Slight bad news

[Steak]

Hi just over 5 months since liver transplant and had call from consultant after clinic visit on Tuesday. I need a liver scan so I presume when bloods taken not good. Hopefully it can be sopted. I have just come off mycophenolate tablets and have been put on prednisolone again. See what happens. I supposed after these transplants it can't all be plain sailing.

[Hidden]

Hi

I really hope everything goes well for you. Take care Lynne

[alfredthegreat]

Hi Steak. Sorry to hear that there seems to be a problem. Quite a lot of people have had problems in the first year after transplant. The good thing is that we are all monitored quite closely and so as soon as a problem is seen the professionals are on to it. Hope all is well with your scan and that you are very quickly sorted. Best wishes. Alf

[Steak in reply to alfredthegreat]

Thanks for that my blood results have been fine since transplant and even when I went to clinic on Tuesday all seemed well. I am a worrier but if there is a problem I know they will do their best 2 sort it hopefully.

[alfredthegreat in reply to Steak]

It could be something and nothing but they have to err on the side of caution. You may well have bloods taken again before the scan and then the scan deemed not necessary. I had to go back in hospital a week or so after discharge after transplant. It was following my first clinic blood tests. My tablets were altered and I was told that I would be having a liver biopsy in the morning. After blood tests in the morning it was decided that I didn't need the biopsy and I was discharged the next day and everything has been fine since. So fingers crossed all will be well.

[Hidden]

Hi Steak, thanks for letting us know. It is good they keep such a close watch on your progress. Be well.

[Steak in reply to Hidden]

Thks

[Hidden in reply to Steak]

and try not to worry, like you say, no one here has ever said it's plain sailing. More like - it's a miracle - but darned hard work, seems to be what I hear.

[davianne]

Hi Steak, I'm sorry to hear of your issue. I sincerely hope it's just a wee problem that can be sorted very soon.

Thinking of you,

David

[Huggy7614]

Sorry to hear this steak, I’m only a month behind you!! As you say, hopefully they’ll get it sorted!! It’s a reminder just how finely balanced it all is!! Fingers crossed a meds adjustment will sort it out. Good luck. Andy.

[Steak in reply to Huggy7614]

Thks

[Jazzy_Jazz]

Hi Steak.

Sorry to hear your issue. But You don't worry, same problems I had several times and with Steroids we used solve problems. All will be fine, stay cool and wish You all the Bests.

Respectfully,

Iskandar

[jojokarak]

As I have mentioned previously the first year is the best time to have problems you are being monitored so carefully that they can get it sorted ASAP x

Please don't worry 😊 you have conquered the worst the rest is a breeze xx

I had rejection six months post and they monitored me even closer its only the last few months they have let go of the reins I went to six monthly visits I just had an appointment yesterday at mri as Leeds doctors are now travelling there and I am back to three monthly visits due to my bloods but I won't and don't worry 😊

[Steak]

Thanks I am in chorley hospital at mom were they have me on a drip 4 7 days at least. Had loads of bloods taken and they found i was cmv positive. Put me back on a steriods and other meds I was previously taken off. Have 2 have a abodes and liver scan. Hope ur ok. X

[jojokarak in reply to Steak]

I not bad thanks x and the dreaded cmv I had it twice so Iknow it knocks you for six your in the best place it's just a blip remember that, your having a similar experience to me lol

I hope after this it goes smoother my dear 😊 😘

[Steak in reply to jojokarak]

Thanks in chorley hospital at moment on drip for antibiotics. Put back on valganaclovir and prednisolone and omerpr azole. Have 2 have liver scan and urgent abdomen scan but according to Dr 2day some test have improved so hopefully things will get better and reduce steriods and meds I have been put on lol. When I went on Tues to jimmys the letter consultant sent me said bloods were worrying.full blood count was showing suggestive pancytopenia

[ThreeSmiles in reply to jojokarak]

Hi jojo

Sticking my oar in because I didn’t know what cmv was so I found this on the fantastic Mayo Clinic website. The Mayo Clinic is American and is world renowned.

Hope putting this here may help others understand CMV 👍

Mayo Clinic:-

“ Cytomegalovirus (CMV) is a common virus that can infect almost anyone. Once infected, your body retains the virus for life. Most people don't know they have CMV because it rarely causes problems in healthy people.

But if you're pregnant or have a weakened immune system, CMV is cause for concern. A woman who develops an active CMV infection during pregnancy can pass the virus to her baby, who might then experience signs and symptoms. For people with compromised immunity, especially due to organ transplantation, CMV infection can be fatal.

CMV spreads from person to person through body fluids, such as blood, saliva, urine, semen and breast milk. There's no cure for the virus. However, medications can help treat newborns and people with weak immune systems.”

I added the underline! Be careful - but I don’t know how to be careful to be honest ☹️.

Miles

[TT-2018 in reply to ThreeSmiles]

The website is funded by advertising and therefore under commercial influences.

“Mayo Clinic does not endorse companies or products. Advertising revenue supports our not-for-profit mission.”

I have posted the NHS and NICE links below.

[ThreeSmiles in reply to TT-2018]

As you can see there is NO commercial influence in the above factual statement of fact from the Mayo clinic.

No medication is referenced.

You could have linked to the NHS site without feeling the need to criticise my post.

[TT-2018 in reply to ThreeSmiles]

You are endorsing and highlighting a website that carries advertising. It’s all about clicks and that is how they get paid.

[ThreeSmiles in reply to TT-2018]

You never give it a rest do you snoutie ☹️.

[CocoChannel in reply to ThreeSmiles]

We can’t have people being paid for their services, Miles 😀

[ThreeSmiles in reply to CocoChannel]

Coco

Of course not especially non-profit making organisations.

Extract from Wikipedia :-

“The Mayo Clinic is an American nonprofit academic medical center based in Rochester, Minnesota, focused on integrated clinical practice, education, and research.[6] It employs more than 4,500 physicians and scientists, along with another 58,400 administrative and allied health staff.[7][8] The practice specializes in treating difficult cases through tertiary care and destination medicine. It is home to the top-ten ranked Mayo Clinic Alix School of Medicine in addition to many of the largest, best regarded residency education programs in the United States.[9][10][11] It spends over $660 million a year on research and has more than 3,000 full-time research personnel.[12][13]”

Miles

[alfredthegreat]

Hi Steak. Glad that it's now known what the problem is and that you are getting sorted. Good to know that tests are improving. Hopefully you will be home soon getting on with your recovery. Best wishes. Alf

[TT-2018]

Here is the NHS link for CMV, it is common to get it from a transplanted Liver.

nhs.uk/conditions/cytomegal...

The virus is treated with Valganciclovir, in my case, successfully.

bnf.nice.org.uk/drug/valgan...

[Steak in reply to TT-2018]

Thanks I am still in hospital as on drip with antibiotics started me back on valganaclovir tablets but trying 2 get it done through drip. There has been slight improvement in my bloods. This was all found out at jimmys leeds on tuesday when bloods came back. It was a bit frightening when I received consultant's letter saying he had worrying news not what u want 2 hear but at least on the ball.

[TT-2018 in reply to Steak]

I required two clear readings from the blood tests. When they take the blood sample, it takes two days to grow a culture in the laboratory. Hence the reason for the delay in getting answers. Good luck with everything, you are in good hands.