Info needed please

[Bazzer65]

Hi

Has anyone got any information on low blood pressure/nocturnal hypertension linked with optic nerve loss and glaucoma as I have been reading that this could be a cause of vision loss

I have also been looking at new treatments for vision loss linked to Glaucoma and have come across a clinic in Germany Federov Restore Vision Clinic has anyone else heard of this

Thank youuuu 😀

[KieranGlaucomaUK Administrator]

Hi Bazzer65. Studies do seem to show that there is a link between low blood pressure and glaucoma progression, however it does seem to be more for normal tension glaucoma.

Regarding the vision clinic, this is not clinically proven to help and it is not something we recommend. We have also contacted an ophthalmologist in the past about this and they also do not recommend this.

[Bazzer65 in reply to KieranGlaucomaUK]

Hi

Thank you for this.. I do have normal tension glaucoma and I mentioned this to my consultant the possibility of low blood pressure and the dipping of my blood pressure during the night but he didn’t seem to react, is there any treatment for this to try and increase the blood flow as my vision loss is getting worse

Thank you for the advice regarding the clinic I appreciate it

[balacakkhu in reply to Bazzer65]

Hello, I have normal tension glaucoma. I was checked for 24 hour blood pressure monitor to exclude the low BP. with best wishes.

[KieranGlaucomaUK Administrator in reply to Bazzer65]

Hi there, I'm afraid this isn't our area of expertise, but from a quick google search I can see that it seems to be important that you keep a consistent sleeping schedule, avoid caffeine and alcohol bed, exercise earlier in the day and avoid blue light before bed (from TVs, mobiles etc). I'd also suggest speaking to your GP about low blood pressure and see if there is anything they can do to help.

[Bazzer65 in reply to KieranGlaucomaUK]

Thank you so much for your help 🙏🙏

[Sorshup in reply to Bazzer65]

I have noted the other replies. There is a lot on t'net about our sleep, including IOP going up and BP down; The latter is easily checked with a home monitor and an alarm clock; the former more difficult unless one has access to an iCare Home, which isn't easy to use at 3am. As for boosting BP..... not something your GP would like to suggest for fear of your sueing because of a stroke! but I would reiterate what I have suggested before on this forum, that the long term structural damage to the nerve head, even from unexceptional IOP added to the possible presence of genetically sub-optimal OBF and arteriosclerosis renders glaucoma a common condition in later life and blurs the definitions of POAG and NTG. Oh, and returning to sleep - the effects of different sleep postures; best not to go to bed at all !

[praying4cure]

I have not but would love to hear what you find out about it.