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Pregnancy
Hi all I am 6.5 years post single lung transplant and recently found out I am 7 weeks pregnant . I'm super shocked as I was told I would never have another child ( I also have a 13 year old daughter) And im super worried about how my body is going to cope with this pregnancy. My transplant unit have
Hi all I am 6.5 years post single lung transplant and recently found out I am 7 weeks pregnant . I'm super shocked as I was told I would never have another child ( I also have a 13 year old daughter) And im super worried about how my body is going to cope with this pregnancy. My transplant unit have
Hidden
in
Lung Conditions Community Forum
1 year ago
Holiday insurance
Anyone been going on holiday not sure about insurance answered as best I can but varices question stuck o now no acites swelling gone down one report from 2021 decsaid grade one varices but none now never had tied or tipped or whatever goes with varices no bleeding n no liver transplant mentioned not
Anyone been going on holiday not sure about insurance answered as best I can but varices question stuck o now no acites swelling gone down one report from 2021 decsaid grade one varices but none now never had tied or tipped or whatever goes with varices no bleeding n no liver transplant mentioned not
Morkmindy
in
British Liver Trust
1 year ago
Exhausted but happy.
I spent seven hours at the lung transplant clinic at Harefield yesterday. I was weighed and measured many times, sometimes with boots (dockers!) on sometimes off, ECG, echocardiogram, chest xray, blood tests, blood pressure test, lung function test, urine test, and finally mrsa test! Everone
I spent seven hours at the lung transplant clinic at Harefield yesterday. I was weighed and measured many times, sometimes with boots (dockers!) on sometimes off, ECG, echocardiogram, chest xray, blood tests, blood pressure test, lung function test, urine test, and finally mrsa test! Everone
Karenanne61
in
Lung Conditions Community Forum
1 year ago
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COVID VACCINE MANDATE
My ex husband is in need of a kidney. He has been evaluated at 2 separate centers but they refuse to list him unless he gets the COVID vaccine. This seems an unreasonable requirement since the long term effects of the vaccine are unknown in kidney transplant patients. He will be looking into other
My ex husband is in need of a kidney. He has been evaluated at 2 separate centers but they refuse to list him unless he gets the COVID vaccine. This seems an unreasonable requirement since the long term effects of the vaccine are unknown in kidney transplant patients. He will be looking into other
green1981
in
Kidney Donation
1 year ago
Does Tacrolimus cause forgetfulness for anyone?
I recently was speaking with a recent kidney transplant recipient, and he has memory lapses, sometimes forgetting conversations he's had. His nephrologist said it can be the Tacro as it is one of the possible side effects. He's being switched to another medication. I had not heard this, and just
I recently was speaking with a recent kidney transplant recipient, and he has memory lapses, sometimes forgetting conversations he's had. His nephrologist said it can be the Tacro as it is one of the possible side effects. He's being switched to another medication. I had not heard this, and just
Kbristow
in
Kidney Transplant
1 year ago
NHS Blood and Transplant are seeking the views of patients on living donor liver transplantation
Living donor liver transplantation emerged across the world in the early 1990s in response to the shortfall in available donor organs for patients in need of a liver transplantation. Since 1998, paediatric centres in the UK have been offering living donor transplantation for children on the active waiting
Living donor liver transplantation emerged across the world in the early 1990s in response to the shortfall in available donor organs for patients in need of a liver transplantation. Since 1998, paediatric centres in the UK have been offering living donor transplantation for children on the active waiting
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
Interesting transplant discussion tomorrow night
Sharing that I am hosting what I hope will be a great Zoom discussion tomorrow Jan. 23 featuring Robert Kolker ("Hidden Valley Road"), a New York Times Best-Selling author and Oprah's Book Club pick and the author of the viral 2021 New York Times Magazine article, "Who is the Bad Art Friend" (https:/
Sharing that I am hosting what I hope will be a great Zoom discussion tomorrow Jan. 23 featuring Robert Kolker ("Hidden Valley Road"), a New York Times Best-Selling author and Oprah's Book Club pick and the author of the viral 2021 New York Times Magazine article, "Who is the Bad Art Friend" (https:/
EmilyKidney
in
PKD Charity for Autosomal Dominant PKD
1 year ago
Hand Sanitizer gel
Hi I am 2 weeks post liver transplant. Just had a thought that I am carry round Carex hand sanitiser gel which I use all the time, but just realised it contains 70% Alcohol. Is this okay to use as know you should not use mouth wash that has alcohol in it thanks
Hi I am 2 weeks post liver transplant. Just had a thought that I am carry round Carex hand sanitiser gel which I use all the time, but just realised it contains 70% Alcohol. Is this okay to use as know you should not use mouth wash that has alcohol in it thanks
Bantam2
in
British Liver Trust
2 years ago
GFR levels post transplant
hi, anyone got any idea as to what their GFR level, or creatinine or urea levels in blood were 2 years onwards post Tx. I was shocked today to find my GFR is 32 and until now no one has ever uttered chronic liver disease Stage 3b. That can’t just happen over night and GFR results hasn’t been listed
hi, anyone got any idea as to what their GFR level, or creatinine or urea levels in blood were 2 years onwards post Tx. I was shocked today to find my GFR is 32 and until now no one has ever uttered chronic liver disease Stage 3b. That can’t just happen over night and GFR results hasn’t been listed
Braveheart65
in
British Liver Trust
2 years ago
Liver transplant aborted
I was diagnosed in early April 22 as needing a liver transplant. The outward signs were yellow eyes and skin, lot’s of weight loss, fluid on the legs from ankles to mid thighs, very extended abdomen with small veins extending out on top of the abdomen. My lower legs were red, itchy and “scaly” I was
I was diagnosed in early April 22 as needing a liver transplant. The outward signs were yellow eyes and skin, lot’s of weight loss, fluid on the legs from ankles to mid thighs, very extended abdomen with small veins extending out on top of the abdomen. My lower legs were red, itchy and “scaly” I was
Shep666
in
British Liver Trust
2 years ago
worry over echo results
I am a 58 year old woman with a 3 generational history of dilated cardiomyopathy, including mother who had a heart transplant at 50 and am also a carrier of Becker muscular dystrophy, which carries an increased risk of DCM. I have an ECG and Echo every 3 years and when the results of the last echo came
I am a 58 year old woman with a 3 generational history of dilated cardiomyopathy, including mother who had a heart transplant at 50 and am also a carrier of Becker muscular dystrophy, which carries an increased risk of DCM. I have an ECG and Echo every 3 years and when the results of the last echo came
Jeanm-c
in
British Heart Foundation
2 years ago
Tinnitus and the impacts on the anatomical nervous system
I am keen to hear if anyone has solutions please I have had very intrusive tinnitus for 18 months now I have accepted it My problem is sleep and the lack thereof I have the same insomnia issues now as I did before I went on mirtazapine As I tapered off mirtazapine, the heart beats started to
I am keen to hear if anyone has solutions please I have had very intrusive tinnitus for 18 months now I have accepted it My problem is sleep and the lack thereof I have the same insomnia issues now as I did before I went on mirtazapine As I tapered off mirtazapine, the heart beats started to
DR650SE
in
British Tinnitus Association
2 years ago
Liver cirrhosis & liver transplant
Hello 👋🏻 i am new & just join the group. Would like to chat with anyone, who could give us an advice for liver transplant. thank you
Hello 👋🏻 i am new & just join the group. Would like to chat with anyone, who could give us an advice for liver transplant. thank you
JLhervey
in
Liver4Life
2 years ago
Liver cirrhosis & liver transplant
My husband was diagnosed of liver cirrhosis last year. According to the specialist he needs a liver transplant. Would much appreciated to have anyone who had similar experienced that i could ask please🙏🏻😌thank you so much
My husband was diagnosed of liver cirrhosis last year. According to the specialist he needs a liver transplant. Would much appreciated to have anyone who had similar experienced that i could ask please🙏🏻😌thank you so much
JLhervey
in
Liver4Life
2 years ago
Preparation for my husband Liver transplant
Hello Everyone👋🏻 i am new here. Just want to join with any group who has the same experience where their partner been diagnosed of liver cirrhosis and tneed a liver transplant.
Hello Everyone👋🏻 i am new here. Just want to join with any group who has the same experience where their partner been diagnosed of liver cirrhosis and tneed a liver transplant.
JLhervey
in
Liver4Life
2 years ago
Tapering with new issues ongoing
Tapering while new issues arvine profile image arvine• 8 hours ago•1 Reply well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma
Tapering while new issues arvine profile image arvine• 8 hours ago•1 Reply well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma
arvine
in
PMRGCAuk
1 year ago
Tapering while new issues
well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma, having stem cell transplant in Jan 2018, as a mom, this was very hard to see
well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma, having stem cell transplant in Jan 2018, as a mom, this was very hard to see
arvine
in
Pain Concern
1 year ago
10 years!
Hi all. Today is the tenth anniversary of my liver transplant and, whilst I still have ups and downs with my health, I have enjoyed the abundance of life that that amazing gift promised to bring. I remain in awe of the donor and their family for thinking of others in the rawness of grief, and of the
Hi all. Today is the tenth anniversary of my liver transplant and, whilst I still have ups and downs with my health, I have enjoyed the abundance of life that that amazing gift promised to bring. I remain in awe of the donor and their family for thinking of others in the rawness of grief, and of the
nutrimar
in
British Liver Trust
2 years ago
Prolia
Hi Has anyone taken Prolia shots for osteoporosis after kidney transplant ?
Hi Has anyone taken Prolia shots for osteoporosis after kidney transplant ?
Hidden
in
Kidney Transplant
2 years ago
Red face / flushing. Possible rosacea
Hi I am 200 plus days post stem cell transplant. Since then I get flushed very easily. I have suffered with this in the past and still have it now but maybe worse I take a few medications still which may or may not help and wondered on any good way of controlling it my consultant has recommended me
Hi I am 200 plus days post stem cell transplant. Since then I get flushed very easily. I have suffered with this in the past and still have it now but maybe worse I take a few medications still which may or may not help and wondered on any good way of controlling it my consultant has recommended me
Kraskie1915
in
CLL Support
1 year ago
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