Parents of ALD Newborns
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More states adding ALD newborn screening update.

I am happy to share that North Carolina is following several other states by scr...

When you were first (and or your child) diagnosed with ALD, what was your doctor’s initial advice?

Here is my story of how I had the news broken to me...let us know your story to ...

Hello Everyone! I am a ALD Mom ❤️

Hello Everyone! My name is Kerri and my son, Gregory was diagnosed with ALD in ...

Welcome to our forum! Tell us how we can help support you and your family.

As you join this group please give a short synopsis of why you are here, i.e. ho...

Mom of 2 ALD boys

I am associated with Janis and know many speak very highly of her and her knowle...
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We are here to offer support as you navigate through your babies first few years of life after a diagnosis of ... Read more