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Parents of ALD Newborns
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Standards of Care as defined by UMN doctors

Bloodwork to check for adrenal insufficiency should be done at 4 months and repe...

ALD prenatal genetic testing for moms?

Does anyone know of any efforts being made to include ALD in the prenatal geneti...

ULF Meeting in June

I wanted to give all you parents a heads up that the United Leukodystrophy Found...

Hydrocortisone question

It was recently determined time to begin daily oral steroids for my son. We hav...

How does new born screening of ALD help?

Could anyone share some info on how does the new born screening help in treating...
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We are here to offer support as you navigate through your babies first few years of life after a diagnosis of ... Read more