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Worries about Travel Medical Insurance
Hi, I am recently diagnosed with ET and started yesterday on Hydroxycarbamide 500mg Monday to Friday . I understand that I will be monitored closely to achieve the best balance of drugs and optimum platelet count which will take a few months. However, I am used to travelling, My partner and I have
Hi, I am recently diagnosed with ET and started yesterday on Hydroxycarbamide 500mg Monday to Friday . I understand that I will be monitored closely to achieve the best balance of drugs and optimum platelet count which will take a few months. However, I am used to travelling, My partner and I have
SpendyWendy
in
MPN Voice
2 months ago
Hydroxicarbamide for PV - UK
Diagnosed late 2018 soon after started on Hydroxycarbamide + Rivaroxyban 10mg daily. In the last year, Hydroxycarbamide has been increased slowly every few months. I am now taking 2000mg 4 days a week and 1500mg on 3 days a week because my platelet score is 640. I am feeling really poorly on this
Diagnosed late 2018 soon after started on Hydroxycarbamide + Rivaroxyban 10mg daily. In the last year, Hydroxycarbamide has been increased slowly every few months. I am now taking 2000mg 4 days a week and 1500mg on 3 days a week because my platelet score is 640. I am feeling really poorly on this
RedEye21
in
MPN Voice
2 months ago
Puffy eyes
Hi 👋 Has anyone experienced puffy eyelids and a bit of swelling under the eyes? I have lupus and sjogrens so not sure which would cause this.. I am having a painful flare at the moment. Quite new to this as diognosed Dec 2022. Only seen rheumatologist once and due to see them again this month but have
Hi 👋 Has anyone experienced puffy eyelids and a bit of swelling under the eyes? I have lupus and sjogrens so not sure which would cause this.. I am having a painful flare at the moment. Quite new to this as diognosed Dec 2022. Only seen rheumatologist once and due to see them again this month but have
Lucylou72
in
LUPUS UK
2 months ago
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PROTACS: what they are and the good and bad of these molecules
Fascinating, and they are currently being tested also for degenerative diseases...they are a rather new technique...and yet we already have "advanced PROTACs", the speed of research is impressive... 1. PROTAC Mechanism Proteolysis-targeting chimeras (PROTACs) have emerged as a promising therapeutic
Fascinating, and they are currently being tested also for degenerative diseases...they are a rather new technique...and yet we already have "advanced PROTACs", the speed of research is impressive... 1. PROTAC Mechanism Proteolysis-targeting chimeras (PROTACs) have emerged as a promising therapeutic
Maxone73
in
Advanced Prostate Cancer
2 months ago
Prolia and prednisone together = higher infection risk
https://www.drugs.com/drug-interactions/prednisone-with-prolia-1936-0-3238-14600.html From the "we never stop learning angles about APCa and related treatments" zone Wear a mask etc
https://www.drugs.com/drug-interactions/prednisone-with-prolia-1936-0-3238-14600.html From the "we never stop learning angles about APCa and related treatments" zone Wear a mask etc
Derf4223
in
Advanced Prostate Cancer
2 months ago
Tinnitus and White Noise
Over the last 3 years my Tinnitus has deteriorated rapidly. It is constant and I have found one thing that makes me sleep at night is WhiteNoise on YouTube. Highly recommendable. I am getting hearing aids which the Audiologist hopes will reduce my Tinnitus. Meanwhile, it's really troublesome and affects
Over the last 3 years my Tinnitus has deteriorated rapidly. It is constant and I have found one thing that makes me sleep at night is WhiteNoise on YouTube. Highly recommendable. I am getting hearing aids which the Audiologist hopes will reduce my Tinnitus. Meanwhile, it's really troublesome and affects
Nana1944
in
Tinnitus UK
2 months ago
New to tinnitus and frightened
Hi everyone, I'm new to tinnitus, just 3 weeks in but have already been told my hearing is fine and there's no problems with my ears by an audiologist. I recently went through a stressful period at work followed by my mum being rushed into hospital and being told out of the blue that she only had days
Hi everyone, I'm new to tinnitus, just 3 weeks in but have already been told my hearing is fine and there's no problems with my ears by an audiologist. I recently went through a stressful period at work followed by my mum being rushed into hospital and being told out of the blue that she only had days
MiniRocket
in
Tinnitus UK
2 months ago
Severe tinnitus and sensorineural hearing loss
(Moderator's note - this post contains suicidal ideation, which may be upsetting to some readers) I have recently been diagnosed with granulomatosis with polyangiitis as a result of an autoimmune disorder and have been suffering with tinnitus since the 17th December 2023. The tinnitus is often raging
(Moderator's note - this post contains suicidal ideation, which may be upsetting to some readers) I have recently been diagnosed with granulomatosis with polyangiitis as a result of an autoimmune disorder and have been suffering with tinnitus since the 17th December 2023. The tinnitus is often raging
LRM001
in
Tinnitus UK
2 months ago
Dry Eye Webinar
Hello everyone, I wanted to let you all know about our next Digital Glaucoma Support Group - this session will be discussing Dry Eye. This is a topic that is often requested when we ask for topic suggestions, and we get lots of phone calls to the Glaucoma UK helpline about Dry Eye. This is your chance
Hello everyone, I wanted to let you all know about our next Digital Glaucoma Support Group - this session will be discussing Dry Eye. This is a topic that is often requested when we ask for topic suggestions, and we get lots of phone calls to the Glaucoma UK helpline about Dry Eye. This is your chance
Robyn_GlaucomaUK
in
Glaucoma UK
2 months ago
Lupron - start with one month dose or 3 months ?
Dad , 83 , is to start with lupron soon. He has been on bicalutamide since two weeks. He is in good health generally and has not had heart issues apart from hypertension since many years , controlled by medicine. Doctor has advised 3 monthly lupron injections. But I was wondering if it would
Dad , 83 , is to start with lupron soon. He has been on bicalutamide since two weeks. He is in good health generally and has not had heart issues apart from hypertension since many years , controlled by medicine. Doctor has advised 3 monthly lupron injections. But I was wondering if it would
Tinkudi
in
Advanced Prostate Cancer
2 months ago
update on switching to digoxin from lopressor
Stopped digoxin this am and starting back on lopressor. bad heartburn and nausea just kept getting worse. Lots of hydrating and will explore ablation. Really felt sick on digoxin. Although don't feel generally great this was really not a good experience.
Stopped digoxin this am and starting back on lopressor. bad heartburn and nausea just kept getting worse. Lots of hydrating and will explore ablation. Really felt sick on digoxin. Although don't feel generally great this was really not a good experience.
farewelltoarms
in
Atrial Fibrillation Support
2 months ago
Is it harmful to take Vitamin D & not Vitamin K?
I read that taking vitamin D while not supplementing with vitamin K also can be dangerous as it can lead to calcification of the arteries. I am on warfarin and have been told that I really need to up my Vitamin D, but what do I do about vitamin K?
I read that taking vitamin D while not supplementing with vitamin K also can be dangerous as it can lead to calcification of the arteries. I am on warfarin and have been told that I really need to up my Vitamin D, but what do I do about vitamin K?
gazaeee
in
Anticoagulation Support
2 months ago
menieres
hi I’m new to group Diagnosed menieres about 8 yrs ago Suffer from severe hearing loss tinnitus Recently tinnitus just became very loud and leaving me unable to work and socially isolated Slowly loosing my confidence Anyone else feel similar as I feel alone X
hi I’m new to group Diagnosed menieres about 8 yrs ago Suffer from severe hearing loss tinnitus Recently tinnitus just became very loud and leaving me unable to work and socially isolated Slowly loosing my confidence Anyone else feel similar as I feel alone X
Bluerose57
in
Tinnitus UK
2 months ago
Hydroxychloroquine and tinnitus
I been on leflunomide and hydroxychloroquine for about ten months and have suddenly developed tinnitus, and feel as if I have a small electrical substation between my ears. From internet research I see that hydroxychloroquine can cause tinnitus and the rheumy team have suggested stopping it for just
I been on leflunomide and hydroxychloroquine for about ten months and have suddenly developed tinnitus, and feel as if I have a small electrical substation between my ears. From internet research I see that hydroxychloroquine can cause tinnitus and the rheumy team have suggested stopping it for just
spartacus101
in
NRAS
2 months ago
Blood thinning jab that won’t cause internal bleeding
In the Health section of the Mail last November I read about a new injection Abelacimab which in a head to head trial caused 81% fewer major bleeding incidents.Warfarin is known to be a risk for bleeding in 16% of patients. I no longer attend a clinic, it was always Rheumatology, but I guess I was deemed
In the Health section of the Mail last November I read about a new injection Abelacimab which in a head to head trial caused 81% fewer major bleeding incidents.Warfarin is known to be a risk for bleeding in 16% of patients. I no longer attend a clinic, it was always Rheumatology, but I guess I was deemed
Zamalek
in
Hughes Syndrome APS Forum
2 months ago
Pradaxa (dabigatran)
I have just started with my afib journey (trek?). My GP told me that my best blood-thinner choices were Coumadin, Xarelto, and Eliquis. I did my research, and, right or wrong, I chose Eliquis, even knowing its expense. (I have no insurance, thus I paid a lot of money to buy my first bottle of pills
I have just started with my afib journey (trek?). My GP told me that my best blood-thinner choices were Coumadin, Xarelto, and Eliquis. I did my research, and, right or wrong, I chose Eliquis, even knowing its expense. (I have no insurance, thus I paid a lot of money to buy my first bottle of pills
Corazon17
in
Atrial Fibrillation Support
2 months ago
STILL IN HOSPITAL
Hi Everyone Im still in hospital & have been for the last 2 weeks with my Interstitial Lung Disease & Pulmomary Disease god knows when I am discharged in the " normal way" When I say " normal" its going to be a Hospice or a .hospital ( a choice i have said No No -) back at home & i said im sure thats
Hi Everyone Im still in hospital & have been for the last 2 weeks with my Interstitial Lung Disease & Pulmomary Disease god knows when I am discharged in the " normal way" When I say " normal" its going to be a Hospice or a .hospital ( a choice i have said No No -) back at home & i said im sure thats
Sara_2611
in
Lung Conditions Community Forum
2 months ago
L-tyrosine causes sebaceous hyperplasia?
I take a hypothyroidm supliment that has L-tyrosine. Since I take it I got this acne called sabeceous hyperplasia all over my face and on my boob and under it. I read that L-tyrosine increases testosterone, which leads to PCOS (which I have) and sebaceous hyperplacia. Did anyone experience this? How
I take a hypothyroidm supliment that has L-tyrosine. Since I take it I got this acne called sabeceous hyperplasia all over my face and on my boob and under it. I read that L-tyrosine increases testosterone, which leads to PCOS (which I have) and sebaceous hyperplacia. Did anyone experience this? How
annie463
in
Thyroid UK
2 months ago
ET / Osteonecrosis / Surgery
Hello Has anyone else with ET experienced problems with insufficient blood circulation causing osteonecrosis? If surgery is inevitable, what extra cautionary measures should ET patients take? With ET JAK2 diagnosed 11 years ago, I've been on Litalir, changed to Anagrelide 2 years ago and for the last
Hello Has anyone else with ET experienced problems with insufficient blood circulation causing osteonecrosis? If surgery is inevitable, what extra cautionary measures should ET patients take? With ET JAK2 diagnosed 11 years ago, I've been on Litalir, changed to Anagrelide 2 years ago and for the last
Bodensee
in
MPN Voice
2 months ago
Bowel cramps?
I had a laparoscopy about 9 weeks ago. I had endometrioma's removed from my ovaries, lots of adhesions removed from right pelvic wall and endometriosis removed from surface of the bowel. I'm presuming it was excised but I won't know for sure until I see my consultant in two weeks. My question is, is
I had a laparoscopy about 9 weeks ago. I had endometrioma's removed from my ovaries, lots of adhesions removed from right pelvic wall and endometriosis removed from surface of the bowel. I'm presuming it was excised but I won't know for sure until I see my consultant in two weeks. My question is, is
Flutterby75
in
Endometriosis UK
2 months ago
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