloods show a 'normal' range for TSH.
Hi, I have
pernicious
anaemia
(PA) and members from the PA society group on HealthUnlocked signposted me here. Some of the symptoms of hypothyroidism and PA overlap. I dont seem to be responding as well as I expected with B12 injections for PA and my last bloods show a 'normal' range for TSH.
Beccy_123
in
Thyroid UK
1 year ago
Conjecture
I use conjecture as part of my creative process. Thing is I do not pretend it is anything but conjecture. Using those who share their experience on this forum it seems to me that of the three forms readily commercially available Methylcobalamin has the most profound effect. As a person who is not
I use conjecture as part of my creative process. Thing is I do not pretend it is anything but conjecture. Using those who share their experience on this forum it seems to me that of the three forms readily commercially available Methylcobalamin has the most profound effect. As a person who is not
WIZARD6787
in
Pernicious Anaemia Society
6 months ago
iron results
I’d appreciate some feedback on my iron panel results please? I know my ferritin is too low, even if it’s above the bottom of the range. I upped how much black pudding, pate, or liver I’m eating at 5 out of 7 days a week for over a couple of months. Is my iron too decent enough to be able to take
I’d appreciate some feedback on my iron panel results please? I know my ferritin is too low, even if it’s above the bottom of the range. I upped how much black pudding, pate, or liver I’m eating at 5 out of 7 days a week for over a couple of months. Is my iron too decent enough to be able to take
Dandelade
in
Thyroid UK
6 months ago
b12 and Anxiety
Why does b12 injections make my anxiety worse for a few days?I have anemia. Have had 3 injections and have 5 more to go.
Why does b12 injections make my anxiety worse for a few days?I have anemia. Have had 3 injections and have 5 more to go.
84withb12d
in
Pernicious Anaemia Society
11 months ago
Supplements
Hi lovely people. Just a question. In the past, I have had v low iron, folate rock bottom and prob other vitamins low that I never had checked. I have worked a lot on my micro biome/gut this past year plus supplementing continuously. I cut out gluten as leaky gut was diagnosed through a test.
Hi lovely people. Just a question. In the past, I have had v low iron, folate rock bottom and prob other vitamins low that I never had checked. I have worked a lot on my micro biome/gut this past year plus supplementing continuously. I cut out gluten as leaky gut was diagnosed through a test.
FoxyTed
in
Thyroid UK
6 months ago
Positive Reticulin Antibodies Test
I joined the
pernicious
anaemia
forum to find possible answers and finally sent off for some private comprehensive PA blood tests. These appear to be negative, although I'm awaiting any insights from the PAS forum members.
I joined the
pernicious
anaemia
forum to find possible answers and finally sent off for some private comprehensive PA blood tests. These appear to be negative, although I'm awaiting any insights from the PAS forum members.
KBird01
in
Crohn's and Colitis Support
1 year ago
Positive Reticulin Antibodies
I joined the
pernicious
anaemia
forum to find possible answers and finally sent off for some private comprehensive PA blood tests. These appear to be negative, although I'm awaiting any insights from the PAS forum members.
I joined the
pernicious
anaemia
forum to find possible answers and finally sent off for some private comprehensive PA blood tests. These appear to be negative, although I'm awaiting any insights from the PAS forum members.
KBird01
in
Gluten Free Guerrillas
1 year ago
RE iron tablet recommendations
Hi again I have to get my iron levels up.. I have one perscription from my GP for 305 mg Caps Ferrous fumurate (but when I go to the pharmacies here they only have Galfer which has sooo many horrible ingredients, some of which have been banned in Australia, some euro countries)... And my private Endo
Hi again I have to get my iron levels up.. I have one perscription from my GP for 305 mg Caps Ferrous fumurate (but when I go to the pharmacies here they only have Galfer which has sooo many horrible ingredients, some of which have been banned in Australia, some euro countries)... And my private Endo
ChristinaMay
in
Thyroid UK
6 months ago
Low UIBC result from bloodwork?
Hi, All. I had bloodwork done recently and I'm wondering if anyone knows if the low UIBC might be affecting my RLS/PLMD. Ferritin was 169 (down from very high values after a blood infusion for rls in April 2021). The UIBC was flagged as Low at 126, Iron Saturation was flagged as high: Iron 172 UIBC
Hi, All. I had bloodwork done recently and I'm wondering if anyone knows if the low UIBC might be affecting my RLS/PLMD. Ferritin was 169 (down from very high values after a blood infusion for rls in April 2021). The UIBC was flagged as Low at 126, Iron Saturation was flagged as high: Iron 172 UIBC
TeddiJ
in
Restless Legs Syndrome
11 months ago
Should we lobby for modern healthcare to be a blend of Conventional Medicine AND Functional Medicine?
This is my question of the day... We are all suffering, horribly. From ignorance, mainly. Sorry to point it out... Management of B12, of gut health, of everything that happens to a body from a deficiency relies on the study of functional medicine. It is not the domain of conventional medicine, e.g
This is my question of the day... We are all suffering, horribly. From ignorance, mainly. Sorry to point it out... Management of B12, of gut health, of everything that happens to a body from a deficiency relies on the study of functional medicine. It is not the domain of conventional medicine, e.g
Pickle500
in
Pernicious Anaemia Society
11 months ago
I'm Alive!
I had heard that some of you were looking for me. I have not been on too much these past few months as I had completely crashed, completely non-functional, with a severe case of iron deficiency. I apologize for not posting what was going on with me sooner. But the severe, severe fatigue just did
I had heard that some of you were looking for me. I have not been on too much these past few months as I had completely crashed, completely non-functional, with a severe case of iron deficiency. I apologize for not posting what was going on with me sooner. But the severe, severe fatigue just did
Rexz
in
Pernicious Anaemia Society
11 months ago
B12 deficiency - it’s official! What next?
Thank you to all the kind people who responded to my first enquiry seven months ago - you can see the history here https://healthunlocked.com/pasoc/posts/149321418/should-i-be-asking-for-a-test-for-pa?responses=149357417 After correcting a folate deficiency at the beginning of the year my B12 levels
Thank you to all the kind people who responded to my first enquiry seven months ago - you can see the history here https://healthunlocked.com/pasoc/posts/149321418/should-i-be-asking-for-a-test-for-pa?responses=149357417 After correcting a folate deficiency at the beginning of the year my B12 levels
Realtiger
in
Pernicious Anaemia Society
6 months ago
B12 advice needed
anaemia
screen done last week, and the note from the GP on this was: "The
pernicious
anaemia
screen was negative, therefore you do not have
pernicious
anaemia
and should not need to have B12 injections.
anaemia
screen done last week, and the note from the GP on this was: "The
pernicious
anaemia
screen was negative, therefore you do not have
pernicious
anaemia
and should not need to have B12 injections.
crabapple1
in
Thyroid UK
2 years ago
B12 deficiency and Metformin
The following is likely of interest to people on Metformin https://www.gov.uk/drug-safety-update/metformin-and-reduced-vitamin-b12-levels-new-advice-for-monitoring-patients-at-risk Of special interest is the following excerpt: * administer corrective treatment for vitamin B12 deficiency in line with
The following is likely of interest to people on Metformin https://www.gov.uk/drug-safety-update/metformin-and-reduced-vitamin-b12-levels-new-advice-for-monitoring-patients-at-risk Of special interest is the following excerpt: * administer corrective treatment for vitamin B12 deficiency in line with
WiscGuy
in
Pernicious Anaemia Society
11 months ago
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