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DC Action

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It’s official- walking is good for your telomeres!

A study of UK adults has shown that walking is associated with longer telomeres....

RPA1 joins the dykeratosis congenita gene family

Many families affected by dyskeratosis congenita (DC) don’t know which genetic v...
Administrator

Gene therapy study starts for bone marrow failure in dyskeratosis congenita (DC)

Dr Kasiani Myers, from Cincinnati has treated the first patient with DC-related ...

US National Cancer Institute International Survey

Are your needs being met? The US National Cancer Institute is carrying out a wor...

Cheat sheets now online

Just to let you know that - in response to popular demand- we have now put our f...

The NHS is listening- time to have your say about specialist care for DC

Join the CONCORD study survey of patients and families’ experience of rare disea...

Dyskeratosis Congentia

Hi Everyone, I am so pleased there is a link to connect all families who are su...

Just checking inn.

I there all! Im just checking everyone is ok. Also a belated Happy New year. Xx...

Wish list?

Cambridge doctors (multi speciality) are meeting tomorrow to discuss getting bet...

The Road to Diagnosis

Tell us how it was for you! Can diagnosis be improved? How long did your diagno...
Administrator

Hello other members 👋

Hello I have dc, me and my sister were first diagnosed around 13 years ago, I ha...

Introduction

I would like to introduce myself to this amazing group. Me and My Wife, are car...

Just want to say hi!

Hi, im Jayne nice to be added to this group. I have DC alongside my son. We wh...

DC Action Community Guidelines

The aim of this community is to provide a supportive, informative and friendly c...
Administrator

Introduce yourself!

Why not leave a short comment below and introduce yourselves. Give as much or as...

Welcome!

If you’ve just arrived as a Pioneer member this is where it all begins. HealthUn...
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About us

We are a peer support group for people and families affected by telomeropathies and dyskeratosis congenita (DC...

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