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Ostomy belt
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Understanding the next steps for mum
Morning ladies. I haven't posted for a while regarding my mums cancer. I guess there are times when you feel like you're ok with it and then times when you feel like you don't understand how you feel or what's happeneing. Today, well the last few days have felt a bit like that. So I'm hoping for some
Morning ladies. I haven't posted for a while regarding my mums cancer. I guess there are times when you feel like you're ok with it and then times when you feel like you don't understand how you feel or what's happeneing. Today, well the last few days have felt a bit like that. So I'm hoping for some
nandeb21
in
My Ovacome
7 years ago
An answer at long last.....
Evening everyone..... Well NO OPERATION tomorrow.....taken into the Churchill and has been diagnosed with Evans Syndrome......which is another part of CLL !!! staying in until Thursday or Friday. Had one dose of steroids intravenously.....tomorrow I believe it will be via oral.......they want to see
Evening everyone..... Well NO OPERATION tomorrow.....taken into the Churchill and has been diagnosed with Evans Syndrome......which is another part of CLL !!! staying in until Thursday or Friday. Had one dose of steroids intravenously.....tomorrow I believe it will be via oral.......they want to see
Susiecarer
in
CLL Support
7 years ago
Not sure what's going on
Morning everyone Hubby had his transfusion on the 18th July, he was given 2 units instead of the 3 possibly 4 as first told. He says he feels better i.e. able to walk without feeling whacked. The problem I have is, he is looking yellow and his whites of his eyes are yellow indicating jaundice. Obviously
Morning everyone Hubby had his transfusion on the 18th July, he was given 2 units instead of the 3 possibly 4 as first told. He says he feels better i.e. able to walk without feeling whacked. The problem I have is, he is looking yellow and his whites of his eyes are yellow indicating jaundice. Obviously
Susiecarer
in
CLL Support
7 years ago
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Bowel perforation
My sister had another setback on Tuesday when with increasing pain and bloating she suffered a bowel perforation. The surgeons felt she could withstand surgery and took her down at midnight after giving her the choice on whether to have the surgery or allow nature to take its course. My sister opted
My sister had another setback on Tuesday when with increasing pain and bloating she suffered a bowel perforation. The surgeons felt she could withstand surgery and took her down at midnight after giving her the choice on whether to have the surgery or allow nature to take its course. My sister opted
Seavccg
in
My Ovacome
7 years ago
Chemo 2
I went for my second chemo treatment on the 6 July and all went well. All was okay until the dreaded day 4 and the stomach gripes started again only this time they didn't let up and I felt rubbish. By day 7 , I had an elevated temperature of 38.6 so off we went to a & e. Well to cut a long story short
I went for my second chemo treatment on the 6 July and all went well. All was okay until the dreaded day 4 and the stomach gripes started again only this time they didn't let up and I felt rubbish. By day 7 , I had an elevated temperature of 38.6 so off we went to a & e. Well to cut a long story short
Eriksendi
in
My Ovacome
7 years ago
problem dieting
My problem with dieting is that i have food issues due to a stoma and just dont know what i can eat healthly to lose weight. Does anyone else have this problem and can anyone help me?
My problem with dieting is that i have food issues due to a stoma and just dont know what i can eat healthly to lose weight. Does anyone else have this problem and can anyone help me?
railway56
in
Weight Loss Support
7 years ago
Colostomy since birth
Hi all, New to this site. Sharing My story. Born with cloacal extrophy in 1968. Colostomy @ 2 hours old and illeal conduit at age 2. I usually get along just fine with ostomies. No social problems, and never held back by them, just rerouted plumbing to me. I know nothing different. My biggest difficulties
Hi all, New to this site. Sharing My story. Born with cloacal extrophy in 1968. Colostomy @ 2 hours old and illeal conduit at age 2. I usually get along just fine with ostomies. No social problems, and never held back by them, just rerouted plumbing to me. I know nothing different. My biggest difficulties
Cjcatz
in
Living with a Stoma
7 years ago
Small kidneys
Hi all. Wondering if anyone has the answer to this question please. I have struggled with repeated kidney infections for years. I have had a urostomy ( bladder diversion) and last yr a liver transplant. Infections have been driving me mad. Im having lots of tests & scans at the moment. My ultrasound
Hi all. Wondering if anyone has the answer to this question please. I have struggled with repeated kidney infections for years. I have had a urostomy ( bladder diversion) and last yr a liver transplant. Infections have been driving me mad. Im having lots of tests & scans at the moment. My ultrasound
sheri44
in
Early CKD Support
7 years ago
Now have my plan but I'm so scared!
Hi lovely ladies saw the surgeon yesterday and went through what may need to happen and was told I may end up with a stoma and then will need carbo and taxol about 8 weeks after surgery. Date for surgery is 20th July, which I was so disappointed at as I'm really uncomfortable with ascites that seems
Hi lovely ladies saw the surgeon yesterday and went through what may need to happen and was told I may end up with a stoma and then will need carbo and taxol about 8 weeks after surgery. Date for surgery is 20th July, which I was so disappointed at as I'm really uncomfortable with ascites that seems
BeeWild
in
My Ovacome
7 years ago
Quick update
As I previously posted, hubby is due a stoma reversal on the 25th July. We had a phone call yesterday from the CLL Clinical Nurse stating that colorectal team have requested that he has a blood transfusion before the op. He is having this on the 18th July, they expect him to have at least 4 units.
As I previously posted, hubby is due a stoma reversal on the 25th July. We had a phone call yesterday from the CLL Clinical Nurse stating that colorectal team have requested that he has a blood transfusion before the op. He is having this on the 18th July, they expect him to have at least 4 units.
Susiecarer
in
CLL Support
7 years ago
Late up date
I posted on here quite a few weeks ago, but somehow it was shown, so no idea what happened there. Hope this one shows... Hubby is doing ok, saw Dr Shuh on the 15th June ......she is a very hard person to read. There was good and bad news though. Good news his WBC is down to 70 went up to 246, no longer
I posted on here quite a few weeks ago, but somehow it was shown, so no idea what happened there. Hope this one shows... Hubby is doing ok, saw Dr Shuh on the 15th June ......she is a very hard person to read. There was good and bad news though. Good news his WBC is down to 70 went up to 246, no longer
Susiecarer
in
CLL Support
7 years ago
My 2yr old daughter with PFIC having a PEBD next week!!
Hi my 2 year old is having a PEBD on Wed, I am terrified, can't bare the thought of her with a stoma.. Any advice would be greatly appreciated thank you
Hi my 2 year old is having a PEBD on Wed, I am terrified, can't bare the thought of her with a stoma.. Any advice would be greatly appreciated thank you
Stacian
in
Children's Liver Disease Foundation
7 years ago
1st relapse low grade ovarian 3c - do I do LOGS trial or try letrozole?
I only finished first line chemo in Jan with a summary that I was stable with no visible disease and ca125 of 8. Now my ca 125 has risen 3x from 15 to 29 and 42 and there is signs of active disease on my CT scan in peritoneum and outside the bowel in my pelvis. Onc wants me screened for the Mek inhibitors
I only finished first line chemo in Jan with a summary that I was stable with no visible disease and ca125 of 8. Now my ca 125 has risen 3x from 15 to 29 and 42 and there is signs of active disease on my CT scan in peritoneum and outside the bowel in my pelvis. Onc wants me screened for the Mek inhibitors
Agility
in
My Ovacome
7 years ago
Sigmoid resection
Hi all, I have had had 2 laps in the past 3 years to confirm endo in my bowel (sigmoid, a 3cm patch that is full thickness of the bowel wall). My consultant has advised surgery, a resection of that part of the bowel, they hope to anastomise it. The weird thing is that I do not have endo anywhere else
Hi all, I have had had 2 laps in the past 3 years to confirm endo in my bowel (sigmoid, a 3cm patch that is full thickness of the bowel wall). My consultant has advised surgery, a resection of that part of the bowel, they hope to anastomise it. The weird thing is that I do not have endo anywhere else
liesnl
in
Endometriosis UK
7 years ago
Stoma and wound.
Hi! I had an ileostomy about five months ago and was left with a large serious wound near the stoma adding to problems when infection developed. Now I have a viscious pain just above the wound. I see two separate groups one is nursing staff that change and check my wound and the other is the stoma nurse
Hi! I had an ileostomy about five months ago and was left with a large serious wound near the stoma adding to problems when infection developed. Now I have a viscious pain just above the wound. I see two separate groups one is nursing staff that change and check my wound and the other is the stoma nurse
jansaf
in
Living with a Stoma
7 years ago
Sloane Kettering or MD a Anderson?
My family and I are under the gun to decide whether we are flying to MD Anderson or Sloane Kettering in NYC for my mom's first debulking surgery (age 80, stage 4, diagnosed May 4). While I was staying in the hospital with mom during her two week admission for ostomy surgery, atrial fibrillation of the
My family and I are under the gun to decide whether we are flying to MD Anderson or Sloane Kettering in NYC for my mom's first debulking surgery (age 80, stage 4, diagnosed May 4). While I was staying in the hospital with mom during her two week admission for ostomy surgery, atrial fibrillation of the
Christalives
in
SHARE Ovarian Cancer Support
7 years ago
Need help please...
I read on here a couple of weeks ago about being able to 'pull out' blood test results etc. Could someone please tell me how to join. I overheard a lady talking about this a few months ago at the Churchill so I know they are part of this scheme.Any help would be greatly appreciated. Hospital visits
I read on here a couple of weeks ago about being able to 'pull out' blood test results etc. Could someone please tell me how to join. I overheard a lady talking about this a few months ago at the Churchill so I know they are part of this scheme.Any help would be greatly appreciated. Hospital visits
Susiecarer
in
CLL Support
7 years ago
Help with diagnosis
Advice urgently please: I have all the symptoms of endometriosis & am seeing gyno on Tuesday. Have been in pain for years as had extensive abdominal surgery which left adhesions that cause severe pain so thought it was that. But pain has been getting worse and is now unbearable. I take a lot of morphine
Advice urgently please: I have all the symptoms of endometriosis & am seeing gyno on Tuesday. Have been in pain for years as had extensive abdominal surgery which left adhesions that cause severe pain so thought it was that. But pain has been getting worse and is now unbearable. I take a lot of morphine
Vamp45
in
Endometriosis UK
7 years ago
The end is in sight
I think the end is now in sight. OH had to have emergency surgery, which as not gone well, and they want to operate again tomorrow if he is well enough. He is very poorly indeed and if he does make it will be months in hospital. They are not sure why (something to do with ascites) but it cut off the
I think the end is now in sight. OH had to have emergency surgery, which as not gone well, and they want to operate again tomorrow if he is well enough. He is very poorly indeed and if he does make it will be months in hospital. They are not sure why (something to do with ascites) but it cut off the
fizzix50
in
British Liver Trust
7 years ago
Stage 4 Endo and Excision
Went to see our 'second opinion' consultant regarding my Stage 4 endo and laparoscopy last night. Was told I have deep infiltrating endo, sticking my ovaries to the back of my uterus and bowel. I have been recommended excision via laparoscopy but been told it will be too risky to remove it ALL due to
Went to see our 'second opinion' consultant regarding my Stage 4 endo and laparoscopy last night. Was told I have deep infiltrating endo, sticking my ovaries to the back of my uterus and bowel. I have been recommended excision via laparoscopy but been told it will be too risky to remove it ALL due to
S-Joys
in
Endometriosis UK
7 years ago
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