Liver Transplant Straw Poll: Thought I'd... - British Liver Trust

British Liver Trust

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Liver Transplant Straw Poll

hawksey profile image
25 Replies

Thought I'd kick off a straw poll to see how long, after going through assesment , is the typical waiting time for a new liver... of course I understand there are many reasons for waiting times but thought this might be interesting, not least because I'm close to assesment!

Time waited in months....?

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hawksey profile image
hawksey
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25 Replies
alfredthegreat profile image
alfredthegreat

Hi Hawksey,. 2 months 2 weeks for me. All the best with the assessment. Regards. Alf

Popel profile image
Popel

Hi there. I was extremely lucky as I waited only three months and so relieved when the call came at one thirty am. It was the first night in subsequent weeks that I had forgot I was expecting a call from Queen Elizabeth hospital Birmingham. Hope it goes well for you.paul

TT-2018 profile image
TT-2018

The average waiting time is 135 days but it depends on various factors, including your blood group and frame. I am type B blood and this group has a shortage of donors, my wait was 19 months.

ThreeSmiles profile image
ThreeSmiles

Hi

6 weeks - aborted - then 2 weeks more for me. So 2 months then!

Miles

Huggy7614 profile image
Huggy7614

Hi.

3 weeks and fortunately transplanted on first call!! So so surprised it came so quick. Andy.

Yellowsydney profile image
Yellowsydney

Hi, waited 8 months but I didn't feel Ill I did ask to be kept at the bottom of the list for as long as possible! Only had 1 call.

Hilary

ThreeSmiles profile image
ThreeSmiles in reply toYellowsydney

Wowee Hilary - that was brave of you not to mind waiting! I couldn’t get it done soon enough but I guess if you were really feeling ok ish then 👍 good on you!

Miles

Bbsmom profile image
Bbsmom

10 months today and waiting, 1 false alarm n 10 sept aborted due to no viability of donor organ. PBC sufferer

ThreeSmiles profile image
ThreeSmiles in reply toBbsmom

Hi bbsmom - Hope you get the call soon!

Bbsmom profile image
Bbsmom in reply toThreeSmiles

Many thanks and yours too xx

14 months - liver unusable a space of 3 years as my condition became stable then relisted 13 months and transplant.

It due to many surcumstances, I hope yours is soon!

ThreeSmiles profile image
ThreeSmiles in reply to

Gosh - long haul overall. How are you now? How long ago was TP?

AyrshireK profile image
AyrshireK

Hubby listed for 10 months then delisted (2015) as his condition stabilized. Back at watch and wait stage.

Kristian profile image
Kristian

6 weeks for me 😊.

When they say make sure you have all your affairs in order they mean it 🤣🤣.

NHS Blood & Transplant actually produce an annual report setting out average wait times for each transplant centre, organ and blood type, amongst other things. Its freely available on their website.

I did have a link somewhere to the relevant document but dont have it handy.

Steak profile image
Steak

Hi 1 day a miracle. Good luck with assessment

Dannythedog profile image
Dannythedog

Hi there

3 weeks for my husband, but liver not suitable. We got the call on Thursday past.

Best wishes

Geraldine

Galaxygold profile image
Galaxygold

Hi, my first call was 5 days but they hadn’t got enough ICU beds so it was released for another patient elsewhere. Second call was19 days later and I was transplanted next day. Hope your wait is not too long x

Dallo100 profile image
Dallo100

7 days due to cancer of the liver and rare blood group AB Positive

cherrygirl13 profile image
cherrygirl13

We waited 8 months and had 6 calls (was type B blood which means we had to wait for a type B liver) 🥰👍

cherrygirl13 profile image
cherrygirl13 in reply tocherrygirl13

Thought I would elaborate 🤣 6 calls were all false ones where you get called and get to hospital and they then find liver not suitable - could be for loads of reasons but sometimes that’s just the way it goes 🤷‍♀️ in April we also had 3 in one week (that was a bit of a nightmare 😢 - his transplant was end of May) also he had his next liver appt at the end of June and consultant was preparing to remove him from list as he was deteriorating fast and they were thinking the ‘balance’ was not in his favour - so he’s a lucky boy that he’s managed 5 years after transplant 🥰🥰🥰

3 months for me, got transplant on the 3rd call.

Melwoods profile image
Melwoods

I was listed on the 7th jan 19 and recieved a split liver transplant on the 1st May @ QEHB X

12-days from day of acceptance onto transplant list. I've recently found out that my donor was male and was only 42-years old, 22-years my junior.

I shall be thinking of this wonderful, poor man on Tuesday 1st as it's my third Liverversary.

Kazzb8 profile image
Kazzb8

My husband was listed April 2019. Not had any calls yet.

1football profile image
1football

Hi 17 months for me had 1 call at 13 months. Good luck

Huw

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