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Lung Transplant assessment / LVRS
If you have LVRS can it make or cause problems if you have a Lung Transplant later ? I’m about to see my surgeon later this month ( I think about LVRS ) but have just received a letter today from my consultant saying I may be better off having a Lung Transplant assessment so feeling a little confused
If you have LVRS can it make or cause problems if you have a Lung Transplant later ? I’m about to see my surgeon later this month ( I think about LVRS ) but have just received a letter today from my consultant saying I may be better off having a Lung Transplant assessment so feeling a little confused
Rich1957
in
Lung Conditions Community Forum
5 years ago
Dad in ICU fighting pneumonia and is slow to wake up from induced coma
Hi everyone. I’m wondering if anyone has any encouragement for our situation. My dad is 78 but has always been extremely healthy - a marathon runner until his back stopped him from running and now he’s been an avid swimmer for years and has had no real medical issues. He had a stem cell transplant
Hi everyone. I’m wondering if anyone has any encouragement for our situation. My dad is 78 but has always been extremely healthy - a marathon runner until his back stopped him from running and now he’s been an avid swimmer for years and has had no real medical issues. He had a stem cell transplant
WhitneyS18
in
ICUsteps
5 years ago
Guess who's getting home tomorrow
Yes! After 24 days, at long last. That was a journey! Chest infection,collapsed lung,Ascites drain full of blood, high potassium, low potassium, stomach cramps and bowel incontinence... Oh yes, and a liver transplant! Now my hard work begins, looking after him, and keeping him in check!
Yes! After 24 days, at long last. That was a journey! Chest infection,collapsed lung,Ascites drain full of blood, high potassium, low potassium, stomach cramps and bowel incontinence... Oh yes, and a liver transplant! Now my hard work begins, looking after him, and keeping him in check!
Yuiop
in
British Liver Trust
5 years ago
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Seeking people with experience of Stem Cell Transplant for Richter's - I have a decision to make!
Hi All Have been reading lots of posts since my diagnosis of CLL 9 months ago - what a great community, which I have found really helpful. I was diagnosed with Non-Hodgkins DLBCL which is a Richter's transformation from previously undiagnosed CLL. I am a healthy 50 year old female, with no symptoms
Hi All Have been reading lots of posts since my diagnosis of CLL 9 months ago - what a great community, which I have found really helpful. I was diagnosed with Non-Hodgkins DLBCL which is a Richter's transformation from previously undiagnosed CLL. I am a healthy 50 year old female, with no symptoms
Buddhababy
in
CLL Support
5 years ago
Unable to walk
I don’t know if I am on the right page to ask this question but I need a bit of help Since age of14 now 72 I have had hip knee replacements kidney transplants spine op I’m in a/f other problems going on Lost my husband 3years ago at that time I was using one crutch to get around in pain but coping
I don’t know if I am on the right page to ask this question but I need a bit of help Since age of14 now 72 I have had hip knee replacements kidney transplants spine op I’m in a/f other problems going on Lost my husband 3years ago at that time I was using one crutch to get around in pain but coping
Rusty8
in
Pain Concern
5 years ago
11642
Had a kidney transplant 7/13. Can I take flax seed ?? Is it good for me? How much should o take Thanks
Had a kidney transplant 7/13. Can I take flax seed ?? Is it good for me? How much should o take Thanks
11642
in
Kidney Disease
5 years ago
Liver transplant
What does the 5 day liver transplant involve for my husband
What does the 5 day liver transplant involve for my husband
Whitelock
in
British Liver Trust
5 years ago
Rls don’t give up
My wife has been through it all Elayne for 40 years liver transplant 19 yeArs ago, Mayo has basically given up on her, the liver gave her diabetes as it took out the pancreas, the nuclear option for her from Mayo was methadone, gabapentin which was a disaster we then went in U of M, St. Paul MN, they
My wife has been through it all Elayne for 40 years liver transplant 19 yeArs ago, Mayo has basically given up on her, the liver gave her diabetes as it took out the pancreas, the nuclear option for her from Mayo was methadone, gabapentin which was a disaster we then went in U of M, St. Paul MN, they
rdbyam
in
Restless Legs Syndrome
5 years ago
For my son
All starts tomorrow I need to do this for not just myself but my son to he needs a kidney transplant and I’m hoping to be the the one to provide this have not run for years wish me luck
All starts tomorrow I need to do this for not just myself but my son to he needs a kidney transplant and I’m hoping to be the the one to provide this have not run for years wish me luck
Wolvesmel
in
Couch to 5K
6 years ago
To All The Forum Family For 2019
After a few weeks of Discussion with My Hubby, Family & my Consultant Amy, I have Decided to Come off the Transplant List. I am having an Emotional Time at the moment,, it is a case of carry on waiting, getting older, I am now 67. As most of you know from my Posts, I have maintained my Body capability
After a few weeks of Discussion with My Hubby, Family & my Consultant Amy, I have Decided to Come off the Transplant List. I am having an Emotional Time at the moment,, it is a case of carry on waiting, getting older, I am now 67. As most of you know from my Posts, I have maintained my Body capability
Hacienda
in
Lung Conditions Community Forum
6 years ago
Dyskeratosis Congentia
Hi Everyone, I am so pleased there is a link to connect all families who are suffering with this sad and devastating condition. My son was diagnosed back in 2011 just by having a routine blood test. Our world fell apart when we finally got the diagnosis that my son along with my daughter have such
Hi Everyone, I am so pleased there is a link to connect all families who are suffering with this sad and devastating condition. My son was diagnosed back in 2011 just by having a routine blood test. Our world fell apart when we finally got the diagnosis that my son along with my daughter have such
Hidden
in
DC Action
5 years ago
Fear for my brother
It has been a year since I posted on here and I got a lot of love and advise so here I go again... my brother has been put forward for a double lung transplant but is very under weight, the problem is on top of everything my brother has had an eating disorder for years which has never been addressed
It has been a year since I posted on here and I got a lot of love and advise so here I go again... my brother has been put forward for a double lung transplant but is very under weight, the problem is on top of everything my brother has had an eating disorder for years which has never been addressed
Nibblet
in
Lung Conditions Community Forum
6 years ago
Single lung transplant
I have come upon this site whilst searching for post transplant information and am so moved by these Christmas posts. I want to tell you a little about our Christmas story, to give some hope maybe. My husband has IPF and probably had 2-3 months left when our whirlwind Christmas took off when on Fri
I have come upon this site whilst searching for post transplant information and am so moved by these Christmas posts. I want to tell you a little about our Christmas story, to give some hope maybe. My husband has IPF and probably had 2-3 months left when our whirlwind Christmas took off when on Fri
bigjo
in
Lung Conditions Community Forum
6 years ago
4 Months Post Kidney Transplant
40 year old female, 4 months post transplant .. just looking for a support team who undergone the same things as i am experiencing right now as a post transplant patient. It could be frustrating because I don't have someone to talk to or ask advices and stuff of what I'm going through. I feel like this
40 year old female, 4 months post transplant .. just looking for a support team who undergone the same things as i am experiencing right now as a post transplant patient. It could be frustrating because I don't have someone to talk to or ask advices and stuff of what I'm going through. I feel like this
charlen24
in
Kidney Transplant Patient Support
6 years ago
O-CHOP
Hi everyone. Back with an update. New diagnosis: Follicular B, Stage IV, Grade 2. (was Grade 1) Previous treatment was Rituxan and Bendamustine, remission, shingles and it's baaaaack. Has anyone had O-CHOP? Obinutuzunab, Cyclophosphamide, Doxorubicin, Vincristine. Am scheduled for infusion 1\29,30,31
Hi everyone. Back with an update. New diagnosis: Follicular B, Stage IV, Grade 2. (was Grade 1) Previous treatment was Rituxan and Bendamustine, remission, shingles and it's baaaaack. Has anyone had O-CHOP? Obinutuzunab, Cyclophosphamide, Doxorubicin, Vincristine. Am scheduled for infusion 1\29,30,31
kstan8
in
Non Hodgkin's Lymphoma Friends
5 years ago
Treatments for C3G
There are no medicines that specifically treat C3G. Instead, current treatments aim to keep blood pressure, proteinuria (protein in the urine) and blood cholesterol levels low, and to control the immune system (the body’s defense against infections). The term C3G includes two conditions - dense deposit
There are no medicines that specifically treat C3G. Instead, current treatments aim to keep blood pressure, proteinuria (protein in the urine) and blood cholesterol levels low, and to control the immune system (the body’s defense against infections). The term C3G includes two conditions - dense deposit
DavidF_NKF
Administrator
in
C3 Glomerulopathy
6 years ago
C3G - Knowing the Signs and Symptoms
Complement 3 glomerulopathy (C3G) is a rare kidney disease that has two forms: dense deposit disease (DDD) and C3 glomerulonephritis (C3GN). Each is caused by genetic or acquired problems in controlling the body’s complement system, which helps fight infections. Genetic problems can be inherited or not
Complement 3 glomerulopathy (C3G) is a rare kidney disease that has two forms: dense deposit disease (DDD) and C3 glomerulonephritis (C3GN). Each is caused by genetic or acquired problems in controlling the body’s complement system, which helps fight infections. Genetic problems can be inherited or not
DavidF_NKF
Administrator
in
C3 Glomerulopathy
6 years ago
TWO TREES AT CHRISTMAS (A CHRISTMAS WISH)
It’s Christmas time. A time for miracles. A time, I stubbornly insisted, for a real Christmas tree. ‘But the needles,’ my mother said. ‘The mess...’ And even so, she relented. Just a small one... Well, actually... in the end... we got two. One a nice normal-ish size... she was very fluffy when
It’s Christmas time. A time for miracles. A time, I stubbornly insisted, for a real Christmas tree. ‘But the needles,’ my mother said. ‘The mess...’ And even so, she relented. Just a small one... Well, actually... in the end... we got two. One a nice normal-ish size... she was very fluffy when
lupusinflight
in
LUPUS UK
6 years ago
Consultation at Stanford
So today has been somewhat emotional. Met with Doctor Mooney and went over my health history. He suggests I advance forward with testing and qualifications for double lung transplant as per my portfolio of lung information suggests. He wants me back within a week or so, as soon as insurance gives authorization
So today has been somewhat emotional. Met with Doctor Mooney and went over my health history. He suggests I advance forward with testing and qualifications for double lung transplant as per my portfolio of lung information suggests. He wants me back within a week or so, as soon as insurance gives authorization
Rhonda2121
in
Lung Conditions Community Forum
6 years ago
Heart transplant information for a foreiner in UK
HI my cousin is 38 years old from Honduras .Sshe really needs a heart trasplant but there is not an option to do this in Honduras. She was operated when she was a baby in USA for a congenital heart problem . Now we are desperate for her to be seen and somehow see if she can get into a transplant list
HI my cousin is 38 years old from Honduras .Sshe really needs a heart trasplant but there is not an option to do this in Honduras. She was operated when she was a baby in USA for a congenital heart problem . Now we are desperate for her to be seen and somehow see if she can get into a transplant list
Kleb68
in
British Heart Foundation
6 years ago
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