Parents of ALD Newborns
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Q tratamiento m ayudaría para la ALD

Necesito con urgencia tratamiento e información sobre la enfermedad

Understanding My Childs Health

Hi, My name is Jessica. My newborn Child was diagnosed with X-linked Adrenoleu...

More states adding ALD newborn screening update.

I am happy to share that North Carolina is following several other states by scr...

When you were first (and or your child) diagnosed with ALD, what was your doctor’s initial advice?

Here is my story of how I had the news broken to me...let us know your story to ...

Hello Everyone! I am a ALD Mom ❤️

Hello Everyone! My name is Kerri and my son, Gregory was diagnosed with ALD in ...
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We are here to offer support as you navigate through your babies first few years of life after a diagnosis of ... Read more