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Pernicious anaemia
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Update- I no longer take Dipyridamole
I have been meaning to update the group on this. I have stopped taking Dipyridamole for over a month now, closer to two months. I took Dipyridamole for two years. I was nearing the end of my Dipyridamole supply. I was wondering how much it was helping. So I stopped abruptly. Since then I have
I have been meaning to update the group on this. I have stopped taking Dipyridamole for over a month now, closer to two months. I took Dipyridamole for two years. I was nearing the end of my Dipyridamole supply. I was wondering how much it was helping. So I stopped abruptly. Since then I have
WideBody
in
Restless Legs Syndrome
8 months ago
Liposomal Iron
I have atrophic gastritis and my stomach can not tolerate normal iron supplements.I came across Liposomal on the web and wondered if anyone has had any success taking this supplement please as I am iron deficient ? Thanks
I have atrophic gastritis and my stomach can not tolerate normal iron supplements.I came across Liposomal on the web and wondered if anyone has had any success taking this supplement please as I am iron deficient ? Thanks
davina70
in
Pernicious Anaemia Society
8 months ago
Diagnosis
Good Morning I have suffered with my condition for over 20 years and have also been told I was born with it, the doctor agrees I have all the symptoms of fibromyalgia but says they haven't givin it that label as it all falls under the same umbrella of musculoskeletal disorder, which is what I have
Good Morning I have suffered with my condition for over 20 years and have also been told I was born with it, the doctor agrees I have all the symptoms of fibromyalgia but says they haven't givin it that label as it all falls under the same umbrella of musculoskeletal disorder, which is what I have
pixieraine23
in
Fibromyalgia Action UK
8 months ago
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Anyone have hypercalcemia?
Hi, All! I've been doing pretty well since my diagnosis and b12 injections for 5 months or so. I still had some lingering symptoms that I felt were not related to pernicious anemia. Anyway, the other day I ended up in the ER with kidney stones and hyponephrosis (urine backing up into kidney, swollen
Hi, All! I've been doing pretty well since my diagnosis and b12 injections for 5 months or so. I still had some lingering symptoms that I felt were not related to pernicious anemia. Anyway, the other day I ended up in the ER with kidney stones and hyponephrosis (urine backing up into kidney, swollen
Iheartb12
in
Pernicious Anaemia Society
8 months ago
Exhaustion
Hello, my husband has 'early child a chirrosis' he has previously had bleeding varices and he has a clot on his portal vein. This is all due to complications following a splenectomy, which caused the clot, which is turn affected the liver. He is currently working stretches of 7 days in a row, with a
Hello, my husband has 'early child a chirrosis' he has previously had bleeding varices and he has a clot on his portal vein. This is all due to complications following a splenectomy, which caused the clot, which is turn affected the liver. He is currently working stretches of 7 days in a row, with a
Lili6
in
British Liver Trust
8 months ago
What does this mean?
Hi. Me = male, ET, 80 year old. I am off to see the Haematologist on Tuesday so I asked the GP surgery for a copy of my latest Blood count - and I would appreciate any comments. All levels refer to 'normal' reference ranges My White Blood Cell count, MCV, MCH, Neutrophil and Basophil are all above
Hi. Me = male, ET, 80 year old. I am off to see the Haematologist on Tuesday so I asked the GP surgery for a copy of my latest Blood count - and I would appreciate any comments. All levels refer to 'normal' reference ranges My White Blood Cell count, MCV, MCH, Neutrophil and Basophil are all above
quanglewangle
in
MPN Voice
8 months ago
B12 217ng/L low folate/serum ferritin
Hello,I have been suffering with exhaustion, lighted head and occasionally hard to catch my breath. My doctor ran bloods, my folate is low at 3.4ug/L, serum ferritin 19.9ug/L and B12 is within range at 218ng/L(but low end). I'm wondering did anyone take B12 shots with these levels and did it help? Or
Hello,I have been suffering with exhaustion, lighted head and occasionally hard to catch my breath. My doctor ran bloods, my folate is low at 3.4ug/L, serum ferritin 19.9ug/L and B12 is within range at 218ng/L(but low end). I'm wondering did anyone take B12 shots with these levels and did it help? Or
Sotired3
in
Pernicious Anaemia Society
8 months ago
adrenaline surges
I’m getting early morning adrenaline surges which I find so uncomfortable I’m not clear if they are thyroid related or because I’m post meno or because I have
pernicious
anaemia
they can happen in the middle of the night too Any ideas on how to stop them gratefully received
I’m getting early morning adrenaline surges which I find so uncomfortable I’m not clear if they are thyroid related or because I’m post meno or because I have
pernicious
anaemia
they can happen in the middle of the night too Any ideas on how to stop them gratefully received
Mag999
in
Thyroid UK
1 year ago
Un knowledgable Neurologist aahhh!!
Hi, I am writing again to get the advice I have been waiting for months to see a neurologist and just heard today that the neurologist is not going to see me because of my b12 numbers He has decided even with all my neurological and neuropathy symptoms, and that after my doctor did tests and believed
Hi, I am writing again to get the advice I have been waiting for months to see a neurologist and just heard today that the neurologist is not going to see me because of my b12 numbers He has decided even with all my neurological and neuropathy symptoms, and that after my doctor did tests and believed
brenanddave
in
Pernicious Anaemia Society
8 months ago
Advice on best treatment
I have had CLL since 2013 watch and wait. Recently hemoglobin levels dropped and a bit anemic so been advised 3 types of treatment. However left to make own choice. Guess would like to know what other people have tried and how effective treatment was.
I have had CLL since 2013 watch and wait. Recently hemoglobin levels dropped and a bit anemic so been advised 3 types of treatment. However left to make own choice. Guess would like to know what other people have tried and how effective treatment was.
Guinness4822
in
CLL Support
8 months ago
Elderly mum's blood test results (part 2)
I didn't ask for the
pernicious
anaemia
test - would it be a good idea to do this tomorrow? My mum does have slow onset dementia too so all this is very hard for her.
I didn't ask for the
pernicious
anaemia
test - would it be a good idea to do this tomorrow? My mum does have slow onset dementia too so all this is very hard for her.
Pinkpetite
in
Thyroid UK
10 months ago
Please some help treating low b12
Hi I have had low b12 for over 15 years I was first given injections in my 20s then told I was cured I became ill and struggled to walk shortly after I was then diagnosed with chronic fatigue syndrome for the following 10 years by this time I was almost bedbound after searching the Internet with my systems
Hi I have had low b12 for over 15 years I was first given injections in my 20s then told I was cured I became ill and struggled to walk shortly after I was then diagnosed with chronic fatigue syndrome for the following 10 years by this time I was almost bedbound after searching the Internet with my systems
Tbob
in
Pernicious Anaemia Society
8 months ago
Iron and magnesium levels plus
Hi everyone. I recently had blood tests done as suggested and results have come back showing slightly low magnesium level at 0.68mmol/L and serum ferritin level of 60ng/ml. (Low?) I've been asked to go back for retest on the magnesium but no mention of the iron? Looking back on my test results I had
Hi everyone. I recently had blood tests done as suggested and results have come back showing slightly low magnesium level at 0.68mmol/L and serum ferritin level of 60ng/ml. (Low?) I've been asked to go back for retest on the magnesium but no mention of the iron? Looking back on my test results I had
GreyMaus
in
Restless Legs Syndrome
8 months ago
Is it reliable and trusty to measure homocystein after loading doses of b12 injections?
Hello everyoneone. I injected b12 shots last week. And wanted to test my homocystein level in order to make sure that i have really b12 deficiency. But i learned about homocystein after injections of b12. My lab results of vit b12 was 165pg/ml(160-944)I wondered whether homocystein level affeteed by
Hello everyoneone. I injected b12 shots last week. And wanted to test my homocystein level in order to make sure that i have really b12 deficiency. But i learned about homocystein after injections of b12. My lab results of vit b12 was 165pg/ml(160-944)I wondered whether homocystein level affeteed by
Emiroskui
in
Pernicious Anaemia Society
8 months ago
What ? and Watt !! 😜
Our power cells are called mitochondria (might oh con dria). We have trillions of them. Some cells just have one, other cells have hundreds. Special processes occur in the outer bit (or matrix) of our power cells where the food we eat and the oxygen we breathe is transformed into energy. In order for
Our power cells are called mitochondria (might oh con dria). We have trillions of them. Some cells just have one, other cells have hundreds. Special processes occur in the outer bit (or matrix) of our power cells where the food we eat and the oxygen we breathe is transformed into energy. In order for
Narwhal10
in
Pernicious Anaemia Society
8 months ago
Have I progressed to PV?
Hello everyone, I have had ET, Jak2+ for 5-1/2 years and my platelets have been rising the past 1-1/2 years above normal range. Recently, I had routine blood work ordered by my GP and the results showed an almost 200 thousand increase in platelets since May from 629 to 805. I messaged my MPN specialist
Hello everyone, I have had ET, Jak2+ for 5-1/2 years and my platelets have been rising the past 1-1/2 years above normal range. Recently, I had routine blood work ordered by my GP and the results showed an almost 200 thousand increase in platelets since May from 629 to 805. I messaged my MPN specialist
mbr8076
in
MPN Voice
8 months ago
accord brand of buprenorphine causing nausea???
hello - I started taking the accord brand of buprenorphine last night having moved from the morningside make because those tablets were small and difficult to cut…… after half a tablet I had panic / shakiness that I hadn’t experienced with the morningside tablets…. After three x half tablets (0.6mg)
hello - I started taking the accord brand of buprenorphine last night having moved from the morningside make because those tablets were small and difficult to cut…… after half a tablet I had panic / shakiness that I hadn’t experienced with the morningside tablets…. After three x half tablets (0.6mg)
Drls
in
Restless Legs Syndrome
8 months ago
Anaemia
Well, seems that I am anaemic after all: blood tests at Marsden showef Hb of 114: low enough for me to feel lousy but not low enough for transfusion. Maybe one unit in s couple of weeks time if on retesting. Its dropprd below 110. Will then try starting EPO injections when I get back from holiday
Well, seems that I am anaemic after all: blood tests at Marsden showef Hb of 114: low enough for me to feel lousy but not low enough for transfusion. Maybe one unit in s couple of weeks time if on retesting. Its dropprd below 110. Will then try starting EPO injections when I get back from holiday
Rachelthepotter
in
MPN Voice
8 months ago
How quickly does homocysteine rise following cessation of B12 injections?
Previous post for context: @https://healthunlocked.com/pasoc/posts/149711971/antibody-to-transcobalamin-ii-causing-functional-b12-deficiency?responses=149728666 I have been trying to convince doctors that I need daily injections to prevent B12 deficiency symptoms from returning. They simply do not believe
Previous post for context: @https://healthunlocked.com/pasoc/posts/149711971/antibody-to-transcobalamin-ii-causing-functional-b12-deficiency?responses=149728666 I have been trying to convince doctors that I need daily injections to prevent B12 deficiency symptoms from returning. They simply do not believe
jeremycat_
in
Pernicious Anaemia Society
8 months ago
My 25year old son's blood test results
Someone on the forum suggested investigating
Pernicious
Anaemia
also.
Someone on the forum suggested investigating
Pernicious
Anaemia
also.
Mindseye
in
Thyroid UK
1 year ago
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