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V + O for R/R CLL post FCR
I sent this to skyshark based on some info he posted but I was[u] hoping for the whole group to chime in.[/u] I had 3 rounds of FCR in 2018 stopped because of profound neutropenia. I relapsed exactly 2 years later and though I did not start Tx until the 5 year point in 2023, would have gladly started
I sent this to skyshark based on some info he posted but I was[u] hoping for the whole group to chime in.[/u] I had 3 rounds of FCR in 2018 stopped because of profound neutropenia. I relapsed exactly 2 years later and though I did not start Tx until the 5 year point in 2023, would have gladly started
skipro
in
CLL Support
2 months ago
Anticoagulants stopped by new consultant
I'll try to be as brief as possible! January 2019 I was diagnosed with a pulmonary embolism in both lungs and also AF and flutter. After various unsuccessful attempts to correct heart I had a catheter ablation June 2019 . Responded well and put on Bisoprolol and anticoagulants which I was told would
I'll try to be as brief as possible! January 2019 I was diagnosed with a pulmonary embolism in both lungs and also AF and flutter. After various unsuccessful attempts to correct heart I had a catheter ablation June 2019 . Responded well and put on Bisoprolol and anticoagulants which I was told would
Nafi
in
Atrial Fibrillation Support
2 months ago
Protein supplements
I've been reading a lot about needing proteins to help with thyroid issues. Has anyone embarked on this route ?
I've been reading a lot about needing proteins to help with thyroid issues. Has anyone embarked on this route ?
HHHJC
in
Thyroid UK
2 months ago
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Faricimab injections and exercise
I’ve just been diagnosed with wet AMD R eye - my long sighted eye I used to use for driving - sadly no more - and dry AMD L eye (shortsighted) After each injection we are instructed to not do a variety of things including physical exertion for 5 days. No one has yet explained why no exertion and what
I’ve just been diagnosed with wet AMD R eye - my long sighted eye I used to use for driving - sadly no more - and dry AMD L eye (shortsighted) After each injection we are instructed to not do a variety of things including physical exertion for 5 days. No one has yet explained why no exertion and what
Birchermu
in
Macular Society
2 months ago
SECOND CATARACT SURGERY- LEFT EYE
Gmorning all! Had my second cataract done early yesterday morning. Typing this without glasses today. Yay! Op took 15 minutes. This time he injected the antibiotics and Pred instead of sending me home with 3 bottles of eye drops. The injection is into the bottom lid, not the actual eyeball which was
Gmorning all! Had my second cataract done early yesterday morning. Typing this without glasses today. Yay! Op took 15 minutes. This time he injected the antibiotics and Pred instead of sending me home with 3 bottles of eye drops. The injection is into the bottom lid, not the actual eyeball which was
Missus835
in
PMRGCAuk
2 months ago
Hair Loss on Yuflyma
Hi everyone I have been on Yuflyma for 6 weeks and have noticed an increasing amount of hair loss. I am also on Folic acid seven days a week as I was previously on Methotrexate , but stopped the methotrexate a few weeks ago. I had been on Methotrxate since May of last year, both tablets and then metoject
Hi everyone I have been on Yuflyma for 6 weeks and have noticed an increasing amount of hair loss. I am also on Folic acid seven days a week as I was previously on Methotrexate , but stopped the methotrexate a few weeks ago. I had been on Methotrxate since May of last year, both tablets and then metoject
MDWinter23
in
NRAS
2 months ago
Cholesterol and CLL
Hoping for some information from the wise ones here - back in January my GP said she wanted to start me on a statin as my cholesterol was high. I said I preferred to try to bring it down myself rather than with medication (and my intent here is not to start a debate on statins - I just prefer a natural
Hoping for some information from the wise ones here - back in January my GP said she wanted to start me on a statin as my cholesterol was high. I said I preferred to try to bring it down myself rather than with medication (and my intent here is not to start a debate on statins - I just prefer a natural
Kbcjones
in
CLL Support
2 months ago
'glasses/lenses' for driving at night
Hello everyone a it of background. Just over a year ago I was diagnosed with closed angles in my right eye and mild cataracts in both eyes I had an iridotomy in both eyes shortly after, side effect suffered was a permanent white 'line' in right eye. No drops given but Hycosan drops form optician
Hello everyone a it of background. Just over a year ago I was diagnosed with closed angles in my right eye and mild cataracts in both eyes I had an iridotomy in both eyes shortly after, side effect suffered was a permanent white 'line' in right eye. No drops given but Hycosan drops form optician
Seahorse0
in
Glaucoma UK
2 months ago
Post-op FAQs
Hello Glaucoma UK community, I am currently in the process of creating a page on our website for the most commonly asked questions with regards to glaucoma treatments and surgeries. As you might know, we operate a buddy scheme at Glaucoma UK, which allows us to put people who are due to have a glaucoma
Hello Glaucoma UK community, I am currently in the process of creating a page on our website for the most commonly asked questions with regards to glaucoma treatments and surgeries. As you might know, we operate a buddy scheme at Glaucoma UK, which allows us to put people who are due to have a glaucoma
KieranGlaucomaUK
Administrator
in
Glaucoma UK
2 months ago
Binding of Thyroid Hormones
I have just spent a ridiculous amount of time trying to find a video which describes thyroid hormone binding. Most of the videos I found were terrible - difficult to listen to, superficial, bad (or no) graphics, noisy background music, too complex, scientifically unsound, or several of these! Eventually
I have just spent a ridiculous amount of time trying to find a video which describes thyroid hormone binding. Most of the videos I found were terrible - difficult to listen to, superficial, bad (or no) graphics, noisy background music, too complex, scientifically unsound, or several of these! Eventually
helvella
Thyroid UK
in
Thyroid UK
2 months ago
Adult disability payment for CRVO
Hello 👋🏻 I’m not looking for any in-depth information but wondered if anyone has applied and awarded ADP (the PIP equivalent in Scotland), for CRVO and glaucoma, where you have regular injections and have slight vision loss. thanks 🙏🏻
Hello 👋🏻 I’m not looking for any in-depth information but wondered if anyone has applied and awarded ADP (the PIP equivalent in Scotland), for CRVO and glaucoma, where you have regular injections and have slight vision loss. thanks 🙏🏻
Vich81
in
Macular Society
2 months ago
GCA. Pulsatile tinnitus
May I ask what any of you good people know about pulsatile tinnitus. Do you consider my GP should see me, or at least write to me or speak to me on telephone. When I recently started hearing my heartbeat in same ear that GCA symptoms started I called my rheumatology dept & was seen. Had blood tests
May I ask what any of you good people know about pulsatile tinnitus. Do you consider my GP should see me, or at least write to me or speak to me on telephone. When I recently started hearing my heartbeat in same ear that GCA symptoms started I called my rheumatology dept & was seen. Had blood tests
CavalierKC3
in
PMRGCAuk
2 months ago
bleb needling procedure recovery time
Hi, I had a Trabeculectomy just shy of 2 years ago which has been stable however I’ve now got a build up of scar tissue which has caused the pressure to spike. After 8 weeks on steroid eye drops with no change in eye pressure I’m now to have a needling procedure on the bleb on Monday coming. I’m just
Hi, I had a Trabeculectomy just shy of 2 years ago which has been stable however I’ve now got a build up of scar tissue which has caused the pressure to spike. After 8 weeks on steroid eye drops with no change in eye pressure I’m now to have a needling procedure on the bleb on Monday coming. I’m just
Eyehelp5
in
Glaucoma UK
2 months ago
An online Study….recruiting re Speech Disorders
A new study on speech disorders in ataxias is recruiting participants Do you have a diagnosis of ataxia, and experience speech disorders? If so, you could help researchers in a study investigating speech disorders across various ataxia types. This is an online study and does not require travel.
A new study on speech disorders in ataxias is recruiting participants Do you have a diagnosis of ataxia, and experience speech disorders? If so, you could help researchers in a study investigating speech disorders across various ataxia types. This is an online study and does not require travel.
wobblybee
in
Ataxia UK
2 months ago
Info needed please
Hi Has anyone got any information on low blood pressure/nocturnal hypertension linked with optic nerve loss and glaucoma as I have been reading that this could be a cause of vision loss I have also been looking at new treatments for vision loss linked to Glaucoma and have come across a clinic in
Hi Has anyone got any information on low blood pressure/nocturnal hypertension linked with optic nerve loss and glaucoma as I have been reading that this could be a cause of vision loss I have also been looking at new treatments for vision loss linked to Glaucoma and have come across a clinic in
Bazzer65
in
Glaucoma UK
2 months ago
supplements for a fibs???
Has anyone here used magnesium or L arginine for atrial fibrillations? If yes, and you had good results, what were the dosages and how often daily? Thank you.
Has anyone here used magnesium or L arginine for atrial fibrillations? If yes, and you had good results, what were the dosages and how often daily? Thank you.
peachtreepiggy
in
Atrial Fibrillation Support
2 months ago
Advice on Cataract surgery / narrow angle
Hi all, First I must apologise, I am new to Glaucoma and looking to get some guidance from ideally someone who may have had a similar experience. I am a 44 year old male who was diagnosed with narrow angles following a routine eye exam. My eyesight is pretty good and I only wear reading glasses occasionally
Hi all, First I must apologise, I am new to Glaucoma and looking to get some guidance from ideally someone who may have had a similar experience. I am a 44 year old male who was diagnosed with narrow angles following a routine eye exam. My eyesight is pretty good and I only wear reading glasses occasionally
Martyn321
in
Glaucoma UK
2 months ago
flecainide versus amiodorone
I had a successful cardioversion using flecainide before and after that lasted 2 years but now AF has returned- I will have another cardioversion but because of my age ( 80) the hospital want me to use amiodorone instead - I wasn’t happy with this suggestion due to the toxic side effects of amiodorone
I had a successful cardioversion using flecainide before and after that lasted 2 years but now AF has returned- I will have another cardioversion but because of my age ( 80) the hospital want me to use amiodorone instead - I wasn’t happy with this suggestion due to the toxic side effects of amiodorone
Spinbiker
in
Atrial Fibrillation Support
2 months ago
Pegasys Side Effects
Hello All - Two months ago I started injecting 45mcg of Pegasys weekly. During this time I have developed dry mouth which is most pronounced in the morning. I drink what I think is a lot of water, and even during the night I awaken several times to drink water. So the issue doesn't seem to be very
Hello All - Two months ago I started injecting 45mcg of Pegasys weekly. During this time I have developed dry mouth which is most pronounced in the morning. I drink what I think is a lot of water, and even during the night I awaken several times to drink water. So the issue doesn't seem to be very
Proton_1
in
MPN Voice
2 months ago
UTI Treatment
Can someone please tell me what antibiotic might be best fo a water infection. I'm so worried about a bad reaction since that's what I got with taking Nitrofurantoin.Thank you.
Can someone please tell me what antibiotic might be best fo a water infection. I'm so worried about a bad reaction since that's what I got with taking Nitrofurantoin.Thank you.
3rdNettydoon
in
Pernicious Anaemia Society
2 months ago
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