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Pernicious anaemia
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Very helpful to me
Just wanted to share what someone in the medical field that has
Pernicious
Anaemia
herself for 11 years gave me.
Just wanted to share what someone in the medical field that has
Pernicious
Anaemia
herself for 11 years gave me.
25092
in
Pernicious Anaemia Society
3 years ago
Advice before discussing private blood result with doctor please
Hi, I am trying to get to the bottom of a list of unusual symptoms. GP ordered various blood tests, notable results as follows: Serum Folate 1.7 (4-26) Deficient Ferritin 38 (30-300) Vitamin D 42 <50 Inadequate MCV 94.8 (76-98) MCH 31.4 (27-32) Only tested total B12, result was 325 (180-770), so no
Hi, I am trying to get to the bottom of a list of unusual symptoms. GP ordered various blood tests, notable results as follows: Serum Folate 1.7 (4-26) Deficient Ferritin 38 (30-300) Vitamin D 42 <50 Inadequate MCV 94.8 (76-98) MCH 31.4 (27-32) Only tested total B12, result was 325 (180-770), so no
BERTIE4500
in
Pernicious Anaemia Society
2 years ago
Help with iron results please
Hello As always, a huge thank you for all of your help to date! I’ve recently had an iron panel and could really do with some help understanding the iron results. I really don’t know what these mean and I’m confused by the over/ low and what this all suggests?? I don’t supplement at the moment as wanted
Hello As always, a huge thank you for all of your help to date! I’ve recently had an iron panel and could really do with some help understanding the iron results. I really don’t know what these mean and I’m confused by the over/ low and what this all suggests?? I don’t supplement at the moment as wanted
Hidden
in
Thyroid UK
2 years ago
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Folate
I am confused about how much folate to supplement with when taking B12 injections. These were my labs were done a year ago (when B12 deficiency was discovered): B12: 240 (range 239-931) Folate: 8.4 (range 7-31) After only 4 injections my folate dipped to 5.2. My neurologist had me start 400 mcg or folate
I am confused about how much folate to supplement with when taking B12 injections. These were my labs were done a year ago (when B12 deficiency was discovered): B12: 240 (range 239-931) Folate: 8.4 (range 7-31) After only 4 injections my folate dipped to 5.2. My neurologist had me start 400 mcg or folate
lambuth_eagle
in
Pernicious Anaemia Society
2 years ago
Magnesium supplement advice please
I've been taking magnesium glycinate supplements, no sure if they helped but heho, I've ran out so I need to reorder. I don't want the same brand as they were huge! I've searched on here and it looks like taurate might suit me better as I struggle with ectopic heartbeats a lot. Can any of you recommend
I've been taking magnesium glycinate supplements, no sure if they helped but heho, I've ran out so I need to reorder. I don't want the same brand as they were huge! I've searched on here and it looks like taurate might suit me better as I struggle with ectopic heartbeats a lot. Can any of you recommend
Baggiesfan
in
Thyroid UK
2 years ago
Iron infusion
hello all - I have a question about iron infusions. By way of background info, mmy rheumatologist tells me I have lupus of the 'mild' type i.e. no cardiac, or kidney damage has yet been discovered, however, I do experience joint pain, raynauds, horrible fatigue and other symptoms. I have experienced
hello all - I have a question about iron infusions. By way of background info, mmy rheumatologist tells me I have lupus of the 'mild' type i.e. no cardiac, or kidney damage has yet been discovered, however, I do experience joint pain, raynauds, horrible fatigue and other symptoms. I have experienced
Ophelia1
in
LUPUS UK
2 years ago
Haemolytic anaemia
Does anyone know anything about haemolytic anaemia? (It's the result of red blood cells not functioning properly). My situation is I've had ET for 6 years, hydroxy , then pegasys for the last 18 months, finally my platelets are nearly down to normal, but haemoglobin has been steadily falling, now at
Does anyone know anything about haemolytic anaemia? (It's the result of red blood cells not functioning properly). My situation is I've had ET for 6 years, hydroxy , then pegasys for the last 18 months, finally my platelets are nearly down to normal, but haemoglobin has been steadily falling, now at
Joetcalr
in
MPN Voice
2 years ago
Testing for PA
Has anyone had all the bloodwork (IFA, parietal cell, MMA, homocysteine) and endoscopy & colonoscopy (including biopsies) that all came back fine yet still have B12 deficiency or PA? Is it possible to still have PA without having any definitive test results. Endoscopy and colonoscopy did not turn up
Has anyone had all the bloodwork (IFA, parietal cell, MMA, homocysteine) and endoscopy & colonoscopy (including biopsies) that all came back fine yet still have B12 deficiency or PA? Is it possible to still have PA without having any definitive test results. Endoscopy and colonoscopy did not turn up
lambuth_eagle
in
Pernicious Anaemia Society
2 years ago
New to this forum!
Hi. I was diagnosed with PA about 6 years ago. I had my B12 shots at my surgery but after my initial boosters, they only gave me 1 a month (if that). So when Covid rocked up, I bought everything myself and have been self injecting for the last few years with my GP’s approval. I’m just about to run out
Hi. I was diagnosed with PA about 6 years ago. I had my B12 shots at my surgery but after my initial boosters, they only gave me 1 a month (if that). So when Covid rocked up, I bought everything myself and have been self injecting for the last few years with my GP’s approval. I’m just about to run out
Hidden
in
Pernicious Anaemia Society
2 years ago
Hair loss
Hi all. Hope everyone is well. Just looking for some advice and reassurance really. For the last few months I've noticed a lot and I mean a lot of hair loss. When showering drying and brushing. And even through the day when my hair is down. I was on ferrograd and vit d supplements until about 9 weeks
Hi all. Hope everyone is well. Just looking for some advice and reassurance really. For the last few months I've noticed a lot and I mean a lot of hair loss. When showering drying and brushing. And even through the day when my hair is down. I was on ferrograd and vit d supplements until about 9 weeks
Darcey14
in
Pernicious Anaemia Society
2 years ago
H Pylori and B12 deficiency
I am aware that untreated H Pylori can cause a vitamin B12 deficiency, but was wondering by how much? (I.e. could this be the *sole* cause of my B12 deficiency?) Maybe difficult to quantify I know, but was thinking whether I might in the future (after eliminating my recently diagnosed H Pylori) be able
I am aware that untreated H Pylori can cause a vitamin B12 deficiency, but was wondering by how much? (I.e. could this be the *sole* cause of my B12 deficiency?) Maybe difficult to quantify I know, but was thinking whether I might in the future (after eliminating my recently diagnosed H Pylori) be able
Edso57
in
Pernicious Anaemia Society
2 years ago
Results Help
Hi, I'm looking at my results and would like a bit of help in working out what might be the right direction to follow. I am currently taking 125mg and will need to go for another GP blood text in the next couple of weeks. Currently I normally don't sleep well, waking up during the night either being
Hi, I'm looking at my results and would like a bit of help in working out what might be the right direction to follow. I am currently taking 125mg and will need to go for another GP blood text in the next couple of weeks. Currently I normally don't sleep well, waking up during the night either being
Shufflebunnie
in
Thyroid UK
2 years ago
Ulcerative colitis and pernicious anaemia
Hi Everyone, I was first diagnosed with PA ten years ago and the PAS literally saved my life ( see profile for further information).I have now been diagnosed with ulcerative colitis. I have symptoms identical to those I had before my initial diagnosis of PA and wonder if anyone knows if there is a negative
Hi Everyone, I was first diagnosed with PA ten years ago and the PAS literally saved my life ( see profile for further information).I have now been diagnosed with ulcerative colitis. I have symptoms identical to those I had before my initial diagnosis of PA and wonder if anyone knows if there is a negative
Florikeet
in
Pernicious Anaemia Society
2 years ago
B12 & Pernicious Anaemia advice please
I'm pretty sure my dad (who passed away of covid in July) had
pernicious
anaemia
I've had FBC & Vitamin Assays, low B12 & Folate Advice on whether to start 💉 or ask for investigation into
pernicious
anaemia
? & any other info or advice please 🙏
I'm pretty sure my dad (who passed away of covid in July) had
pernicious
anaemia
I've had FBC & Vitamin Assays, low B12 & Folate Advice on whether to start 💉 or ask for investigation into
pernicious
anaemia
? & any other info or advice please 🙏
Mazcan
in
Pernicious Anaemia Society
3 years ago
Iron panel results
Good morning, after advice on here decided to get iron panel done as low ferritin. Iron 30 .3 range 5.8 -34.5 Ti bc 63.6 range 45-81 Uibc 33.3 range 24.2-70.1 Transferrin Sat 47% range 20-50 Ferritin 40.6 range 13-150 My ferritin is usually 15 to 20 . I have blood tests every month,sometimes every
Good morning, after advice on here decided to get iron panel done as low ferritin. Iron 30 .3 range 5.8 -34.5 Ti bc 63.6 range 45-81 Uibc 33.3 range 24.2-70.1 Transferrin Sat 47% range 20-50 Ferritin 40.6 range 13-150 My ferritin is usually 15 to 20 . I have blood tests every month,sometimes every
4youreyesonly
in
Thyroid UK
2 years ago
High ferritin low serum iron
Hello :) Last year I had blood taken and my ferritin was 86, at the middle of the reference range (15-150) However my serum iron was 65, in the low part of the range (50-170) Has anyone experienced high ferritin but low iron? I just had more bloods done and ferritin was 129. There was no serum
Hello :) Last year I had blood taken and my ferritin was 86, at the middle of the reference range (15-150) However my serum iron was 65, in the low part of the range (50-170) Has anyone experienced high ferritin but low iron? I just had more bloods done and ferritin was 129. There was no serum
Charlyemmalouise
in
Thyroid UK
2 years ago
Timings for Supplements
Good morning everyone. Now that I'm over a month into my Levo prescription (50mcg trial agreed to by GP with some gentle persuasion from fabulous knowledge from you all ;)) I'm looking to start adding some supplements in gradually to try to get my vitamin levels back on track. My D3 was low so GP has
Good morning everyone. Now that I'm over a month into my Levo prescription (50mcg trial agreed to by GP with some gentle persuasion from fabulous knowledge from you all ;)) I'm looking to start adding some supplements in gradually to try to get my vitamin levels back on track. My D3 was low so GP has
AtemiM
in
Thyroid UK
2 years ago
Are these results ok
Please can you advise on following results Vitamin D normal 129.8nmol/L Serum folate 4.4 ng/L 2-1 26-8 Serum ferratin 52ng/L 12-150 B12 531ng/L 197-771
Please can you advise on following results Vitamin D normal 129.8nmol/L Serum folate 4.4 ng/L 2-1 26-8 Serum ferratin 52ng/L 12-150 B12 531ng/L 197-771
sunsation1
in
Thyroid UK
2 years ago
Flagged vitamin B & folate issue on latest test
Hello! I’m currently on 100mg Levo and have just had latest blood results back from GP. Flagged in red is my Serum Vitamin B12 (1515 ng/L 197.00-771.00 ng/L) and Serum Folate (4.3 uh/L 1.90-25.00 ug/L). I take Solgar B12 1000ug every evening. Can anyone advise on my results please and how I might improve
Hello! I’m currently on 100mg Levo and have just had latest blood results back from GP. Flagged in red is my Serum Vitamin B12 (1515 ng/L 197.00-771.00 ng/L) and Serum Folate (4.3 uh/L 1.90-25.00 ug/L). I take Solgar B12 1000ug every evening. Can anyone advise on my results please and how I might improve
MossPiglet21
in
Thyroid UK
2 years ago
Always Good to get Good News
Hi all, I had my first blood tests for a few months, last one we cancelled due to lack of test tubes or something. Any way all is good. Everything normal apart from a couple of things. CRP 1.4, ESR 2.0, and HbA1c 38 ( down from last one). My Haematocrit is slightly low and my Mem Corpusc.Hb (MCHC
Hi all, I had my first blood tests for a few months, last one we cancelled due to lack of test tubes or something. Any way all is good. Everything normal apart from a couple of things. CRP 1.4, ESR 2.0, and HbA1c 38 ( down from last one). My Haematocrit is slightly low and my Mem Corpusc.Hb (MCHC
Bcol
in
PMRGCAuk
2 years ago
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