Experiences with

Pernicious anaemia

I have been told by a private Dr that I have Pernicious Anaemia causing an autoimmune reaction in my stomach so have been giving regular b12 injections and feeling much improved.

https://www.justgiving.com/page/rebecca-garner-pernicious-anaemia-bath-half?utm_medium=fundraising&utm_content=page%2Frebecca-garner-pernicious-anaemia-bath-half&utm_source=copyLink&utm_campaign=pfp-share

The presence of anti intrinsic factor antibodies together with a low vitamin B12 level is diagnostic of pernicious anaemia Does this make sense to anyone and could you please explain it to me as they said I had pernicious anaemia but didn't fully explain the results. Thanks in advance

This Pernicious Anaemia Society blog was highlighted by   Sleepybunny - and almost immediately stolen and posted here by me. This was her blog: [i]This one written by PAS (Pernicious Anaemia Society) chair Katrina Burchell is definitely worth reading. I'm sure many of us can relate to these issues.

We are the only charity worldwide funding such research into Pernicious Anaemia. https://pernicious-anaemia-society.org/member/

So as well as Pernicious Anaemia it seems I may have acquired aplastic anaemia according to my bone marrow results. Does anyone else have this?

v=_lcFObGTK48 Of course, even if we can absorb it via our lungs - whether or not we have Pernicious Anaemia - any impairment to enterohepatic recirculation would imply the dose required would be much greater. And total safe lung-deliverable dose might be less than is required.

v=_lcFObGTK48 Of course, even if we can absorb it via our lungs - whether or not we have Pernicious Anaemia - any impairment to enterohepatic recirculation would imply the dose required would be much greater. And total safe lung-deliverable dose might be less than is required.

She has booked me for another gastroscopy for her to do biopsies to confirm whether I have pernicious anaemia or not. I am now wondering whether I do have true Pernicious Anaemia. I self inject twice a week and sometimes still have pins and needles and weakness, however has much improved.

I am at the start of this minefield of Pernicious Anaemia, after reading the struggles of PA stories and this site, I feel fortunate that I have not suffered as many members have.

I am so glad I am not the only one I was recently changed to a different surgery in our old surgery I was having vit b12 injections for at least 10 yrs my mother had pernicious anaemia and died at the age of 52 but she refused her injections I was diagnosed as probable pernicious anaemia as there's a

I also mentioned Pernicious Anaemia and Intrinsic Factor needing tested but again very dismissive. I am wondering if this is normal to need to effectively jump through hoops for a simple vitamin check?

We know that certain gastric operations cause Pernicious Anaemia and therefore lifelong b12 injections are required . But what I’ve never seen mentioned is the possibility of radiotherapy cancer treatment in the region of the stomach that contains the parietal cells , causing Pernicious Anaemia .

., but I know they don’t always accurately reflect the underlying condition.It also means my pernicious anaemia could be due to long term use of PPIs rather than autoimmune gastritis. (By the way stopped PPIs in December last year) .

% of patients that test negative for intrinsic factor antibodies can still have pernicious anaemia. Any other articles that may help my support me in getting my injections reinstated.

Hello, Do you have to stop supplementing B12 in order to test for PA? What specific tests should I be requesting to rule this out please? Thanks GTS

And Pernicious Anaemia is not my focus.)

https://pernicious-anaemia-society.org/contact/ https://pernicious-anaemia-society.org/member-support-groups/ Maybe PAScommswould know.

I was diagnosed with Pernicious Anaemia in 2018 but was not aware that I needed injections for it, so took oral supplements instead. I switched GP's a few years ago and asked for injections when I became aware that they were necessary.

Psychology in Wellness – Pernicious Anaemia https://pernicious-anaemia-society.org/blog/hope-and-psychology-in-wellness-pernicious-anaemia/