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Effect of Covid on Platelets
I’ve had thrombocythaemia for many years and it’s been well controlled initially by Hydroxycarbamide and in more recent years by Hydroxycarbamide and Anagrelide together. At the beginning of September I developed covid and tested positive over a period of twenty days. Early in October during a face
I’ve had thrombocythaemia for many years and it’s been well controlled initially by Hydroxycarbamide and in more recent years by Hydroxycarbamide and Anagrelide together. At the beginning of September I developed covid and tested positive over a period of twenty days. Early in October during a face
AnneMargaretMary
in
MPN Voice
6 months ago
Dull pain back of head and neck.
My hubby has had ongoing issues with his left ear, doc thought he had an ear infection, was given antibiotics, didn’t help. Then he started with headaches which was unusual for him. He then had a fullness feeling in his head, constantly tired and a dull pain at the back of his head. Also has tinnitus
My hubby has had ongoing issues with his left ear, doc thought he had an ear infection, was given antibiotics, didn’t help. Then he started with headaches which was unusual for him. He then had a fullness feeling in his head, constantly tired and a dull pain at the back of his head. Also has tinnitus
Donners2
in
Acoustic Neuroma Support
6 months ago
Extrahelp
I was notified yesterday by the DVLA that they will no longer renew my driving licence as I failed the VF test@Specsavers..I have been tested annually to renew my licence for some yrs now.The news was a blow. I will re read the DVLA letter again now the shock is wearing off but I keep thinking about
I was notified yesterday by the DVLA that they will no longer renew my driving licence as I failed the VF test@Specsavers..I have been tested annually to renew my licence for some yrs now.The news was a blow. I will re read the DVLA letter again now the shock is wearing off but I keep thinking about
Extrahelp
in
Glaucoma UK
6 months ago
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Laxido longterm use
Hi all,I've been taking 1,sometimes 2 laxido sachets daily for the past 3 months and this has helped.My gastroenteritis has suggested swapping for prucalopride 1mg but this gives me all day stomach ache.My question is,is laxido safe to use daily long term?
Hi all,I've been taking 1,sometimes 2 laxido sachets daily for the past 3 months and this has helped.My gastroenteritis has suggested swapping for prucalopride 1mg but this gives me all day stomach ache.My question is,is laxido safe to use daily long term?
Ladydaff1
in
IBS Network
6 months ago
Thyrotoxicosis - am diabetic
Finally got back the following:Free T4 23.2 Free T3 10.6 TSH less than 0.05 Serum adjusted calcium 2.71 PTH 1.6 Mild thyrotoxicosis with mild autonomic dysfunction Don't know if sun/heat sensitivity is a part of this. What does toxic in this refer to?
Finally got back the following:Free T4 23.2 Free T3 10.6 TSH less than 0.05 Serum adjusted calcium 2.71 PTH 1.6 Mild thyrotoxicosis with mild autonomic dysfunction Don't know if sun/heat sensitivity is a part of this. What does toxic in this refer to?
Trelissa
in
Thyroid UK
1 year ago
declining & blurred sight in one eye
I have glaucoma in my left eye which used to be my dominant eye. The right eye is so far fine although very short-sighted. Sight in left eye is 6/120 and 6/12 in right and I have (again) managed to pass DVLA test. However I do struggle with TV, reading supermarket signs, etc because of the blurred vision
I have glaucoma in my left eye which used to be my dominant eye. The right eye is so far fine although very short-sighted. Sight in left eye is 6/120 and 6/12 in right and I have (again) managed to pass DVLA test. However I do struggle with TV, reading supermarket signs, etc because of the blurred vision
t55ddy
in
Glaucoma UK
6 months ago
Recurrant water infections
Hello everyone I keep getting water infections but there is no bacteria in my urine now my doctor is sending me for ultra sound on my kidneys iam so worried.
Hello everyone I keep getting water infections but there is no bacteria in my urine now my doctor is sending me for ultra sound on my kidneys iam so worried.
Tojack
in
Women's Health
2 months ago
"Diagnosis Creep": Are Some AF Patients Overtreated (with Anti-coagulants)?
Interesting article in Medscape. You should be able to get full copy for free by just registering. https://www.medscape.com/viewarticle/997425?ecd=WNL_trdalrt_pos1_231018_etid5968858&uac=388437PK&impID=5968858 Of note is that Dr. Lip -- one of the developers of the CHADS risk score -- talks about its
Interesting article in Medscape. You should be able to get full copy for free by just registering. https://www.medscape.com/viewarticle/997425?ecd=WNL_trdalrt_pos1_231018_etid5968858&uac=388437PK&impID=5968858 Of note is that Dr. Lip -- one of the developers of the CHADS risk score -- talks about its
mjames1
in
AF Association
6 months ago
Weight loss and Ketogenic diets
Hi Team,I'm curious about people experience with Ketogentic diets? I've let medication settle for four months now, and can see that much needed weight loss will be a grind . 😐 I have read about Ketogentic diets and was generally sceptical about dietary restriction. First line information often states
Hi Team,I'm curious about people experience with Ketogentic diets? I've let medication settle for four months now, and can see that much needed weight loss will be a grind . 😐 I have read about Ketogentic diets and was generally sceptical about dietary restriction. First line information often states
Luckyclaire
in
Thyroid UK
6 months ago
Vagus Nerve Stimulation for RLS
https://pubmed.ncbi.nlm.nih.gov/37846650/ An interesting study on Vagus Nerve Stumulation on 15 drug resistant RLS patients showed significant improvements in quality of life scale and that 2 of the 15 reduced their IRLSS below 5. The study doesn't say what meds the patients were taking. Sadly, they
https://pubmed.ncbi.nlm.nih.gov/37846650/ An interesting study on Vagus Nerve Stumulation on 15 drug resistant RLS patients showed significant improvements in quality of life scale and that 2 of the 15 reduced their IRLSS below 5. The study doesn't say what meds the patients were taking. Sadly, they
Joolsg
in
Restless Legs Syndrome
6 months ago
Notifying DVLA
just been diagnosed a couple of weeks ago I have normal tension glaucoma My consultant said I would have to inform the DVLA and she would send me the details in her letter From experience letters from the hospital can take weeks to arrive. Do I need to wait for this letter or am I better contacting
just been diagnosed a couple of weeks ago I have normal tension glaucoma My consultant said I would have to inform the DVLA and she would send me the details in her letter From experience letters from the hospital can take weeks to arrive. Do I need to wait for this letter or am I better contacting
Crafty-gran
in
Glaucoma UK
6 months ago
Temperature Issues in Besremi due to poor packaging during shipping...
Hi all, I may have mentioned this before, but while my response to the maximal dosage of Besremi has been measurable in other ways, my Hct control has been off and on. Most of the time SWMBO is at home to receive and sign for the monthly delivery of Besremi, so it wasn't until I was out of work [from
Hi all, I may have mentioned this before, but while my response to the maximal dosage of Besremi has been measurable in other ways, my Hct control has been off and on. Most of the time SWMBO is at home to receive and sign for the monthly delivery of Besremi, so it wasn't until I was out of work [from
PhysAssist
in
MPN Voice
6 months ago
Cataract after Preserflo treatment
I'm 4 months after glaucoma surgery / preseflo, I still have blurred vision - today I was diagnosed with a cataract on the operated eye and also retinal swelling. Does anyone have experience with such a case - how to treat it (cataract surgery will help). I will be glad for the reactions - experience
I'm 4 months after glaucoma surgery / preseflo, I still have blurred vision - today I was diagnosed with a cataract on the operated eye and also retinal swelling. Does anyone have experience with such a case - how to treat it (cataract surgery will help). I will be glad for the reactions - experience
ocicka
in
Glaucoma UK
6 months ago
GCA flare and eye sight
I have GCA. I have a new rheumatologist who practices at University Hospital in a clinic designed for patients with vasculitis and certain auto immune diseases (GCA being one of them), who has told me that I need to not worry about losing eye sight during the course of tapering prednisone or a flare
I have GCA. I have a new rheumatologist who practices at University Hospital in a clinic designed for patients with vasculitis and certain auto immune diseases (GCA being one of them), who has told me that I need to not worry about losing eye sight during the course of tapering prednisone or a flare
pmac22
in
PMRGCAuk
6 months ago
Vertigo or dizziness?
Just reducing from 6.5mg Pred to 6mg. All seems well but yesterday evening, as I was sitting and reading a book, I started to feel 'out of it' so to speak. A bit dizzy and as though I needed to take a large breath as I had forgotten to breathe. This morning I felt dizzy when I got up in that I wanted
Just reducing from 6.5mg Pred to 6mg. All seems well but yesterday evening, as I was sitting and reading a book, I started to feel 'out of it' so to speak. A bit dizzy and as though I needed to take a large breath as I had forgotten to breathe. This morning I felt dizzy when I got up in that I wanted
Miserere
in
PMRGCAuk
6 months ago
Latest Blood Test Results
Good morning all. I have an endo appt this Thursday and am trying to prepare myself as I am worried my dosage of Levo might be reduced. I am concerned that T3 conversion needs improvement as I still don't feel 'good' but because my TSH is at the bottom of the range my endo may ignore my concern. I can't
Good morning all. I have an endo appt this Thursday and am trying to prepare myself as I am worried my dosage of Levo might be reduced. I am concerned that T3 conversion needs improvement as I still don't feel 'good' but because my TSH is at the bottom of the range my endo may ignore my concern. I can't
nimble
in
Thyroid UK
1 year ago
Lactose intolerant
I am changing from Armour Thyroid to synthetic T4 and T3, due to cost and that a local Endo has agreed to this on the NHS. However I’m super sensitive to lactose and the hospital pharmacy are dithering about finding lactose free options. Does anyone know which brands are lactose free please?
I am changing from Armour Thyroid to synthetic T4 and T3, due to cost and that a local Endo has agreed to this on the NHS. However I’m super sensitive to lactose and the hospital pharmacy are dithering about finding lactose free options. Does anyone know which brands are lactose free please?
Karen-Eleanor
in
Thyroid UK
3 months ago
My first endocrinologist visit
Hi everyone, On the 27th I have my first appointment with an endo. He ordered blood tests for me before he even spoke to me or knew what dose of pred I was taking. (I'm taking 7 mg a day now. Was doing 6.5 for a week but decided better to go back to 7 and stay for a while as I was feeling so bad with
Hi everyone, On the 27th I have my first appointment with an endo. He ordered blood tests for me before he even spoke to me or knew what dose of pred I was taking. (I'm taking 7 mg a day now. Was doing 6.5 for a week but decided better to go back to 7 and stay for a while as I was feeling so bad with
sferios
in
PMRGCAuk
6 months ago
best anesthesia for knee replacement surgery ?
Greetings… I experienced my first struggle with daily RLS after 2 emergency gallbladder surgeries in 2021. My RLS lasted 10-12 horrible months post op… a short time still I’m aware, relative to the experience of so many sufferers on this forum. Apparently I am one of the lucky ones for whom only daily
Greetings… I experienced my first struggle with daily RLS after 2 emergency gallbladder surgeries in 2021. My RLS lasted 10-12 horrible months post op… a short time still I’m aware, relative to the experience of so many sufferers on this forum. Apparently I am one of the lucky ones for whom only daily
Friend7
in
Restless Legs Syndrome
6 months ago
Aortitis
I was diagnosed with non cranial Giant Cell Arteritis in September last year. So far I haven't managed to find anyone else with this condition because most people have the temporal version with the headaches.Mine is Aortitis which apparently is rare. I'd love to share experiences with someone else
I was diagnosed with non cranial Giant Cell Arteritis in September last year. So far I haven't managed to find anyone else with this condition because most people have the temporal version with the headaches.Mine is Aortitis which apparently is rare. I'd love to share experiences with someone else
Dance62
in
PMRGCAuk
2 months ago
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