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Pernicious anaemia
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Your thyroid and iron deficiency stories, please
My ferritin is now 7. (Safe levels being 13 and above). Haemoglobin is 114 (Safe levels used to be 120 and above but now all of a sudden are 115. Surely just a coincidence that it’s women who experience lower iron levels, as a rule. Surely). MCHC, transferrin, serum iron etc all out of whack, too
My ferritin is now 7. (Safe levels being 13 and above). Haemoglobin is 114 (Safe levels used to be 120 and above but now all of a sudden are 115. Surely just a coincidence that it’s women who experience lower iron levels, as a rule. Surely). MCHC, transferrin, serum iron etc all out of whack, too
HowNowWhatNow
in
Thyroid UK
10 months ago
German online Hydroxocobalamin ??
Help! Today I went online to find my ordinary package of 10 "ampullen" B12 Hydroxocobalamin on Amazon.de, but they only had cyano..., and so did Versand Apo, Flensburg Apo, Or..., they did not ship to outside Germany. Help, help, what to do? I cannot handle cyano cobalamin, and here in Denmark, it
Help! Today I went online to find my ordinary package of 10 "ampullen" B12 Hydroxocobalamin on Amazon.de, but they only had cyano..., and so did Versand Apo, Flensburg Apo, Or..., they did not ship to outside Germany. Help, help, what to do? I cannot handle cyano cobalamin, and here in Denmark, it
indywindy
in
Pernicious Anaemia Society
1 year ago
Vits tested
I’ll ask the GP for some iron, I’ve bought a blood test online which is more thorough. Waiting for day 3 of my period as there’s lots of hormones included, just wondered if the b12 or folate are ok? Serum vitamin B12 level 311 ng/L [180 - 640] Serum ferritin level 20 ng/ml [15 - 200] Serum folate
I’ll ask the GP for some iron, I’ve bought a blood test online which is more thorough. Waiting for day 3 of my period as there’s lots of hormones included, just wondered if the b12 or folate are ok? Serum vitamin B12 level 311 ng/L [180 - 640] Serum ferritin level 20 ng/ml [15 - 200] Serum folate
Happytiredbunny
in
Thyroid UK
1 year ago
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Low folate and neurological symptoms
Hi All I have low folate at the moment and neurological symptoms. I also have another condition that does affect me neurologically so I'm not sure whether it is that or the folate deficiency that is causing my recent symptoms. I have numbness is my face mainly on one side but also in my back and
Hi All I have low folate at the moment and neurological symptoms. I also have another condition that does affect me neurologically so I'm not sure whether it is that or the folate deficiency that is causing my recent symptoms. I have numbness is my face mainly on one side but also in my back and
Galaxy2
in
Gluten Free Guerrillas
1 year ago
High active b12
Hi everyone just wanted to know is it normal to have high active b12 when on 3 monthly Injections. I have had a private blood test done for multiple thing. Thyroid anemia ect included was active b12 which has come back at >300 pnol/L my last injection was December. Bit worried at how high it is.
Hi everyone just wanted to know is it normal to have high active b12 when on 3 monthly Injections. I have had a private blood test done for multiple thing. Thyroid anemia ect included was active b12 which has come back at >300 pnol/L my last injection was December. Bit worried at how high it is.
alpeec
in
Pernicious Anaemia Society
1 year ago
Blood test for intrinsic factor. How accurate is it?
Have been well for quite a while on my eight weekly B12 injections but had been referred to a gastroenterologist for worsening IBS . He wants to find out why I have B12 deficiency and has requested I have blood test for intrinsic factor. Just wondering how accurate this is as sure I’ve had before and
Have been well for quite a while on my eight weekly B12 injections but had been referred to a gastroenterologist for worsening IBS . He wants to find out why I have B12 deficiency and has requested I have blood test for intrinsic factor. Just wondering how accurate this is as sure I’ve had before and
Mavis15
in
Pernicious Anaemia Society
1 year ago
What does Anaemic mean ?
I am a bit confused about what anaemic means. I have low folate at 3.82 ( the normal range is >3.89) , and red blood cells are 3.7 ( normal range 3.8 -5.8). Haemoglobin is 135 ( normal range 115-160) This is from blood tests done recently at my surgery. Yet at my last clinic visit my haematologist
I am a bit confused about what anaemic means. I have low folate at 3.82 ( the normal range is >3.89) , and red blood cells are 3.7 ( normal range 3.8 -5.8). Haemoglobin is 135 ( normal range 115-160) This is from blood tests done recently at my surgery. Yet at my last clinic visit my haematologist
jodary
in
MPN Voice
1 year ago
Iron deficiency anemia and increased A1C levels
Have those of you who receive phlebotomy for PV experienced elevated A1C levels? I get phlebotomies ever couple of weeks, which as expected, has caused me to be iron deficient and a bit anemic (HGB 11.1, Ferritin <3 ng/mL, Iron 29, Transferrin 6%, UIBC 434, and IBC 463). I am also on 2 aspirin/
Have those of you who receive phlebotomy for PV experienced elevated A1C levels? I get phlebotomies ever couple of weeks, which as expected, has caused me to be iron deficient and a bit anemic (HGB 11.1, Ferritin <3 ng/mL, Iron 29, Transferrin 6%, UIBC 434, and IBC 463). I am also on 2 aspirin/
LIGEBA
in
MPN Voice
1 year ago
Vitamin D
Good afternoon, I have been asked by my gp to take an over the counter B vitamin supplement that contains at least 400mcg of folic acid. I managed to buy Thorne Basic B complex with folate but I am finding the tablets difficult to swallow because of their size. Can anyone recommend another brand of vitamin
Good afternoon, I have been asked by my gp to take an over the counter B vitamin supplement that contains at least 400mcg of folic acid. I managed to buy Thorne Basic B complex with folate but I am finding the tablets difficult to swallow because of their size. Can anyone recommend another brand of vitamin
Pinkisland
in
Thyroid UK
1 year ago
B12 Deficiency
Hi everyone.hope you are all well.Just wanted some help.I have just been diagnosed with b1w deficiency.My results were 54.4.Havent seen the gp yet appointment ovwr 2 weeks away bit have been prescribed folic acid tablets.In first consultation was told if b1w is low may have to have injections.Just wondered
Hi everyone.hope you are all well.Just wanted some help.I have just been diagnosed with b1w deficiency.My results were 54.4.Havent seen the gp yet appointment ovwr 2 weeks away bit have been prescribed folic acid tablets.In first consultation was told if b1w is low may have to have injections.Just wondered
Rachel20
in
Pernicious Anaemia Society
1 year ago
B12 deficiency
Hi everyone. Just a quick question.I found out yesterday that I am b12 deficient.Before being tested an on seeing my private bloods (b12 54) I was told if it comes back low I may have to have injections.But I was prescribed folic acid tablets via txt message. My gp receptionist called and gp wants to
Hi everyone. Just a quick question.I found out yesterday that I am b12 deficient.Before being tested an on seeing my private bloods (b12 54) I was told if it comes back low I may have to have injections.But I was prescribed folic acid tablets via txt message. My gp receptionist called and gp wants to
Rachel20
in
Thyroid UK
1 year ago
serum iron
While seeing a Dr at Leicester hospital I was asked to have a blood test, it wasn’t a fasting one. I have just had a letter, my serum iron was 12 there is no mention of anything else. The registrar has written “ Low iron can make restless legs worse and therefore I would be grateful if you could investigate
While seeing a Dr at Leicester hospital I was asked to have a blood test, it wasn’t a fasting one. I have just had a letter, my serum iron was 12 there is no mention of anything else. The registrar has written “ Low iron can make restless legs worse and therefore I would be grateful if you could investigate
Elsie77
in
Restless Legs Syndrome
11 months ago
Bloods tests results
I've had some private tests done. These are the results Gastrin 12.6 ng/l (13-115) Gastric Parietal cell abs negative Intrinsic factor abs <1 <6 normal MMA (serum) 37.4 ug/l <32 So I have B12 defiency, but not PA. Any comments welcome
I've had some private tests done. These are the results Gastrin 12.6 ng/l (13-115) Gastric Parietal cell abs negative Intrinsic factor abs <1 <6 normal MMA (serum) 37.4 ug/l <32 So I have B12 defiency, but not PA. Any comments welcome
diamondgirl9022
in
Pernicious Anaemia Society
1 year ago
Clarification of blood results
Hi Could anyone give me some clarity on my anaemia test results received today. Test was done by Monitor My Health but no reference ranges included so all components just say "normal" which is very uninformative and irritating. I know from this forum results need to be optimal. Results: Haemoglobin 128g
Hi Could anyone give me some clarity on my anaemia test results received today. Test was done by Monitor My Health but no reference ranges included so all components just say "normal" which is very uninformative and irritating. I know from this forum results need to be optimal. Results: Haemoglobin 128g
Hollybushroad
in
Thyroid UK
11 months ago
Anaemia after 7years from op
Hi, Has anyone been anaemic after surgery? After 7 years I have now got anaemia. Dr sent me back to consultant and I have had PET scan, endoscopy and colonoscopy. Within 2 weeks which is brilliant service. Having a further CT as colonoscopy wasn’t successful due to my weird anatomy. Consultant said
Hi, Has anyone been anaemic after surgery? After 7 years I have now got anaemia. Dr sent me back to consultant and I have had PET scan, endoscopy and colonoscopy. Within 2 weeks which is brilliant service. Having a further CT as colonoscopy wasn’t successful due to my weird anatomy. Consultant said
kiddy
in
Oesophageal & Gastric Cancer
1 year ago
Any value seeing a gastroenterologist for ET belly bloat?
Greetings All, I've made an appointment to consult with a visiting gastroenterologist for my permanent belly bloat and weight gain (about 4 kg over the past 2 years). I have a hunch this has been caused by the hydroxycarbamide. I'm on a low dose of 500mg/day now and platelets are normal. The belly
Greetings All, I've made an appointment to consult with a visiting gastroenterologist for my permanent belly bloat and weight gain (about 4 kg over the past 2 years). I have a hunch this has been caused by the hydroxycarbamide. I'm on a low dose of 500mg/day now and platelets are normal. The belly
Hidden
in
MPN Voice
1 year ago
Struggling with polyneuropathy - knowledgeable member expertise needed
Hello lovely peeps! I'm new to this forum and PA and my learning curve is akin to a mountaineous climb atm. In need of reassurance/patient 'expert' knowledge/experience. Science bods with questioning minds most welcome! I'm in week 5 of initial loading doses (1mg hydrox, EOD), making 16 so far, but
Hello lovely peeps! I'm new to this forum and PA and my learning curve is akin to a mountaineous climb atm. In need of reassurance/patient 'expert' knowledge/experience. Science bods with questioning minds most welcome! I'm in week 5 of initial loading doses (1mg hydrox, EOD), making 16 so far, but
Mixteca
in
Pernicious Anaemia Society
1 year ago
General Advise please
She has recently been following B12 protocol as she had low folate & possible
Pernicious
Anaemia
. We have been concerned that her thyroid levels are quite low & would appreciate thoughts on whether this may be an issue ?
She has recently been following B12 protocol as she had low folate & possible
Pernicious
Anaemia
. We have been concerned that her thyroid levels are quite low & would appreciate thoughts on whether this may be an issue ?
col2022
in
Thyroid UK
2 years ago
Iron low
Hello, I just got back my blood work test and the iron read a little low, so I was wondering if anyone else here on the panel with pernicious anemia has had low iron. My iron binding is within range. Iron level is in range but iron percent transferring saturation is reading slightly low
Hello, I just got back my blood work test and the iron read a little low, so I was wondering if anyone else here on the panel with pernicious anemia has had low iron. My iron binding is within range. Iron level is in range but iron percent transferring saturation is reading slightly low
25092
in
Pernicious Anaemia Society
11 months ago
Re:Red burning palms.
Hi,.Had all my blood tests back after being tested for Polythycemia, all was normal,so glad about that..Has anyone heard of Palmar Erythema?It's a thyroid Autoimmune condition that can affect the hands.Im hoping to see the Doctor in 2 weeks time to see if it could possibly be that and if they can actually
Hi,.Had all my blood tests back after being tested for Polythycemia, all was normal,so glad about that..Has anyone heard of Palmar Erythema?It's a thyroid Autoimmune condition that can affect the hands.Im hoping to see the Doctor in 2 weeks time to see if it could possibly be that and if they can actually
sylus_911
in
Thyroid UK
1 year ago
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