Search
Search
About
Log in
Join
Experiences with
Ostomy belt
Posts
Communities
653 public posts
Filter results
New here ...success stories/advice needed...
Hi, Not even sure what I want to get out of this, I guess I just need to vent. In February my mum was diagnosed with ovarian cancer from a 'cyst' she had removed from her chest. She had no symptoms whatsoever and I know this is common with this type of cancer. Anyway, she has undergone 3 sessions
Hi, Not even sure what I want to get out of this, I guess I just need to vent. In February my mum was diagnosed with ovarian cancer from a 'cyst' she had removed from her chest. She had no symptoms whatsoever and I know this is common with this type of cancer. Anyway, she has undergone 3 sessions
Katedunn86
in
My Ovacome
7 years ago
Stoma nurse, what to expect?
im now on the list for excision surgery, because my bowel is affected ( it has attache ditself by endo tissue growth to ligments holding the womb) i have to see the colorectal surgeon and a stoma nurse, and i was wondering what to expect from these consultations.
im now on the list for excision surgery, because my bowel is affected ( it has attache ditself by endo tissue growth to ligments holding the womb) i have to see the colorectal surgeon and a stoma nurse, and i was wondering what to expect from these consultations.
mommyto3boys
in
Endometriosis UK
7 years ago
Davethescot
Had a stoma op last year any have lost a lot of weight since. Never feel hungary any body else the same Sent
Had a stoma op last year any have lost a lot of weight since. Never feel hungary any body else the same Sent
Davethescot
in
Living with a Stoma
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Food
Since a stoma op last October I have barley ate anything does any one have an answer
Since a stoma op last October I have barley ate anything does any one have an answer
Davethescot
in
Healthy Eating
7 years ago
Temporary stoma bag and endometrioma removal
So I'm set to have a five hour excision surgery to remove my endo and save my kidney hopefully soon. I've been told I have a 50% chance of ending up with a temporary stoma afterwards. Does anyone have any experience of this? Also been diagnosed with an endometrioma for the first time which is going to
So I'm set to have a five hour excision surgery to remove my endo and save my kidney hopefully soon. I've been told I have a 50% chance of ending up with a temporary stoma afterwards. Does anyone have any experience of this? Also been diagnosed with an endometrioma for the first time which is going to
Mayaudrey
in
Endometriosis UK
7 years ago
Good news at long last
Evening, had our post op and histology appointment today and I'm happy to report that all is great. The tumour was from a polyp, a T3, it had grown into the muscle wall of the colon, but had not touched any lymph nodes. The surgeon removed 180 lymph nodes and they were all clear !!!! Hubby is at the
Evening, had our post op and histology appointment today and I'm happy to report that all is great. The tumour was from a polyp, a T3, it had grown into the muscle wall of the colon, but had not touched any lymph nodes. The surgeon removed 180 lymph nodes and they were all clear !!!! Hubby is at the
Susiecarer
in
CLL Support
7 years ago
Endo removal & possibl bowel surgery....anyone had it done??
Hi ladies not been on in a while as i've been put at the botton of the list by accident so waited along time for my surgery to come around. That & the fact i need two surgeons to do my op, has proven tricky to get a op date. I'm going in for stage 4 endo removal & possible bowel resection. Maybe a stoma
Hi ladies not been on in a while as i've been put at the botton of the list by accident so waited along time for my surgery to come around. That & the fact i need two surgeons to do my op, has proven tricky to get a op date. I'm going in for stage 4 endo removal & possible bowel resection. Maybe a stoma
Booboo08
in
Endometriosis UK
7 years ago
Anyone had a stoma bag ?
My consultant has said I will have to have a stoma bag,wonder if anyone else has had one of these and how do you cope with it as I am very worried about it
My consultant has said I will have to have a stoma bag,wonder if anyone else has had one of these and how do you cope with it as I am very worried about it
christie63
in
Pelvic Pain Support Network
7 years ago
Just when you thought it was safe....
Well there I was pootlling along, my Copd, brochiectasis,osteoporosis over active thyroid doing ok when wham,severe constipation and stomach pains and A&E.. Diagnosed bowel blockage (after ct scan) with three options: 1 do nothing with a max four weeks on morphine 2 surgery to remove blockage - lungs
Well there I was pootlling along, my Copd, brochiectasis,osteoporosis over active thyroid doing ok when wham,severe constipation and stomach pains and A&E.. Diagnosed bowel blockage (after ct scan) with three options: 1 do nothing with a max four weeks on morphine 2 surgery to remove blockage - lungs
Meg99p
in
Lung Conditions Community Forum
7 years ago
Can headachs be connected to Virtigo
Hi there, I'm nearly sixty years of age, about 10 years ago I started to get headachs when I drank, not wanting to give up this pleasure entirely I stopped drinking what I was drinking, red wine mainly, and moved onto vodka tonic. After a while I couldn't drink these either, so I moved onto beer. Now
Hi there, I'm nearly sixty years of age, about 10 years ago I started to get headachs when I drank, not wanting to give up this pleasure entirely I stopped drinking what I was drinking, red wine mainly, and moved onto vodka tonic. After a while I couldn't drink these either, so I moved onto beer. Now
Wgeorge
in
Migraine Support
7 years ago
Operation over
Hi, well just received a phone call from the surgeon, op was 6.5 hours long in the end. As he said it wasn't a walk in the park with this op. All went well, he's very pleased Went according to plan. And is now in recovery. He has a stoma fitted temporarily but now we can say he, apart from the CLL,
Hi, well just received a phone call from the surgeon, op was 6.5 hours long in the end. As he said it wasn't a walk in the park with this op. All went well, he's very pleased Went according to plan. And is now in recovery. He has a stoma fitted temporarily but now we can say he, apart from the CLL,
Susiecarer
in
CLL Support
7 years ago
A somewhat overdue update.
A lot has happened since my last post. I had a total hysterectomy (The whole factory is gone now), omenectomy, and low anterior resection of my bowel near the rectum as part of my surgical debulking on January 20th. I initially healed well from it, but ended up back in the hospital January 31st when
A lot has happened since my last post. I had a total hysterectomy (The whole factory is gone now), omenectomy, and low anterior resection of my bowel near the rectum as part of my surgical debulking on January 20th. I initially healed well from it, but ended up back in the hospital January 31st when
mogwaicat
in
My Ovacome
7 years ago
Out the other side!
So 2 days after surgery - sitting in the chair rather than bed. It was adhesions causing the blockage - no visible disease and no stoma - what a relief. Thank you for all of your good wishes. Still in the critical care ward but feeeling much better today. Yesterday was excruciating as they had to stop
So 2 days after surgery - sitting in the chair rather than bed. It was adhesions causing the blockage - no visible disease and no stoma - what a relief. Thank you for all of your good wishes. Still in the critical care ward but feeeling much better today. Yesterday was excruciating as they had to stop
Beckyjh
in
My Ovacome
7 years ago
cronic constipation
i have and ostomy for no good reason it does not work. i have caonstapation real ba for years and still do . started to take constella ,it works but mostly all watery some stool anyone else have that problem?
i have and ostomy for no good reason it does not work. i have caonstapation real ba for years and still do . started to take constella ,it works but mostly all watery some stool anyone else have that problem?
ggerry
in
IBS Network
7 years ago
Surgery this week
Following an appointment with a specialist today my sister is scheduled for surgery on Wednesday. Initial staging is a 4 because of the ascitis but could be downgraded to a 3 once everything is out and looked at. A stoma has been mentioned as a worst case scenario. The other thing she was told is it
Following an appointment with a specialist today my sister is scheduled for surgery on Wednesday. Initial staging is a 4 because of the ascitis but could be downgraded to a 3 once everything is out and looked at. A stoma has been mentioned as a worst case scenario. The other thing she was told is it
Seavccg
in
My Ovacome
7 years ago
Anyone have experience of stoma bags?
Hi everyone. I'm Cath and new here and hope you don't mind me asking this: I need to gave a full hysterectomy in six months as a result of large cysts and kissing ovaries. There is a high chance that damage to my bowel will occur and I will need a stoma etc for a while afterwards while my bowel recovers
Hi everyone. I'm Cath and new here and hope you don't mind me asking this: I need to gave a full hysterectomy in six months as a result of large cysts and kissing ovaries. There is a high chance that damage to my bowel will occur and I will need a stoma etc for a while afterwards while my bowel recovers
CathKraken
in
Endometriosis UK
7 years ago
Reaccurance
Hi. Ladies, l was diagnoses July 2015 had no debulking surgery but with stoma. I went through chemo, and 12 treatments of Aavastin with no major problems. I started to feeel very tired and last I had a very mini I stroke, right hand and slight slurred speech. All nearrl. Back to normal' was admitted
Hi. Ladies, l was diagnoses July 2015 had no debulking surgery but with stoma. I went through chemo, and 12 treatments of Aavastin with no major problems. I started to feeel very tired and last I had a very mini I stroke, right hand and slight slurred speech. All nearrl. Back to normal' was admitted
valo
in
My Ovacome
7 years ago
Hi
Hi everyone My daughter is 9 years old and has an ace stoma since she was 5 years old. She is undiagnosed. It has been a very long journey and we struggle most days with her washouts.
Hi everyone My daughter is 9 years old and has an ace stoma since she was 5 years old. She is undiagnosed. It has been a very long journey and we struggle most days with her washouts.
Kellywatson
in
ERIC
7 years ago
Severe endo. Choice of ovary removal or bowel surgery
Had quite a shock when I went back to my surgeon this week. He confirmed my diagnosis was severe endometriosis. I had though it was mild to moderate. He had warned me of the need for more surgery which I hadn't been keen on. I had started to brace myself for this bowel op after the sigmoidoscopy and
Had quite a shock when I went back to my surgeon this week. He confirmed my diagnosis was severe endometriosis. I had though it was mild to moderate. He had warned me of the need for more surgery which I hadn't been keen on. I had started to brace myself for this bowel op after the sigmoidoscopy and
Starry
in
Endometriosis UK
7 years ago
More Surgery
In the autumn, I wrote that I was starting Caelyx as 3rd line chemo. That was discontinued last month, after 3 cycles, as my scan showed it was having no effect. My onc suggested that, as I've had my current 4 GCT tumours for nearly 4 years, & no more new ones in that time, & nothing seems to be working
In the autumn, I wrote that I was starting Caelyx as 3rd line chemo. That was discontinued last month, after 3 cycles, as my scan showed it was having no effect. My onc suggested that, as I've had my current 4 GCT tumours for nearly 4 years, & no more new ones in that time, & nothing seems to be working
Di16
in
My Ovacome
7 years ago
1
...
22
23
24
...
33
Next page
10
20
30
Filter results
Clear filters
Posted in
All communities
My Ovacome
198 results
Endometriosis UK
129 results
Living with a Stoma
91 results
View top 10 communities
Sort by
Most Relevant
Newest