Polycystic liver : Hello I have pkd and... - PKD Charity for A...

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Polycystic liver

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Hello I have pkd and also polycystic liver, I recently under went an attempted liver cyst fenestration which was unsuccessful as the cyst could not be reached via key hole surgery. The surgeon advised afterwards that I may have to consider liver transplant. This shocked and frightened me as I wasn’t expecting that since my liver function is ok it’s just that I have a very very large cyst. I believe it’s quite rare for PLD to lead to transplantation, does anyone know of anyone who has had to have a liver transplant due to pkld?

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JanWellcome

Hi there is a lady on the PKD & Tolvaptan face book group who has had this I believe her name is Natasha, it would be worth you joining and posting this question on either of these groups I’m sure she would be happy to help. Jx

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in reply to JanWellcome

Thank you very much I will do that

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