Help with diagnosis

[Beccy_123]

Hi, I have pernicious anaemia (PA) and members from the PA society group on HealthUnlocked signposted me here.

Some of the symptoms of hypothyroidism and PA overlap. I dont seem to be responding as well as I expected with B12 injections for PA and my last bloods show a 'normal' range for TSH. I cannot see more detailed thyroid tests in my record over the years despite complaining of chronic fatigue and GI issues for decades, and no real investigation and diagnosis.

I cannot fight with my GP anymore for tests, it doesnt amount to anything. Are there privat tests which dont cost the earth which could persuade my GP to investigate further. I f I had the funds, I would see a private functional doc and get tests done there but I cant stretch to it ATM.

Where do I start? Thyroids seem very complex!

Thank you 🙏

[Jaydee1507 Administrator]

I'll post the link to the companies T UK recommends. Personally I use Medichecks to get full thyroid, antibodies and key vitamins checked as I need a blood draw. The cheapest is Monitor my health which is a finger prick test by post. Use the discount codes from T UK in the link. thyroiduk.org/help-and-supp...

Have you had your key vitamins checked lately - ferritin, folate, B12 & D3? Also required as cofactors for B12.

Always test at 9am or as close as possible as that is when TSH is highest.

[SlowDragon Administrator]

welcome to the forum

Thousands of people have to test privately to make progress

ALWAYS test thyroid levels early morning, ideally around 9am

How frequently do you get B12 injections

Perhaps test week or two after B12 injection

Essential to test Vitamin D, folate and ferritin and TPO and TG thyroid antibodies too

Are you currently taking any vitamin supplements (apart from B12 injections)

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

Monitor My Health also now offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65 

(But Doesn’t include thyroid antibodies) 

monitormyhealth.org.uk/full...

10% off code here 

thyroiduk.org/getting-a-dia...

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

Only do private testing early Monday or Tuesday morning. 

Watch out for postal strikes, probably want to pay for guaranteed 24 hours delivery 

[Beccy_123 in reply to SlowDragon]

Thank you. I would like to try and get these tests from my GP first. Can you recommend a resource to help obtain these tests? Eg symptom checker? I inject B12 every other day...

[SlowDragon Administrator in reply to Beccy_123]

Symptoms of hypothyroidism 

thyroiduk.org/wp-content/up...

low iron/ferritin

mayoclinic.org/diseases-con...

low vitamin D extremely common with any autoimmune disease

Symptoms

healthline.com/nutrition/vi...

Low folate

my.clevelandclinic.org/heal...